Livelikelou Foundation logo

Livelikelou Foundation

Public charity · Grantmaker Oxford, OH EIN: 82-3524872 Website

The live like lou foundation's mission is to create and connect communities to stimulate emerging als research and uniquely support families affected by lou gehrig's disease. Named in honor of mlb hall of famer lou gehrig, our vision is to leave als better than we found it by supporting families affected by lou gehrig's disease, funding emerging researchers seeking meaningful treatments and cures for als, and helping generate awareness of lou gehrig's disease for the more than 30,000 people currently living with als in North America. In the face of his diagnosis with amyotrophic lateral sclerosis als lou continued to live his life with courage, determination, and gratitude. This is what it means to live like lou.

Key facts about Livelikelou Foundation

In short: Livelikelou Foundation gave $891K across 6 grants in 2024 (avg $148K), mostly in Tennessee. Source: 2024 IRS Form 990.

EIN
82-3524872
Latest 990 filing
Form 990, 2024
Annual giving (2024)
$890,950
Grants made (2024)
6
Average grant
$148,492
Median grant
$75,000
Total assets
$3,186,629
Primary geography
Tennessee (66% of itemized 2024 grant dollars)

Data from IRS Form 990, 2024; updated September 2026.

Financial Overview

From 2024 IRS Form 990 · View filing

Total Assets

$3.2M

-19.6% YoY

Annual Giving

$891K

-0.7% YoY

Grant Count

6

-33.3% YoY

Avg Grant Size

$148K

+48.9% YoY

How Livelikelou Foundation gives

  • Giving grew 348% from 2021 to 2024. Method

From the foundation's IRS Form 990 filings. Methodology.

About Livelikelou Foundation

Based on IRS filings

Livelikelou Foundation is a public charity focused on Education, based in Oxford, OH. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.2M in total assets. In 2024, it awarded 6 grants totaling $891K. Net investment income was $137K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

10states

Share of 2024 grant dollars across all 6 itemized grants.

Cities

Ann ArborOxfordPenningtonLebanonNashvilleLos AngelesPhoenixPittsburghAtlanaAtlantaBaltimoreOaklandPhiladelphiaRochester

Giving Over Time

Total grant dollars and number of grants per year

$0$250K$500K$750K$1M5 grants2020 3 grants2021 7 grants2022 9 grants2023 6 grants2024

From 2020 to 2024, annual grant giving ranged from $199K (2021) to $951K (2022). In 2024 it made 6 grants totaling $891K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 6 recipients in 2024

Vanderbilt University Medical Center: $570KVanderbilt University MedicalCenter$570KEmory University: $100KEmory University$100KThe Regents of the University of California SF: $75KThe Regents of the Universityof California SF$75KUniversity of Southern California: $75KUniversity of SouthernCalifornia$75KThe Regents of the University of Michigan: $52KThe Regents of the Universityof Michigan$52KPermobil Foundation: $19KPermobil Foundation$19K

The largest 2024 recipient was Vanderbilt University Medical Center ($570K). Together the top 6 received $891K.

Grant Size Distribution

30 grants across all recorded years

11<$50K9$50–100K6$100–250K2$250–500K2$500K–1M$1–5M$5M+

The most common grant size was under $50K: 11 grants of 30 (37%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Vanderbilt University Medical Center Nashville, TNALS Research$570,000
Emory University Atlanta, GAALS Research$100,000
The Regents of the University of California SF Oakland, CAALS Research$75,000
University of Southern California Los Angeles, CAALS Research$75,000
The Regents of the University of Michigan Ann Arbor, MIALS Research$51,950
Permobil Foundation Lebanon, TNWheelchairs for People with ALS$19,000

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$1M$2M$3M$4M2020 2021 2022 2023 2024
Metric202420232022
Total Assets$3,186,629$3,965,856$2,871,754
Revenue$1,520,640$2,927,194$2,796,333
Expenses$2,151,844$1,899,157$1,727,639
Net Investment Income$136,780$72,602$-1,786

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS August 16, 2021)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS November 3, 2022)
  3. Updated Form 990 for fiscal year 2022 (received by the IRS November 13, 2023)
  4. Updated Form 990 for fiscal year 2023 (received by the IRS November 12, 2024)
  5. Updated Form 990 for fiscal year 2024 (received by the IRS November 17, 2025)
  6. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Officers and directors from IRS filings

Livelikelou Foundation is led by Wendy Faust, Executive Director on every filing since 2021; none of the 15 officers listed in 2024 report compensation.

