Metavivor Research and Support Inc logo

Metavivor Research and Support Inc

MIDDLETON, WI EIN: 37-1578088 Website

METAVIVOR RESEARCH AND SUPPORT INC is a 501(c)(3) nonprofit organization headquartered in Annapolis, Maryland, dedicated to advancing research and support for metastatic breast cancer (MBC). The organization is the only nonprofit in the United States that exclusively funds metastatic breast cancer research through a scientific peer-review process. METAvivor operates as a volunteer-led organization with a mission to transition metastatic breast cancer from a terminal diagnosis to a chronic, manageable disease with improved quality of life.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$17.9M

-0.6% YoY

Annual Giving

$3.8M

-18.5% YoY

Grant Count

11

-8.3% YoY

Avg Grant Size

$341K

-11.1% YoY

Research compiled by Grantable AI from public sources. Last updated April 2026.

Mission & Focus Areas

METAvivor's mission is to sustain hope for those living with stage 4 metastatic breast cancer by funding vital research to improve longevity and quality of life for MBC patients. The organization focuses on three primary areas:

Research: METAvivor awards research grants exclusively to individuals with clinical or doctoral degrees actively engaged in metastatic breast cancer research. The organization funds discovery and early-phase basic, translational, and clinical research designed to address critical problems in the MBC field.

Awareness: The organization raises public awareness about stage IV metastatic breast cancer, emphasizing that while 200,000 Americans are diagnosed with breast cancer annually, 6-10% of these diagnoses are metastatic, and approximately 30% of breast cancer patients develop metastatic disease.

Support: METAvivor facilitates peer-to-peer support through a nationwide peer support leader training program and provides community resources for patients living with MBC.

Grantmaking

METAvivor has awarded more than $37 million in cumulative grants since its founding in 2009. The organization offers three primary grant types:

Grant Types

**METAvivor Translational Research Award:** Up to $450000 total over three years for established investigators conducting discovery and early-phase basictranslationaland clinical research

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Geographic Focus

Where this funder awards grants

While METAvivor funds research nationally, recent grant-making activity has included institutions across multiple states including Texas, New York, and Massachusetts.

Grant Distribution by State

25states
+17 more states

Cities

AlbanyAlbuquerqueAuroraAustinBaltimoreBethesdaBirminghamBostonBuffaloCambridgeChapel HillCharlottesvilleChicagoCleavelandCold Spring HarbordCollege StationColumbusCoral GablesDallasFairway

Financial History

Multi-year comparison from IRS filings

2023 Financial Data:

  • Total Revenue: $5,273,267
  • Total Expenses: $5,158,900
  • Total Assets: $18,006,916
  • Total Liabilities: $15,600,000

Staffing: The organization employs 6 staff members as of 2023.

Funding Allocation: According to the organization, 90% of every donation goes directly to fund stage IV metastatic breast cancer research.

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$2M$4M$6M$7M20202021202220232024
Metric202420232022
Total Assets$17,897,667$18,006,916$17,442,424
Revenue$5,896,911$5,273,267$6,744,959
Expenses$4,477,421$5,158,900$6,244,428
Qualifying Distributions
Net Investment Income$754,105$438,326$138,655
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$1M$3M$4M$6M24 grants202026 grants202127 grants202212 grants202311 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

UNIVERSITY OF CALIFORNIA…$900KH LEE MOFFITT CANCER & R…$450KUNIVERSITY TEXAS A&M$450KNEW YORK UNIVERSITY GROS…$450KLAB CENTRAL$450KDANA-FARBER CANCER INSTI…$200KSTANFORD UNIVERSITY SCHO…$200KTHE UNIVERSITY OF KANSAS…$200KUNIVERSITY OF TEXAS SOUT…$200KWEILL MEDICAL COLLEGE OF…$200K

Grant Size Distribution

100 grants across all recorded years

<$50K1$50–100K49$100–250K47$250–500K3$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include University of California San Francisco ($900,000), H Lee Moffitt Cancer & Research Institute Inc ($450,000), University Texas A&m ($450,000).

