Genetic Counseling Foundation
To serve as a catalyst for the integration of genomic information and genetic counseling services into healthcare through philanthropic support of education, research, and public policy.
Genetic Counseling Foundation at a glance
In short: Genetic Counseling Foundation gave $90K across 1 grant in 2024 (avg $90K), mostly in Maryland. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $90,000
- +0.5% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $90,000
- +0.5% vs 2023
- Median grant
- $90,000
- Total assets
- $1,864,906
- +5.2% vs 2023
- Primary geography
- Maryland (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Genetic Counseling Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Johns Hopkins University ($90K).
Grant Size Distribution
7 grants across all recorded years
The most common grant size was in the $50–100K range: 4 grants of 7 (57%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
Cities
How Genetic Counseling Foundation gives
- Giving fell 28% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $70K (2020) to $125K (2021). In 2024 it made 1 grant totaling $90K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Johns Hopkins University Baltimore, MD | Jemf Awards | $90,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $1,864,906 | $155,629 | $103,000 | $90,000 | 1 | $111,922 |
| 2023 | $1,772,365 | $126,257 | $102,449 | $89,594 | 1 | $58,768 |
| 2022 | $1,601,282 | $81,030 | $105,395 | $89,268 | 1 | $66,230 |
| 2021 | $2,104,952 | $168,217 | $142,956 | $125,000 | 2 | $158,175 |
| 2020 | $2,041,486 | $64,992 | $81,930 | $70,000 | 2 | $50,746 |
About Genetic Counseling Foundation
Based on IRS filings
Genetic Counseling Foundation is a public charity focused on Health, based in Chicago, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.9M in total assets. In 2024, it awarded 1 grant totaling $90K. Net investment income was $112K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Genetic Counseling Foundation is led by Colleen Campbell, President since 2024 (on filings since 2020); none of the 13 officers listed in 2024 report compensation.
Officers on the 2024 filing
Colleen Campbell
President
Secretary & Treasurer → President-Elect, 2023
President-Elect → President, 2024
On filings since 2020
0.3 hrs/week
No compensation reported
Meghan Carey
Executive Director
On filings since 2020
1 hr/week
No compensation reported
Deepti Babu
Director
President-Elect → President, 2023
President → Director, 2024
On filings since 2022
0.3 hrs/week
No compensation reported
Austin Bland
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Carrie Haverty
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Cynthia James
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Philip Connors
Director
On filings since 2023
0.3 hrs/week
No compensation reported
Christopher Tan
Director
New on the 2024 filing
0.3 hrs/week
No compensation reported
Sheetal Parmar
Director
New on the 2024 filing
0.3 hrs/week
No compensation reported
Yue Guan
Director
New on the 2024 filing
0.3 hrs/week
No compensation reported
Sara Pirzadeh-Miller
President-Elect
Director → President-Elect, 2024
On filings since 2020
0.3 hrs/week
No compensation reported
Carla McGruder
Secretary & Treasurer
Secretary & Treasurer-Elect → Secretary & Treasurer, 2024
On filings since 2023
0.3 hrs/week
No compensation reported
Salma Nassef
Secretary & Treasurer-Elect
New on the 2024 filing
0.3 hrs/week
No compensation reported
Former officers (19)
- Former: Heather Zierhut (2020–2023) — Immediate Past President
- Former: Barry Tong (2022–2023) — Secretary & Treasurer
- Former: Leila Jamal (2022–2023) — Director
- Former: Patrick Wilson (2022–2023) — Director
- Former: Sandy Prucka (2022–2023) — Director
- Former: Sara Riordan (2020–2022) — Immediate Past President
- Former: Aishwarya Arjunan (2021–2022) — Director
- Former: Altovise Ewing (2021–2022) — Director
- Former: Carolyn Applegate (2021–2022) — Director
- Former: Heather Hampel (2021–2022) — Secretary & Treasurer
- Former: Jodie Vento (2021–2022) — Director
- Former: Gillian Hooker (2020–2021) — Immediate Past President
- Former: Michelle Fox (2020–2021) — Director
- Former: Shivani Nazareth (2020–2021) — Director
- Former: Amy Sturm (2020) — Immediate Past President
- Former: Blair Stevens (2020) — Director
- Former: Colleen Schmitt (2020) — Director
- Former: Heather Lynn Shappell (2020) — Director
- Former: Scott Weissman (2020) — Secretary & Treasurer
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Genetic Counseling Foundation
How much does Genetic Counseling Foundation give each year?
Genetic Counseling Foundation gave $90K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $90K across 1 grant.
How large is Genetic Counseling Foundation?
Genetic Counseling Foundation reported $1.9M in total assets on its 2024 IRS Form 990. Its revenue that year was $156K.
What is Genetic Counseling Foundation?
Genetic Counseling Foundation is a public charity focused on Health, based in Chicago, IL. It holds $1.9M in total assets as of 2024.
Where does Genetic Counseling Foundation operate?
Genetic Counseling Foundation has awarded grants in California, District of Columbia, Maryland, Minnesota, Pennsylvania, Texas.
What is Genetic Counseling Foundation's EIN?
Genetic Counseling Foundation's EIN (Employer Identification Number) is 20-4468704. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS September 8, 2021)
- Added Form 990 for fiscal year 2021 (received by the IRS November 3, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 1, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 28, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 30, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Genetic Counseling Foundation funds
Health Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Genetic Counseling Foundation's focus areas in our free grants database
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Genetic Counseling Foundation down — hundreds of funders to go?