Officers on the 2024 filing

  • Wendy Faust

    Executive Director

    On filings since 2021

    40 hrs/week

    $32K (2021) → $0 (2024)

  • Chris W Brussalis

    Chairman

    Trustee → Chairman, 2024

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Andy Miller

    Trustee

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Brian Dunn

    Trustee

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Gaylon D Morris

    Trustee

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Jack Silva

    Trustee

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Kylan Morris

    Trustee

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Bob Biggs

    Trustee

    New on the 2024 filing

    2 hrs/week

    No compensation reported

  • David Almacy

    Trustee

    New on the 2024 filing

    2 hrs/week

    No compensation reported

  • Fred Reimer

    Trustee

    New on the 2024 filing

    2 hrs/week

    No compensation reported

  • Jacob Heuser

    Trustee

    New on the 2024 filing

    2 hrs/week

    No compensation reported

  • John Roselle

    Trustee

    New on the 2024 filing

    2 hrs/week

    No compensation reported

  • Greyson W Geiler

    Vice Chairman

    Treasurer → Vice Chairman, 2024

    On filings since 2020

    2 hrs/week

    No compensation reported

  • WL Gray Jr.

    Past Chairman

    Chairman → Past Chairman, 2024

    On filings since 2020

    2 hrs/week

    No compensation reported

  • David Haire

    Treasurer

    Trustee → Treasurer, 2024

    On filings since 2023

    2 hrs/week

    No compensation reported

Former officers (8)
  • Former: Robert A Biggs (2020–2023) — Trustee
  • Former: Frederick D Reimer (2021–2023) — Trustee
  • Former: Chris W Brussalis Vice Chairman (2023) — Trustee
  • Former: J David Almacy (2023) — Trustee
  • Former: Morris Stephens II-to (2023) — Trustee
  • Former: Gaylon D MorrisVice Chairman (2020–2022) — Trustee
  • Former: Suzanne Alexander (2020–2022) — Trustee
  • Former: Morris D Stephens II (2021–2022) — Trustee

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2021 IRS filing

Suzanne Alexander — Director: $95KSuzanne AlexanderDirector$95KWendy Faust — Executive Dir.: $32KWendy FaustExecutive Dir.$32K

The highest reported compensation on the 2021 filing was $95K, to Suzanne Alexander (Director). 2 officers or directors reported compensation on that filing.

Frequently asked questions about Livelikelou Foundation

How much does Livelikelou Foundation give each year?

Livelikelou Foundation gave $891K across 6 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $898K across 9 grants.

What is Livelikelou Foundation's typical grant size?

Livelikelou Foundation's median grant in 2024 was $75,000, and its average grant was $148,492, across 6 grants on its 2024 IRS Form 990.

Where does Livelikelou Foundation give grants?

Livelikelou Foundation gives mostly in Tennessee: 66% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest states were California (17%) and Georgia (11%).

Does Livelikelou Foundation give general operating support?

Not in 2024: none of the 6 grants with a stated purpose on Livelikelou Foundation's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "ALS Research" (5 grants).

Who are Livelikelou Foundation's largest grantees?

Livelikelou Foundation's largest 2024 grantees include Vanderbilt University Medical Center ($570,000), Emory University ($100,000) and The Regents of the University of California SF ($75,000), according to its 2024 IRS Form 990. Together they received 84% of its itemized 2024 grant dollars.

How large is Livelikelou Foundation?

Livelikelou Foundation reported $3.2M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.5M.

What is Livelikelou Foundation?

Livelikelou Foundation is a public charity focused on Education, based in Oxford, OH. It holds $3.2M in total assets as of 2024.

What is Livelikelou Foundation's EIN?

Livelikelou Foundation's EIN (Employer Identification Number) is 82-3524872. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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