Hemophilia Association of New York Inc
To provide information, advocacy, assistance and scholarships for those with bleeding disorders, as well as provide research funding for better therapies and potential cures for bleeding disorders.
Hemophilia Association of New York Inc at a glance
In short: Hemophilia Association of New York Inc gave $63K across 1 grant in 2025 (avg $63K), mostly in Massachusetts. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $62,668
- -63.2% vs 2024
- Grants made (2025)
- 1
- -66.7% vs 2024
- Average grant
- $62,668
- +10.4% vs 2024
- Median grant
- $62,668
- Total assets
- $4,358,738
- -5.2% vs 2024
- Primary geography
- Massachusetts (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Hemophilia Association of New York Inc
Open Grants
1 open opportunity from Hemophilia Association of New York Inc
Who Hemophilia Association of New York Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Matthew L Greer Children's Fund ($63K).
Grant Size Distribution
8 grants across all recorded years
The most common grant size was under $50K: 3 grants of 8 (38%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
Cities
How Hemophilia Association of New York Inc gives
- Giving fell 51% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $6K (2020) to $170K (2024). In 2025 it made 1 grant totaling $63K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Matthew L Greer Children's Fund Chestnut HIL, MA | To provide medical care and academic support to children impacted by critical illness | $62,668 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $4,358,738 | $441,005 | $960,241 | $62,668 | 1 | $46,831 |
| 2024 | $4,596,219 | $2,305,589 | $1,121,457 | $170,305 | 3 | $60,894 |
| 2023 | $3,242,886 | $572,223 | $1,013,221 | $147,851 | 2 | $54,143 |
| 2022 | $3,657,906 | $563,478 | $1,016,115 | $127,416 | 1 | $-89,315 |
| 2021 | $4,332,778 | $326,271 | $774,702 | $8,742 | 1 | $9,571 |
| 2020 | $4,331,795 | $2,353,082 | $794,961 | $5,500 | 1 | $87,749 |
| 2019 | $2,847,140 | $435,037 | $908,235 | $96,290 | 1 | $92,955 |
About Hemophilia Association of New York Inc
Based on IRS filings
Hemophilia Association of New York Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in New York, NY. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $4.4M in total assets. In 2025, it awarded 1 grant totaling $63K. Net investment income was $47K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Hemophilia Association of New York Inc is led by Linda E. Mugford, Executive Director- since 2025 (on filings since 2019); 2 of 17 officers listed in 2025 are compensated.
Officers on the 2025 filing
Linda E. Mugford
Executive Director-
Executive Director → Executive Director-, 2025
On filings since 2019
24 hrs/week
$136K (2019) → $168K (2025)
Elizabeth Cedeno
Executive Director-Beginning
New on the 2025 filing
40 hrs/week
$89K (2025)
Mariam Voutsis
Chairman of the Board
President → Chairman of the Board, 2024
On filings since 2019
2 hrs/week
No compensation reported
Aureo C. Pinto Jr.
Trustee
On filings since 2019
2 hrs/week
No compensation reported
Brian Egan
Trustee
On filings since 2019
2 hrs/week
No compensation reported
Edward G. Rogoff PhD
Trustee
Chairperson → Board Chairperson, 2023
Board Chairperson → Trustee, 2024
On filings since 2019
2 hrs/week
No compensation reported
Eileen Margolies
Trustee
Vice President → Trustee, 2024
On filings since 2019
2 hrs/week
No compensation reported
Jeffrey Zacharia
Trustee
Vice President → Trustee, 2024
On filings since 2019
2 hrs/week
No compensation reported
Maggi Pack
Trustee
On filings since 2019
2 hrs/week
No compensation reported
Mark K. Svenningson
Trustee
Treasurer → Trustee, 2024
On filings since 2019
2 hrs/week
No compensation reported
Mark Kovarik
Trustee
On filings since 2019
2 hrs/week
No compensation reported
Robert M. Greer
Trustee
On filings since 2019
2 hrs/week
No compensation reported
Theodore Bunin
Trustee
On filings since 2019
2 hrs/week
No compensation reported
Joana Baquero
Trustee
On filings since 2020
2 hrs/week
No compensation reported
Joseph Mugford
Trustee
On filings since 2020
2 hrs/week
No compensation reported
Christopher N. Toussaint
Trustee
On filings since 2023
2 hrs/week
No compensation reported
Alejandro Baquero
Trustee
New on the 2025 filing
2 hrs/week
No compensation reported
Former officers (3)
- Former: Johanna Baquero (2024) — Trustee
- Former: Christopher E. Walsh MD (2019–2020) — Trustee
- Former: Robert Barish PhD (2019–2020) — Vice President
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $168K, to Linda E Mugford (Executive Director-Thru 12/31/24). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Hemophilia Association of New York Inc
How much does Hemophilia Association of New York Inc give each year?
Hemophilia Association of New York Inc gave $63K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $170K across 3 grants.
How large is Hemophilia Association of New York Inc?
Hemophilia Association of New York Inc reported $4.4M in total assets on its 2025 IRS Form 990. Its revenue that year was $441K.
What is Hemophilia Association of New York Inc?
Hemophilia Association of New York Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in New York, NY. It holds $4.4M in total assets as of 2025.
Where does Hemophilia Association of New York Inc operate?
Hemophilia Association of New York Inc has awarded grants in Massachusetts, New Jersey, New York.
What is Hemophilia Association of New York Inc's EIN?
Hemophilia Association of New York Inc's EIN (Employer Identification Number) is 13-5650955. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS May 27, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS May 4, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 12, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS April 28, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 8, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS January 29, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS November 10, 2025)
- IRS filings on file for fiscal years 2020–2025
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