Metavivor Research and Support Inc
Metavivor Research and Support Inc is a public charity based in Middleton, Wisconsin. It funds research focused exclusively on stage IV metastatic breast cancer (MBC), with the goal of improving outcomes and quality of life for people living with the disease.
Metavivor Research and Support Inc at a glance
In short: Metavivor Research and Support Inc gave $3.8M across 11 grants in 2024 (avg $341K), top state California. 64% of 2024 grantees were new. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $3,750,000
- -18.5% vs 2023
- Grants made (2024)
- 11
- -8.3% vs 2023
- Average grant
- $340,909
- -11.1% vs 2023
- Median grant
- $200,000
- Total assets
- $17,897,667
- -0.6% vs 2023
- New grantees (estimate)
- 64% first-time grantees (7 of 11, 2024; small sample)
- Primary geography
- California (29% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Metavivor Research and Support Inc
- Contact
Mailing address: 7780 Elmwood Ave 130, Middleton, WI 53562
Phone: (818) 860-1226
Website: https://metavivor.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Who Metavivor Research and Support Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was University of California San Francisco ($900K). Together the top 10 received $3.7M.
Grant Size Distribution
100 grants across all recorded years
The most common grant size was in the $100–250K range: 49 grants of 100 (49%).
Geographic Focus
Where this funder awards grants
METAvivor’s 2024 grant dollars went to recipients in multiple states. The largest shares were in California (29%), Texas (19%), Massachusetts (17%), New York (17%), and Florida (12%). Its listed 2024 grants also included a recipient in Kansas.
Grant Distribution by State
Share of 2024 grant dollars across all 11 itemized grants.
States
Cities
Is Metavivor Research and Support Inc open to new grantees?
64%
first-time grantees, 2024
In 2024, 7 of 11 grantees (64%) were first-time recipients. With only 11 grantees, that is a small sample: one grantee more or less moves the share by about 9 points. First grants averaged $321K; repeat grants $375K. How we count
Medians: $450K first-time, $200K repeat.
- 9% of 2024 grantees were also funded in 2023. Method
- Giving held roughly steady from 2021 to 2024 (−7%). Method
Estimate from itemized grant lists in IRS Form 990 filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $3.8M (2024) to $5.8M (2022). In 2024 it made 11 grants totaling $3.8M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of California San Francisco Los Angeles, CA | Research | $900,000 |
| H Lee Moffitt Cancer & Research Institute Inc Tampa, FL | Research | $450,000 |
| University Texas A&M College Station, TX | Research | $450,000 |
| New York University Grossman School of Medicine New York, NY | Research | $450,000 |
| Lab Central Cambridge, MA | Research | $450,000 |
| Dana-Farber Cancer Institute Boston, MA | Research | $200,000 |
| Stanford University School of Medicine Stanford, CA | Research | $200,000 |
| The University of Kansas Medical Center (Kumc) Kansas City, KS | Research | $200,000 |
| University of Texas Southwestern Medical Center Dallas, TX | Research | $200,000 |
| Weill Medical College of Cornell University New York, NY | Research | $200,000 |
Ready to take the next step with Metavivor Research and Support Inc?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $17,897,667 | $5,896,911 | $4,477,421 | $3,750,000 | 11 | $754,105 |
| 2023 | $18,006,916 | $5,273,267 | $5,158,900 | $4,600,000 | 12 | $438,326 |
| 2022 | $17,442,424 | $6,744,959 | $6,244,428 | $5,750,000 | 27 | $138,655 |
| 2021 | $15,087,139 | $5,810,082 | $5,548,628 | $4,050,000 | 26 | $53,134 |
| 2020 | $12,468,346 | $5,012,766 | $4,793,511 | $4,400,000 | 24 | $89,962 |
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
METAvivor’s stated mission is to fund stage IV MBC research to help transition the disease from terminal to chronic and manageable with a good quality of life, provide support and education for people living with MBC, and promote awareness to increase research funding.
Its research grants support work on the mechanisms, diagnosis, or treatment of MBC. Proposals addressing treatment side effects or quality of life may also be considered. Eligible applicants include individuals with a clinical doctoral degree or a doctoral degree who are actively engaged in MBC research and treatment. Grants go to researchers working at accredited colleges and universities or other respected research institutions.
One 2024 recipient, Lab Central, described its own mission as supporting innovative startup biotechnology companies by providing an environment for entrepreneurs and a life science laboratory in Kendall Square.
Grantmaking
In 2024, METAvivor reported 11 grants totaling $3,750,000. Grants ranged from $50,000 to $900,000, with a median of $200,000. The largest listed awards were $900,000 to the University of California San Francisco for research and $450,000 each to H. Lee Moffitt Cancer & Research Institute, University Texas A&M, New York University Grossman School of Medicine, and Lab Central, all for research.
METAvivor’s grant process begins with a call for proposals and letters of intent (LOIs). Scientific reviewers with relevant expertise and at least one trained patient advocate review and score the LOIs based on potential impact to patients. Top-scoring candidates are invited to submit full applications, which are reviewed and scored by peers and patient advocates. The Research Committee oversees the program in partnership with the Scientific Advisory Board. Grant selection criteria are documented in the request for proposals, and awarded grants are monitored at least quarterly. For multi-year grants, continued funding may depend on board acceptance of a year-one progress report.
For 2026, the organization describes a Translational Research Award of up to $450,000 over three years for established investigators; an Early Career Investigator Award of up to $200,000 over two years; and a Research Advisor’s Award for a member of its Scientific Advisory Board. The early-career award is for investigators within 10 years of their professional degree and, if applicable, within 6 years of starting their first non-tenured faculty position. The application process requires an LOI, and only invited applicants may submit a full application.
