Illinois Spina Bifida Association
An organization that works to improve the quality of life of children, adults, and families living with spina bifida, a lifelong neurological condition that affects the spine and is usually apparent at birth. ISBA works to accomplish its mission with a three-part strategy.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$348K
-9.7% YoY
Annual Giving
$14K
+2.4% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$14K
+2.4% YoY
About Illinois Spina Bifida Association
Based on IRS filings
Illinois Spina Bifida Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in CHICAGO, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $348K in total assets. In 2024, it awarded 1 grants totaling $14K. Net investment income was $14K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $348,197 | $385,729 | $400,544 |
| Revenue | $268,168 | $268,679 | $282,397 |
| Expenses | $308,580 | $294,975 | $255,260 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $14,003 | $18,019 | $8,889 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Open Grants
5 open opportunities from Illinois Spina Bifida Association
Emergency Assistance Fund
Illinois Spina Bifida Association
Amount
Varies
Deadline
Rolling / Open
Equipment Fund
Illinois Spina Bifida Association
Amount
Up to $125
Deadline
Rolling / Open
ISBA Scholarships (Patrick Juris, Valiant, and Mary Mayer Memorial Scholarships)
Illinois Spina Bifida Association
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Rebecca Rupnick | Chairperson | 8 | — |
| Blanca Jara | Vice Chair | 4 | — |
| James Marks | Treasurer | 4 | — |
| Nathan Parris | Secretary | 4 | — |
| Chris Byrne | Director | 2 | — |
| Derek Snyder | Director | 2 | — |
| Erika Holliday | Director | 2 | — |
| Kevin Dam | Director | 2 | — |
| Mary Jo Grill | Director | 2 | — |
| Jessica Barclay | Director resigned 2024 | 2 | — |
| Paul Gerber | Director resigned 2024 | 2 | — |
| Matt Larsen | Executive Director | 40 | $81,142 |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Illinois Spina Bifida Association on Grantable?
- Assess strategic fit with your organization
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