Illinois Spina Bifida Association
An organization that works to improve the quality of life of children, adults, and families living with spina bifida, a lifelong neurological condition that affects the spine and is usually apparent at birth. ISBA works to accomplish its mission with a three-part strategy.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$348K
-9.7% YoY
Annual Giving
$14K
+2.4% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$14K
+2.4% YoY
About Illinois Spina Bifida Association
Based on IRS filings
Illinois Spina Bifida Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in CHICAGO, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $348K in total assets. In 2024, it awarded 1 grants totaling $14K. Net investment income was $14K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $348,197 | $385,729 | $400,544 |
| Revenue | $268,168 | $268,679 | $282,397 |
| Expenses | $308,580 | $294,975 | $255,260 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $14,003 | $18,019 | $8,889 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Open Grants
5 open opportunities from Illinois Spina Bifida Association
Emergency Assistance Fund
Illinois Spina Bifida Association
Amount
Varies
Deadline
Rolling / Open
Equipment Fund
Illinois Spina Bifida Association
Amount
Up to $125
Deadline
Rolling / Open
ISBA Scholarships (Patrick Juris, Valiant, and Mary Mayer Memorial Scholarships)
Illinois Spina Bifida Association
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include YMCA Camp Independence ($14,479).
| Recipient | Purpose | Amount |
|---|---|---|
| YMCA Camp Independence Ingleside, IL | Camp scholarships | $14,479 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Rebecca Rupnick | Chairperson | 8 | — |
| Blanca Jara | Vice Chair | 4 | — |
| James Marks | Treasurer | 4 | — |
| Nathan Parris | Secretary | 4 | — |
| Chris Byrne | Director | 2 | — |
| Derek Snyder | Director | 2 | — |
| Erika Holliday | Director | 2 | — |
| Kevin Dam | Director | 2 | — |
| Mary Jo Grill | Director | 2 | — |
| Jessica Barclay | Director resigned 2024 | 2 | — |
| Paul Gerber | Director resigned 2024 | 2 | — |
| Matt Larsen | Executive Director | 40 | $81,142 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Illinois Spina Bifida Association?
Illinois Spina Bifida Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in CHICAGO, IL. It holds $348K in total assets as of 2024.
How large is Illinois Spina Bifida Association?
As of 2024, Illinois Spina Bifida Association holds $348K in total assets with $268K in annual revenue. It awarded 1 grants totaling $14K in 2024.
Where does Illinois Spina Bifida Association operate?
Illinois Spina Bifida Association has awarded grants in Illinois.
What size grants does Illinois Spina Bifida Association award?
In 2024, Illinois Spina Bifida Association awarded 1 grants totaling $14K — an average of about $14K per grant, based on its IRS Form 990 filings.
What is Illinois Spina Bifida Association's EIN?
Illinois Spina Bifida Association's EIN (Employer Identification Number) is 23-7062317. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Illinois Spina Bifida Association's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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