Leadership & Key People
Leadership team and compensation from IRS filings
Officers and directors listed on the 2024 filing were Jamil Rivers, president; Kate Watson, vice president; Alpha Lillstom Cheng, secretary; Patti Stough, treasurer; CJ Dian Corneliussen-James, immediate past president; and directors Sharon Anderson, Nicole Beck, Janice Cowden, Dr. Kelly Shanahan, and Barbara Bigelow.
Metavivor Research and Support Inc is led by Sonya Negley, Executive Director on every filing since 2020; 1 of 17 officers listed in 2024 is compensated.
Officers on the 2024 filing
Sonya Negley
Executive Director
On filings since 2020
40 hrs/week
$149K (2020) → $198K (2024)
Jamil Rivers
President
On filings since 2020
10 hrs/week
No compensation reported
Crystal Moore
Executive Director
New on the 2024 filing
40 hrs/week
No compensation reported
Barbara Bigelow
Director
Secretary → Vice President, 2022
Vice President → Director, 2023
On filings since 2020
9 hrs/week
No compensation reported
Kelly Shannahan
Director
On filings since 2020
9 hrs/week
No compensation reported
Danny Welch
Director
On filings since 2022
9 hrs/week
No compensation reported
Janice Cowden
Director
On filings since 2022
9 hrs/week
No compensation reported
Jill Bargonetti
Director
On filings since 2022
9 hrs/week
No compensation reported
Nicole Beck
Director
On filings since 2022
9 hrs/week
No compensation reported
Sharon Anderson
Director
On filings since 2022
9 hrs/week
No compensation reported
Stuart Martin
Director
On filings since 2022
9 hrs/week
No compensation reported
Amy Beumer
Director
On filings since 2023
9 hrs/week
No compensation reported
Wang Shein
Director
On filings since 2023
9 hrs/week
No compensation reported
Kate Watson
Vice President
Director → Secretary, 2022
Secretary → Vice President, 2023
On filings since 2020
10 hrs/week
No compensation reported
Alpha Lillstom Cheng
Secretary
Director → Secretary, 2023
On filings since 2022
9 hrs/week
No compensation reported
Cj Dian Corneliussen-James
Immediate Past President
Past President → Immediate Past President, 2024
On filings since 2022
9 hrs/week
No compensation reported
Patti Stough
Treasurer
Director → Treasurer, 2023
On filings since 2022
9 hrs/week
No compensation reported
Former officers (9)
- Former: Dan Cramer (2022) — Director
- Former: Barry Lenk (2020–2021) — Director
- Former: Dian Corneliussen-James (2020–2021) — Director
- Former: Patrick Quinn (2020–2021) — Treasurer
- Former: Shonte Drakeford (2020–2021) — Director
- Former: Terlisa Sheppard (2020–2021) — Vice President
- Former: Rich Leland (2021) — Director
- Former: Richard Leland (2020) — Director
- Former: Virginia Elizabeth Fairchild (2020) — Past President
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $198K, to Sonya Negley (Executive Director (Thru OCT 2024)).
Frequently asked questions about Metavivor Research and Support Inc
How much does Metavivor Research and Support Inc give each year?
Metavivor Research and Support Inc gave $3.8M across 11 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $4.6M across 12 grants.
What is Metavivor Research and Support Inc's typical grant size?
Metavivor Research and Support Inc's median grant in 2024 was $200,000, and its average grant was $340,909, across 11 grants on its 2024 IRS Form 990. Organizations receiving their first grant from Metavivor Research and Support Inc that year got $321K on average.
Where does Metavivor Research and Support Inc give grants?
Metavivor Research and Support Inc's top state is California, with 29% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Texas (19%) and Massachusetts (17%). The most frequent recipient cities were New York, NY (2 grants).
Does Metavivor Research and Support Inc give general operating support?
Not in 2024: none of the 11 grants with a stated purpose on Metavivor Research and Support Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (11 grants).
Who are Metavivor Research and Support Inc's largest grantees?
Metavivor Research and Support Inc's largest 2024 grantees include University of California San Francisco ($900,000), H Lee Moffitt Cancer & Research Institute Inc ($450,000) and University Texas A&M ($450,000), according to its 2024 IRS Form 990. Together they received 48% of its itemized 2024 grant dollars.
How large is Metavivor Research and Support Inc?
Metavivor Research and Support Inc reported $17.9M in total assets on its 2024 IRS Form 990. Its revenue that year was $5.9M.
What does Metavivor Research and Support Inc fund?
METAvivor’s stated mission is to fund stage IV MBC research to help transition the disease from terminal to chronic and manageable with a good quality of life, provide support and education for people living with MBC, and promote awareness to increase research funding. See mission & focus areas ↑
How do I apply for a grant from Metavivor Research and Support Inc?
Metavivor Research and Support Inc has no public application process in the sources Grantable reviewed. Check metavivor.org for current guidelines, or contact the foundation directly before submitting a request.
What is Metavivor Research and Support Inc's EIN?
Metavivor Research and Support Inc's EIN (Employer Identification Number) is 37-1578088. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 16, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS September 28, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS September 13, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 17, 2025)
- IRS filings on file for fiscal years 2020–2024
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Cite this profile
Grantable. (2026). Metavivor Research and Support Inc funder profile. GrantGraph. Retrieved October 15, 2026, from https://grantable.co/funders/metavivor-research-and-support-inc-morg_f92a45efbc924098b6f3dfd2b6f9f272
BibTeX
@misc{grantable_371578088_2026,
author = {{Grantable}},
title = {{Metavivor Research and Support Inc funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/metavivor-research-and-support-inc-morg_f92a45efbc924098b6f3dfd2b6f9f272},
note = {Accessed 2026-10-15. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Metavivor Research and Support Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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