To accelerate full spectrum research to cure Rett syndrome and empower families with knowledge and connectivity.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$5.3M
-15.0% YoY
Annual Giving
$1.7M
+144.3% YoY
Grant Count
12
+71.4% YoY
Avg Grant Size
$140K
+42.5% YoY
About International Rett Syndrome Foundation
Based on IRS filings
International Rett Syndrome Foundation is a nonprofit organization focused on Medical Research, based in CINCINNATI, OH. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $5.3M in total assets. In 2024, it awarded 12 grants totaling $1.7M. Net investment income was $261K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $5,325,567 | $6,263,405 | $6,438,774 |
| Revenue | $4,813,748 | $4,855,820 | $3,669,308 |
| Expenses | $5,531,022 | $3,723,772 | $5,494,227 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $261,285 | $88,797 | $-108,882 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
46 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include The General Hospital Corporation dba Massachusetts General Hospital ($300,000), University of Wisconsin-Madison ($300,000), Vanderbilt University ($137,500).
| Recipient | Purpose | Amount |
|---|---|---|
| North Carolina State University Raleigh, NC | Rett Syndrome Research | $120,982 |
| The General Hospital Corporation dba Massachusetts General Hospital Somerville, MA | Rett Syndrome Research | $300,000 |
| Vanderbilt University Nashville, TN | Rett Syndrome Research | $137,500 |
| The Regents of the University of Colorado Denver, CO | Rett Syndrome Research | $137,500 |
| Regents of the University of California Davis, CA | Rett Syndrome Research | $50,000 |
| The Rockefeller University New York, NY | Rett Syndrome Research | $120,000 |
| Whitehead University Cambridge, MA | Rett Syndrome Research | $50,000 |
| The University of North Carolina at Chapel Hill Chapel Hill, NC | Rett Syndrome Research | $100,000 |
| The University of Texas Southwestern Medical Center Dallas, TX | Rett Syndrome Research | $137,500 |
| University of Colorado Denver Denver, CO | Rett Syndrome Research | $125,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Jospeh Horrigan MD | Trustee | 0.5 | — |
| Lisa Monteggia PhD | Trustee | 0.5 | — |
| David Pass PharmD | Chairman | 1 | — |
| Mitch Bleske | Treasurer | 1 | — |
| Gordon Rich | Founding Seat - Non Voting | 0.5 | — |
| Alan Shukovsky | Trustee | 0.5 | — |
| Leslie Mehta Esq | Interim Chief Executive Officer | 0.5 | $5,208 |
| Mary Forrest Engel | Trustee | 0.5 | — |
| Steve Wood | Vice Chairman | 0.5 | — |
| Laura Stoppel PhD | Trustee | 0.5 | — |
| Parthy Evans | Trustee - Start 07/24 | 0.5 | — |
| Steve Marconi CPA | Trustee - Start 07/24 | 0.5 | — |
| Melissa Kennedy - Exit 1224 | Chief Executive Officer | 40 | $186,940 |
| Nupur Garg | VP of Research | 40 | $187,300 |
| Timothy Frank | Development Director | 40 | $116,466 |
| Meghan Cordeiro | Marketing & Communication Director | 40 | $113,308 |
| Drew Jones | VP of Clinical Development | 40 | $108,976 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is International Rett Syndrome Foundation?
International Rett Syndrome Foundation is a nonprofit organization focused on Medical Research, based in CINCINNATI, OH. It holds $5.3M in total assets as of 2024.
How large is International Rett Syndrome Foundation?
As of 2024, International Rett Syndrome Foundation holds $5.3M in total assets with $4.8M in annual revenue. It awarded 12 grants totaling $1.7M in 2024.
Where does International Rett Syndrome Foundation operate?
International Rett Syndrome Foundation has awarded grants in California, Colorado, Florida, Illinois, Massachusetts, North Carolina, New Jersey, New York, Ohio, Pennsylvania, Tennessee, Texas, Virginia, Wisconsin.
What size grants does International Rett Syndrome Foundation award?
In 2024, International Rett Syndrome Foundation awarded 12 grants totaling $1.7M — an average of about $140K per grant, based on its IRS Form 990 filings.
What is International Rett Syndrome Foundation's EIN?
International Rett Syndrome Foundation's EIN (Employer Identification Number) is 31-1682518. IRS Form 990 filing data is available on this page for 2019–2024.
Explore Open Grants
Browse active grant opportunities in International Rett Syndrome Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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