The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life.
Key facts about Lupus and Allied Diseases Association Inc
In short: Lupus and Allied Diseases Association Inc gave $565K across 5 grants in 2025 (avg $113K), mostly in New York. Source: 2025 IRS Form 990.
- EIN
- 16-1083229
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $564,724
- Grants made (2025)
- 5
- Average grant
- $112,945
- Median grant
- $89,424
- Total assets
- $2,825,249
- Primary geography
- New York (66% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$2.8M
+9.6% YoY
Annual Giving
$565K
+0.4% YoY
Grant Count
5
+0.0% YoY
Avg Grant Size
$113K
+0.4% YoY
How Lupus and Allied Diseases Association Inc gives
- Giving grew 23% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
About Lupus and Allied Diseases Association Inc
Based on IRS filings
Lupus and Allied Diseases Association Inc is a public charity focused on Adults, based in Verona, NY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $2.8M in total assets. In 2025, it awarded 5 grants totaling $565K. Net investment income was $94K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 5 itemized grants.
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $220K (2020) to $565K (2025). In 2025 it made 5 grants totaling $565K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
The largest 2025 recipient was Masonic Medical Research Institute ($225K). Together the top 5 received $565K.
Grant Size Distribution
26 grants across all recorded years
The most common grant size was in the $100–250K range: 11 grants of 26 (42%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Masonic Medical Research Institute Utica, NY | Lupus Research, Education Program | $225,000 |
| Lupus Research Alliance New York, NY | Lupus Research | $150,000 |
| Carra Washington, DC | Pediatric Lupus Research | $89,424 |
| Rheumatology Research Foundation Atlanta, GA | Lupus Research, Preceptor | $75,300 |
| Lupus Foundation of America Washington, DC | Pediatric Lupus Research | $25,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,825,249 | $2,577,966 | $2,246,545 |
| Revenue | $987,432 | $1,076,141 | $1,009,530 |
| Expenses | $740,149 | $744,720 | $707,359 |
| Net Investment Income | $93,817 | $86,141 | $46,627 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS December 7, 2020)
- Updated Form 990 for fiscal year 2021 (received by the IRS February 3, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS February 1, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS January 16, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS January 23, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS January 20, 2026)
- IRS filings on file for fiscal years 2020–2025
Leadership & Key People
Officers and directors from IRS filings
Lupus and Allied Diseases Association Inc is led by Kathleen A Arntsen, President & CEO on every filing since 2020; none of the 10 officers listed in 2025 report compensation.
Officers on the 2025 filing
Kathleen A Arntsen
President & CEO
On filings since 2020
25 hrs/week
No compensation reported
Brian J Vogel
Director
On filings since 2020
4 hrs/week
No compensation reported
Jacqueline L Taylor
Director
2nd Vice President → Director, 2024
On filings since 2020
4 hrs/week
No compensation reported
Jane M Porter
Director
On filings since 2020
8 hrs/week
No compensation reported
Dina Thachet
Director
On filings since 2023
8 hrs/week
No compensation reported
Meghan P Valadez
Director
On filings since 2024
4 hrs/week
No compensation reported
Anne M Zablotowicz
2nd Vice President
Director → 2nd Vice President, 2024
On filings since 2020
14 hrs/week
No compensation reported
David L Arntsen
Secretary
On filings since 2020
12 hrs/week
No compensation reported
Lori A Vogel
Treasurer
Director → Treasurer, 2023
On filings since 2020
15 hrs/week
No compensation reported
Sandra M Frear
1st Vice President
On filings since 2020
8 hrs/week
No compensation reported
Former officers (4)
- Former: Lisabeth S Iglesias (2020–2023) — Director
- Former: Philip A Teague (2020–2022) — Treasurer
- Former: Estela M Mata Carcamo (2020) — Director
- Former: Juana Mata (2020) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Lupus and Allied Diseases Association Inc
How much does Lupus and Allied Diseases Association Inc give each year?
Lupus and Allied Diseases Association Inc gave $565K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $562K across 5 grants.
What is Lupus and Allied Diseases Association Inc's typical grant size?
Lupus and Allied Diseases Association Inc's median grant in 2025 was $89,424, and its average grant was $112,945, across 5 grants on its 2025 IRS Form 990.
Where does Lupus and Allied Diseases Association Inc give grants?
Lupus and Allied Diseases Association Inc gives mostly in New York: 66% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were District of Columbia (20%) and Georgia (13%). The most frequent recipient cities were Washington, DC (2 grants).
Does Lupus and Allied Diseases Association Inc give general operating support?
Not in 2025: none of the 5 grants with a stated purpose on Lupus and Allied Diseases Association Inc's 2025 IRS Form 990 were described as general or operating support.
Who are Lupus and Allied Diseases Association Inc's largest grantees?
Lupus and Allied Diseases Association Inc's largest 2025 grantees include Masonic Medical Research Institute ($225,000), Lupus Research Alliance ($150,000) and Carra ($89,424), according to its 2025 IRS Form 990. Together they received 82% of its itemized 2025 grant dollars.
How large is Lupus and Allied Diseases Association Inc?
Lupus and Allied Diseases Association Inc reported $2.8M in total assets on its 2025 IRS Form 990. Its revenue that year was $987K.
What is Lupus and Allied Diseases Association Inc?
Lupus and Allied Diseases Association Inc is a public charity focused on Adults, based in Verona, NY. It holds $2.8M in total assets as of 2025.
What is Lupus and Allied Diseases Association Inc's EIN?
Lupus and Allied Diseases Association Inc's EIN (Employer Identification Number) is 16-1083229. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
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