Hermansky Pudlak Syndrome Network
The hermansky-pudlak syndrome (HPS) network's mission is to provide advocacy, fellowship, education and hope to individuals and families affected by HPS. We fund and facilitate research. We develope and produce material and resourses for healthcare.
Hermansky Pudlak Syndrome Network at a glance
- Total assets
- $270,081
- -4.7% vs 2024
- Revenue (2025)
- $425,468
- +31.6% vs 2024
- Net investment income (2025)
- $93
- -40.4% vs 2024
- Expenses (2025)
- $447,480
- -2.6% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Hermansky Pudlak Syndrome Network funds
How this funder distributes its grants
Grant Size Distribution
2 grants across all recorded years
The most common grant size was under $50K: 1 grant of 2 (50%).
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2021, annual grant giving ranged from $20K (2020) to $141K (2021). In 2021 it made 2 grants totaling $141K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| National Institute of Health Bethesda, MD | — | $120,000 |
| American Thoracic Society New York, NY | Reasearch | $21,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $270,081 | $425,468 | $447,480 | — | — | $93 |
| 2024 | $283,257 | $323,223 | $459,209 | — | — | $156 |
| 2023 | $419,221 | $293,005 | $424,551 | — | — | $153 |
| 2022 | $559,842 | $425,722 | $526,660 | — | — | $163 |
| 2021 | $648,592 | $632,452 | $385,076 | $141,000 | 2 | $193 |
| 2020 | $396,430 | $543,187 | $219,309 | $20,000 | 1 | $165 |
| 2019 | $71,538 | $383,943 | $381,896 | $40,000 | 1 | — |
About Hermansky Pudlak Syndrome Network
Based on IRS filings
Hermansky Pudlak Syndrome Network is a public charity focused on Human Services, based in Oyster Bay Cove, NY. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $270K in total assets. Net investment income was $93.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Hermansky Pudlak Syndrome Network is led by Donna Appell, President on every filing since 2019; 1 of 5 officers listed in 2025 is compensated.
Officers on the 2025 filing
Donna Appell
President
On filings since 2019
25 hrs/week
$16K (2023) → $22K (2025)
Heather Kirkwood
Vice President & Secretary
On filings since 2019
No compensation reported
Richard Appell
Treasurer
On filings since 2019
No compensation reported
Becky Nieves
Board Member
New on the 2025 filing
No compensation reported
Nancy Lee
Board Member
New on the 2025 filing
No compensation reported
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $22K, to Donna Appell (President).
Frequently asked questions about Hermansky Pudlak Syndrome Network
How large is Hermansky Pudlak Syndrome Network?
Hermansky Pudlak Syndrome Network reported $270K in total assets on its 2025 IRS Form 990. Its revenue that year was $425K.
What is Hermansky Pudlak Syndrome Network?
Hermansky Pudlak Syndrome Network is a public charity focused on Human Services, based in Oyster Bay Cove, NY. It holds $270K in total assets as of 2025.
Where does Hermansky Pudlak Syndrome Network operate?
Hermansky Pudlak Syndrome Network has awarded grants in Maryland, New York.
What is Hermansky Pudlak Syndrome Network's EIN?
Hermansky Pudlak Syndrome Network's EIN (Employer Identification Number) is 11-3283268. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS May 15, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS June 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS March 5, 2022)
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