Foundation for Children with Neuroimmune
Neuroimmune foundation is a non-profit organization dedicated to dramatically accelerating physician education of pans, pandas, and encephalitis; significantly improving outcomes for individuals impacted by these disorders; providing meaningful support to families during their darkest days; and catalyzing research at an unprecedented pace
Foundation for Children with Neuroimmune at a glance
- Total assets
- $1,028,283
- +21.6% vs 2024
- Revenue (2025)
- $482,434
- -17.9% vs 2024
- Net investment income (2025)
- $29,192
- -15.6% vs 2024
- Expenses (2025)
- $315,390
- -13.8% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Foundation for Children with Neuroimmune
Open Grants
3 open opportunities from Foundation for Children with Neuroimmune
Clinician Membership – Free CME (Select States)
Foundation for Children with Neuroimmune
Amount
Varies
Deadline
Deadline not published
North Carolina Physician 6-Month CME Program
Foundation for Children with Neuroimmune
Amount
Varies
Deadline
Deadline not published
PANS/Inflammatory Brain Disorders Capacity Building Grant
Foundation for Children with Neuroimmune
Amount
Up to $250,000
Deadline
Deadline not published
Who Foundation for Children with Neuroimmune funds
How this funder distributes its grants
Grant Size Distribution
5 grants across all recorded years
The most common grant size was in the $100–250K range: 3 grants of 5 (60%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
How Foundation for Children with Neuroimmune gives
- Giving fell 90% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2024, annual grant giving ranged from $10K (2024) to $147K (2023). In 2024 it made 1 grant totaling $10K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Alex Manfull Fund New Castle, NH | To fund a biostatistician at harvard university to complete work on arfid related to pans. | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,028,283 | $482,434 | $315,390 | — | — | $29,192 |
| 2024 | $845,339 | $587,533 | $366,039 | $10,000 | 1 | $34,580 |
| 2023 | $704,535 | $849,087 | $794,367 | $147,423 | 2 | $12,929 |
| 2022 | $1,132,170 | $730,417 | $566,880 | $100,000 | 1 | $153 |
| 2021 | $398,931 | $438,321 | $330,135 | $100,000 | 1 | — |
| 2020 | $288,083 | $262,710 | $152,919 | — | — | — |
| 2019 | $180,278 | $213,953 | $42,072 | — | — | — |
About Foundation for Children with Neuroimmune
Based on IRS filings
Foundation for Children with Neuroimmune is a public charity focused on Diseases, Disorders & Medical Disciplines, based in St Augustine, FL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $1.0M in total assets. Net investment income was $29K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Foundation for Children with Neuroimmune is led by Johanna Conkey, President on every filing since 2019; 1 of 5 officers listed in 2025 is compensated.
Officers on the 2025 filing
Johanna Conkey
President
On filings since 2019
40 hrs/week
$38K (2020) → $117K (2025)
Pierre Kory
Treasurer
On filings since 2019
1 hr/week
No compensation reported
Travis Conkey
Secretary
On filings since 2019
1 hr/week
No compensation reported
Leslie Phillips
Vice President
Director → Vice President, 2023
On filings since 2021
1 hr/week
No compensation reported
Johnna Workman
Officer
On filings since 2024
1 hr/week
No compensation reported
Former officers (3)
- Former: Amy Malik (2019–2023) — Director
- Former: Anju Singh (2021–2023) — Director
- Former: Jessica Gavin (2020–2021) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $117K, to Johanna Conkey (President).
Frequently asked questions about Foundation for Children with Neuroimmune
How large is Foundation for Children with Neuroimmune?
Foundation for Children with Neuroimmune reported $1.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $482K.
What is Foundation for Children with Neuroimmune?
Foundation for Children with Neuroimmune is a public charity focused on Diseases, Disorders & Medical Disciplines, based in St Augustine, FL. It holds $1.0M in total assets as of 2025.
Where does Foundation for Children with Neuroimmune operate?
Foundation for Children with Neuroimmune has awarded grants in California, New Hampshire.
What is Foundation for Children with Neuroimmune's EIN?
Foundation for Children with Neuroimmune's EIN (Employer Identification Number) is 82-3128162. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2019–2025
Live grants for the work Foundation for Children with Neuroimmune funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Foundation for Children with Neuroimmune's focus areas in our free grants database
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Foundation for Children with Neuroimmune down — hundreds of funders to go?