Illinois Spina Bifida Association
An organization that works to improve the quality of life of children, adults, and families living with spina bifida, a lifelong neurological condition that affects the spine and is usually apparent at birth. ISBA works to accomplish its mission with a three-part strategy.
Illinois Spina Bifida Association at a glance
In short: Illinois Spina Bifida Association gave $14K across 1 grant in 2024 (avg $14K), mostly in Illinois. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $14,479
- +2.4% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $14,479
- +2.4% vs 2023
- Median grant
- $14,479
- Total assets
- $348,197
- -9.7% vs 2023
- Primary geography
- Illinois (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Illinois Spina Bifida Association
Open Grants
5 open opportunities from Illinois Spina Bifida Association
Emergency Assistance Fund
Illinois Spina Bifida Association
Amount
Varies
Deadline
Deadline not published
Equipment Fund
Illinois Spina Bifida Association
Amount
Up to $125
Deadline
Deadline not published
ISBA Scholarships (Patrick Juris, Valiant, and Mary Mayer Memorial Scholarships)
Illinois Spina Bifida Association
Amount
Varies
Deadline
Deadline not published
Who Illinois Spina Bifida Association funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was YMCA Camp Independence ($14K).
Grant Size Distribution
3 grants across all recorded years
The most common grant size was under $50K: 3 grants of 3 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2024, annual grant giving ranged from $14K (2023) to $15K (2022). In 2024 it made 1 grant totaling $14K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| YMCA Camp Independence Ingleside, IL | Camp scholarships | $14,479 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $348,197 | $268,168 | $308,580 | $14,479 | 1 | $14,003 |
| 2023 | $385,729 | $268,679 | $294,975 | $14,141 | 1 | $18,019 |
| 2022 | $400,544 | $282,397 | $255,260 | $14,950 | 1 | $8,889 |
| 2021 | $384,566 | $265,951 | $247,367 | — | — | $7,962 |
| 2020 | $382,703 | $231,816 | $264,018 | — | — | $7,863 |
| 2019 | $391,925 | $295,665 | $264,414 | — | — | $6,549 |
About Illinois Spina Bifida Association
Based on IRS filings
Illinois Spina Bifida Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Chicago, IL. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $348K in total assets. In 2024, it awarded 1 grant totaling $14K. Net investment income was $14K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Illinois Spina Bifida Association is led by Matt Larsen, Executive Director on every filing since 2019; 1 of 12 officers listed in 2024 is compensated.
Officers on the 2024 filing
Matt Larsen
Executive Director
On filings since 2019
40 hrs/week
$79K (2019) → $81K (2024)
Rebecca Rupnick
Chairperson
Board Chair → Chairperson, 2023
On filings since 2022
8 hrs/week
No compensation reported
Paul Gerber
Director
Director → Secretary, 2022
Secretary → Director, 2024
On filings since 2019
2 hrs/week
No compensation reported
Kevin Dam
Director
Director → Vice Chair, 2022
Vice Chair → Director, 2024
On filings since 2020
2 hrs/week
No compensation reported
Erika Holliday
Director
Director - New → Director, 2022
On filings since 2021
2 hrs/week
No compensation reported
Chris Byrne
Director
On filings since 2023
2 hrs/week
No compensation reported
Derek Snyder
Director
On filings since 2023
2 hrs/week
No compensation reported
Jessica Barclay
Director
On filings since 2023
2 hrs/week
No compensation reported
Mary Jo Grill
Director
On filings since 2023
2 hrs/week
No compensation reported
Blanca E. Jara
Vice Chair
Director-Past → Director, 2023
Director → Vice Chair, 2024
On filings since 2019
4 hrs/week
No compensation reported
James Marks
Treasurer
Director & Treasurer → Treasurer, 2022
On filings since 2019
4 hrs/week
No compensation reported
Nathan Parris
Secretary
Director → Secretary, 2024
On filings since 2022
4 hrs/week
No compensation reported
Former officers (13)
- Former: Jeremy Meinhardt (2019–2023) — Director
- Former: Patrick Flood (2020–2023) — Director
- Former: Meredith Barnes (2021–2023) — Director
- Former: Chapin Scheumann (2023) — Director
- Former: Elliott L. Quigley (2019–2022) — Director
- Former: Michael P. O'Keefe (2019–2022) — Director
- Former: Erik Munkvold (2020–2022) — Director
- Former: Adam Zellner (2019–2021) — Director
- Former: Becky Rupnick (2019–2021) — Director & Secretary
- Former: Craig Donnelly (2019–2021) — Director
- Former: Churphena Reid (2019–2020) — Director-Past
- Former: Julian Lin (2019–2020) — Director-Past
- Former: Robert Weidenaar (2019–2020) — Director-Past
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $81K, to Matt Larsen (Executive Director).
Frequently asked questions about Illinois Spina Bifida Association
How much does Illinois Spina Bifida Association give each year?
Illinois Spina Bifida Association gave $14K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $14K across 1 grant.
How large is Illinois Spina Bifida Association?
Illinois Spina Bifida Association reported $348K in total assets on its 2024 IRS Form 990. Its revenue that year was $268K.
What is Illinois Spina Bifida Association?
Illinois Spina Bifida Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Chicago, IL. It holds $348K in total assets as of 2024.
Where does Illinois Spina Bifida Association operate?
Illinois Spina Bifida Association has awarded grants in Illinois.
What is Illinois Spina Bifida Association's EIN?
Illinois Spina Bifida Association's EIN (Employer Identification Number) is 23-7062317. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS June 22, 2020)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 20, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 17, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 14, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Illinois Spina Bifida Association funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Illinois Spina Bifida Association's focus areas in our free grants database
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Illinois Spina Bifida Association down — hundreds of funders to go?