Foundation for Children with Neuroimmune
NEUROIMMUNE FOUNDATION IS A NON-PROFIT ORGANIZATION DEDICATED TO DRAMATICALLY ACCELERATING PHYSICIAN EDUCATION OF PANS, PANDAS, AND ENCEPHALITIS; SIGNIFICANTLY IMPROVING OUTCOMES FOR INDIVIDUALS IMPACTED BY THESE DISORDERS; PROVIDING MEANINGFUL SUPPORT TO FAMILIES DURING THEIR DARKEST DAYS; AND CATALYZING RESEARCH AT AN UNPRECEDENTED PACE
Key facts about Foundation for Children with Neuroimmune
- EIN
- 82-3128162
- Latest 990 filing
- Form 990-PF, 2025
- Total assets
- $1,028,283
Data from IRS Form 990-PF, 2025; updated September 2026.
How Foundation for Children with Neuroimmune gives
- Giving fell 90% from 2021 to 2024. Method
From the foundation's IRS Form 990-PF filings. Methodology.
Next steps with Foundation for Children with Neuroimmune
- How to evaluate Foundation for Children with Neuroimmune as a funder
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Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$1.0M
+21.6% YoY
Revenue
$482K
-17.9% YoY
Net Investment Income
$29K
-15.6% YoY
Expenses
$315K
-13.8% YoY
About Foundation for Children with Neuroimmune
Based on IRS filings
Foundation for Children with Neuroimmune is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in St Augustine, FL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $1.0M in total assets. Net investment income was $29K.
Focus Areas
Ready to take the next step with Foundation for Children with Neuroimmune?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,028,283 | $845,339 | $704,535 |
| Revenue | $482,434 | $587,533 | $849,087 |
| Expenses | $315,390 | $366,039 | $794,367 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $29,192 | $34,580 | $12,929 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2019–2025
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
5 grants across all recorded years
Open Grants
3 open opportunities from Foundation for Children with Neuroimmune
Clinician Membership – Free CME (Select States)
Foundation for Children with Neuroimmune
Amount
Varies
Deadline
Rolling / Open
North Carolina Physician 6-Month CME Program
Foundation for Children with Neuroimmune
Amount
Varies
Deadline
Rolling / Open
PANS/Inflammatory Brain Disorders Capacity Building Grant
Foundation for Children with Neuroimmune
Amount
Up to $250,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Johanna Conkey | President | 40 | $116,667 |
| Dr Pierre Kory | Treasurer | 1 | — |
| Travis Conkey | Secretary | 1 | — |
| Johnna Workman | Officer | 1 | — |
| Leslie Phillips | Vice President | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Foundation for Children with Neuroimmune?
Foundation for Children with Neuroimmune is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in St Augustine, FL. It holds $1.0M in total assets as of 2025.
How large is Foundation for Children with Neuroimmune?
As of 2025, Foundation for Children with Neuroimmune holds $1.0M in total assets with $482K in annual revenue.
Where does Foundation for Children with Neuroimmune operate?
Foundation for Children with Neuroimmune has awarded grants in California, New Hampshire.
What is Foundation for Children with Neuroimmune's EIN?
Foundation for Children with Neuroimmune's EIN (Employer Identification Number) is 82-3128162. IRS Form 990 filing data is available on this page for 2019–2025.
Explore Open Grants
Browse active grant opportunities in Foundation for Children with Neuroimmune's focus areas in our free grants database
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.