RecipientPurposeAmount
DANA-FARBER CANCER INSTITUTE BOSTON, MARESEARCH$200,000
H LEE MOFFITT CANCER & RESEARCH INSTITUTE INC TAMPA, FLRESEARCH$450,000
UNIVERSITY TEXAS A&M COLLEGE STATION, TXRESEARCH$450,000
NEW YORK UNIVERSITY GROSSMAN SCHOOL OF MEDICINE NEW YORK, NYRESEARCH$450,000
STANFORD UNIVERSITY SCHOOL OF MEDICINE STANFORD, CARESEARCH$200,000
THE UNIVERSITY OF KANSAS MEDICAL CENTER (KUMC) KANSAS CITY, KSRESEARCH$200,000
THE UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER HOUSTON, TXRESEARCH$50,000
LAB CENTRAL CAMBRIDGE, MARESEARCH$450,000
UNIVERSITY OF CALIFORNIA SAN FRANCISCO LOS ANGELES, CARESEARCH$900,000
UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER DALLAS, TXRESEARCH$200,000

Leadership & Key People

Leadership team and compensation from IRS filings

Crystal Moore serves as Executive Director of the organization.

Compensation Overview

From 2024 IRS filing

SONYA NEGLEYEXECUTIVE DIRECTOR (THRU OCT…$198K

From 2024 filing

NameTitleHoursCompensation
JAMIL RIVERSPRESIDENT10
KATE WATSONVICE PRESIDENT10
ALPHA LILLSTOM CHENGSECRETARY9
PATTI STOUGHTREASURER9
CJ DIAN CORNELIUSSEN-JAMESIMMEDIATE PAST PRESIDENT9
SHARON ANDERSONDIRECTOR9
NICOLE BECKDIRECTOR9
JANICE COWDENDIRECTOR9
DR KELLY SHANNAHANDIRECTOR9
BARBARA BIGELOWDIRECTOR9
WANG SHEINDIRECTOR9
AMY BEUMERDIRECTOR9
DR JILL BARGONETTIDIRECTOR9
DR STUART MARTINDIRECTOR9
DR DANNY WELCHDIRECTOR9
SONYA NEGLEYEXECUTIVE DIRECTOR (THRU OCT 2024)40$198,367
CRYSTAL MOOREEXECUTIVE DIRECTOR (FROM NOV 2024)40

Recent News & Activity

Recent developments and announcements

2025

METAvivor announced 2025 MBC Research Grant Awardees, continuing its annual cycle of competitive grant awards. The organization has maintained consistent grant-making activity, with award announcements in 2023, 2024, and 2025. The 2026 grant cycle is currently open for applications.

Investing in Hope: Congratulations to the 2025 METAvivor Research Grant

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What does Metavivor Research and Support Inc fund?

METAvivor's mission is to sustain hope for those living with stage 4 metastatic breast cancer by funding vital research to improve longevity and quality of life for MBC patients. The organization focuses on three primary areas: **Research:** METAvivor awards research grants exclusively to individuals with clinical or doctoral degrees actively engaged in metastatic breast cancer research. The organization funds discovery and early-phase basic, translational, and clinical research designed to add…

How do I apply for a grant from Metavivor Research and Support Inc?

METAvivor has awarded more than $37 million in cumulative grants since its founding in 2009. The organization offers three primary grant types: **METAvivor Translational Research Award:** Up to $450,000 total over three years for established investigators conducting discovery and early-phase basic, translational, and clinical research. **METAvivor Early Career Investigator Award:** Up to $200,000 total over two years for early career investigators (within 10 years of their professional degree a…

Where does Metavivor Research and Support Inc make grants?

While METAvivor funds research nationally, recent grant-making activity has included institutions across multiple states including Texas, New York, and Massachusetts.

What size grants does Metavivor Research and Support Inc award?

In 2024, Metavivor Research and Support Inc awarded 11 grants totaling $3.8M — an average of about $341K per grant, based on its IRS Form 990 filings.

What is Metavivor Research and Support Inc's EIN?

Metavivor Research and Support Inc's EIN (Employer Identification Number) is 37-1578088. IRS Form 990 filing data is available on this page for 2020–2024.

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Data last updated June 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.

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