THE HERMANSKY-PUDLAK SYNDROME (HPS) NETWORK'S MISSION IS TO PROVIDE ADVOCACY, FELLOWSHIP, EDUCATION AND HOPE TO INDIVIDUALS AND FAMILIES AFFECTED BY HPS. WE FUND AND FACILITATE RESEARCH. WE DEVELOPE AND PRODUCE MATERIAL AND RESOURSES FOR HEALTHCARE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$283K
-32.4% YoY
Revenue
$323K
+10.3% YoY
Net Investment Income
$156
+2.0% YoY
Expenses
$459K
+8.2% YoY
About Hermansky Pudlak Syndrome Network
Based on IRS filings
Hermansky Pudlak Syndrome Network is a nonprofit organization focused on Human Services, based in OYSTER BAY COVE, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $283K in total assets. Net investment income was $156.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $283,257 | $419,221 | $559,842 |
| Revenue | $323,223 | $293,005 | $425,722 |
| Expenses | $459,209 | $424,551 | $526,660 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $156 | $153 | $163 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| DONNA APPELL | PRESIDENT | 25 | $19,640 |
| RICHARD APPELL | TREASURER | — | — |
| HEATHER KIRKWOOD | VP/SEC | — | — |
Subject Areas
Focus areas based on grantmaking activity
Related Funders
Similar funders by location and focus area
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Hindy's Foundation
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$225K
Jeanne & Thomas Hardy Family Foundation
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Assets
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$3K
Ramsleg Foundation
BRIGHTWATERS, NY
Assets
$543
Grants
1
Total Given
$500
Druckenmiller Foundation
NEW YORK, NY
Assets
$1.8B
Grants
58
Total Given
$135.7M
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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