Lupus and Allied Diseases Association Inc
The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$2.8M
+9.6% YoY
Annual Giving
$565K
+0.4% YoY
Grant Count
5
+0.0% YoY
Avg Grant Size
$113K
+0.4% YoY
About Lupus and Allied Diseases Association Inc
Based on IRS filings
Lupus and Allied Diseases Association Inc is a nonprofit organization focused on Adults, based in VERONA, NY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $2.8M in total assets. In 2025, it awarded 5 grants totaling $565K. Net investment income was $94K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,825,249 | $2,577,966 | $2,246,545 |
| Revenue | $987,432 | $1,076,141 | $1,009,530 |
| Expenses | $740,149 | $744,720 | $707,359 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $93,817 | $86,141 | $46,627 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
Grant Size Distribution
26 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest include Masonic Medical Research Institute ($225,000), Lupus Research Alliance ($150,000), Carra ($89,424).
| Recipient | Purpose | Amount |
|---|---|---|
| CARRA Washington, DC | Pediatric Lupus Research | $89,424 |
| Lupus Foundation of America Washington, DC | Pediatric Lupus Research | $25,000 |
| Lupus Research Alliance New York, NY | Lupus Research | $150,000 |
| Rheumatology Research Foundation Atlanta, GA | Lupus Research, Preceptor | $75,300 |
| Masonic Medical Research Institute Utica, NY | Lupus Research, Education Program | $225,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Kathleen A Arntsen | President and CEO | 25 | — |
| Lori A Vogel | Treasurer | 15 | — |
| David L Arntsen | Secretary | 12 | — |
| Sandra M Frear | 1st Vice President | 8 | — |
| Anne M Zablotowicz | 2nd Vice President | 14 | — |
| Jane M Porter | Director | 8 | — |
| Jacqueline L Taylor | Director | 4 | — |
| Dina Thachet | Director | 8 | — |
| Meghan P Valadez | Director | 4 | — |
| Brian J Vogel | Director | 4 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Lupus and Allied Diseases Association Inc?
Lupus and Allied Diseases Association Inc is a nonprofit organization focused on Adults, based in VERONA, NY. It holds $2.8M in total assets as of 2025.
How large is Lupus and Allied Diseases Association Inc?
As of 2025, Lupus and Allied Diseases Association Inc holds $2.8M in total assets with $987K in annual revenue. It awarded 5 grants totaling $565K in 2025.
Where does Lupus and Allied Diseases Association Inc operate?
Lupus and Allied Diseases Association Inc has awarded grants in District of Columbia, Georgia, Illinois, New York.
What size grants does Lupus and Allied Diseases Association Inc award?
In 2025, Lupus and Allied Diseases Association Inc awarded 5 grants totaling $565K — an average of about $113K per grant, based on its IRS Form 990 filings.
What is Lupus and Allied Diseases Association Inc's EIN?
Lupus and Allied Diseases Association Inc's EIN (Employer Identification Number) is 16-1083229. IRS Form 990 filing data is available on this page for 2020–2025.
Explore Open Grants
Browse active grant opportunities in Lupus and Allied Diseases Association Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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