Myelin Repair Foundation Inc
Accelerating the development of new therapeutics to prevent or repair damage to myelin caused by Multiple Sclerosis. The MRF is helping to identify biomarkers of myelin repair for use in myelin repair drug development and clinical trials
Myelin Repair Foundation Inc at a glance
In short: Myelin Repair Foundation Inc gave $100K across 1 grant in 2025 (avg $100K), mostly in Connecticut. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $100,000
- -50.1% vs 2024
- Grants made (2025)
- 1
- -50.0% vs 2024
- Average grant
- $100,000
- -0.1% vs 2024
- Median grant
- $100,000
- Total assets
- $877,106
- -32.3% vs 2024
- Primary geography
- Connecticut (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Myelin Repair Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Yale University ($100K).
Grant Size Distribution
9 grants across all recorded years
The most common grant size was under $50K: 4 grants of 9 (44%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
Cities
How Myelin Repair Foundation Inc gives
- Giving fell 53% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $25K (2021) to $212K (2022). In 2025 it made 1 grant totaling $100K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Yale University New Haven, CT | There are two scientific research agreements with Yale for $50,000 each. The first is to validate the exosomal small RNA biomarker for MS progression in an additional validation cohort, consisting of 40 progressive and stable MS patients and then confirm the astrocyte origin of progression-associated RNAs by verifying their expression or downregulation in reactive astrocytes in autopsied brain tissue from progressive MS patients. Lastly, to test whether GLAST+ exosomes from progressive but not stable MS patients or healthy controls induce proinflammatory pathways in human iPSC-derived microglial cells that are also active in microglial populations in the brain of progressive MS patients. The second SRA aims to Develop a robust protocol to isolate OL-derived exosomes and quantify their lipid and protein content and determine the small RNA, lipid and proteomic signatures in oligodendrocyte-exosomes correlated to remyelination using samples from the RENEW optic neuritis treatment trial. | $100,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $877,106 | $267,774 | $512,994 | $100,000 | 1 | $37,734 |
| 2024 | $1,295,871 | $266,071 | $503,704 | $200,296 | 2 | $52,232 |
| 2023 | $1,550,183 | $552,239 | $463,359 | $60,000 | 2 | $24,502 |
| 2022 | $1,330,627 | $285,427 | $538,950 | $211,558 | 3 | $914 |
| 2021 | $1,468,414 | $530,327 | $235,519 | $24,964 | 1 | $699 |
| 2019 | $1,552,624 | $294,685 | $538,400 | $150,000 | 3 | $7,293 |
About Myelin Repair Foundation Inc
Based on IRS filings
Myelin Repair Foundation Inc is a public charity, based in Saratoga, CA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $877K in total assets. In 2025, it awarded 1 grant totaling $100K. Net investment income was $38K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Myelin Repair Foundation Inc is led by Scott Johnson, CEO on every filing since 2019; 1 of 5 officers listed in 2025 is compensated.
Officers on the 2025 filing
Scott Johnson
CEO
On filings since 2019
20 hrs/week
$120K (2019) → $120K (2025)
Andy Cates
Director
On filings since 2019
1 hr/week
No compensation reported
Bobby Mehta
Director
On filings since 2019
1 hr/week
No compensation reported
Jim Gidwitz
Director
On filings since 2019
1 hr/week
No compensation reported
Eric Hsu
Director
On filings since 2024
1 hr/week
No compensation reported
Former officers (1)
- Former: Casey Mcglynn (2019–2022) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $120K, to Scott Johnson (CEO).
Frequently asked questions about Myelin Repair Foundation Inc
How much does Myelin Repair Foundation Inc give each year?
Myelin Repair Foundation Inc gave $100K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $200K across 2 grants.
How large is Myelin Repair Foundation Inc?
Myelin Repair Foundation Inc reported $877K in total assets on its 2025 IRS Form 990. Its revenue that year was $268K.
Where does Myelin Repair Foundation Inc operate?
Myelin Repair Foundation Inc has awarded grants in California, Connecticut, Illinois, Maryland, New York, Oregon.
What is Myelin Repair Foundation Inc's EIN?
Myelin Repair Foundation Inc's EIN (Employer Identification Number) is 03-0485196. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS April 13, 2020)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 10, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 11, 2022)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 11, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS November 5, 2025)
- IRS filings on file for fiscal years 2021–2025
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