TO FUND PIONEERING RESEARCH AND COMPASSIONATELY SUPPORT THE BATTEN COMMUNITY. THE ORGANIZATION WORKS TIRELESSLY TO GIVE CHILDREN WITH BATTEN DISEASE THE BEST POSSIBLE LIFE, TO SPREAD AWARENESS OF THE URGENCY TO FUND NEW TREATMENTS, AND TO HELP ALL FAMILIES AFFECTED BY BATTEN DISEASE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$383K
-80.8% YoY
Annual Giving
$235K
-65.1% YoY
Grant Count
2
-66.7% YoY
Avg Grant Size
$117K
+4.6% YoY
About Fore Batten Foundation
Based on IRS filings
Fore Batten Foundation is a nonprofit organization focused on Medical Research, based in CHAPEL HILL, NC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $383K in total assets. In 2024, it awarded 2 grants totaling $235K. Net investment income was $11K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $383,105 | $1,997,270 | $2,172,966 |
| Revenue | $1,072,285 | $1,550,288 | $1,452,603 |
| Expenses | $2,686,450 | $1,725,984 | $1,160,011 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $10,598 | $48,821 | $2,876 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
26 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Sanford Research ($225,666), Bdsra ($8,913).
| Recipient | Purpose | Amount |
|---|---|---|
| SANFORD RESEARCH SIOUX FALLS, SD | TO SUPPORT AND PROMOTE THE PURSUIT OF THE HIGHEST CALIBER, PUBLISHABLE RESEARCH (1) RELATING TO THE DEVELOPMENT/DELIVERY OF QUALITY MEDICAL AND HEALTH CARE SERVICES, (2) ADVANCING MEDICAL OR SCIENTIFIC KNOWLEDGE AND SKILLS, AND/OR (3) BENEFITING THE EDUCATION OF HEALTH SCIENCE STUDENTS, RESIDENTS, HEALTH PROFESSIONALS AND THE GENERAL PUBLIC | $225,666 |
| BDSRA COLUMBUS, OH | TO FUND RESEARCH FOR A CURE FOR AND TO PROMOTE AWARENESS OF BATTEN DISEASE. | $8,913 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| DAVID KAHN | DIRECTOR | 4 | — |
| KAREN KAHN | PRESIDENT/CEO | 10 | — |
| KATHRYN NIEDERER | DIRECTOR | 2 | — |
| JENNIFER MCGINN | DIRECTOR | 2 | — |
| MARLENA KAHN | SECRETARY | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Fore Batten Foundation?
Fore Batten Foundation is a nonprofit organization focused on Medical Research, based in CHAPEL HILL, NC. It holds $383K in total assets as of 2024.
How large is Fore Batten Foundation?
As of 2024, Fore Batten Foundation holds $383K in total assets with $1.1M in annual revenue. It awarded 2 grants totaling $235K in 2024.
Where does Fore Batten Foundation operate?
Fore Batten Foundation has awarded grants in Arizona, Colorado, Illinois, Missouri, North Carolina, New Hampshire, New York, Ohio, South Dakota.
What size grants does Fore Batten Foundation award?
In 2024, Fore Batten Foundation awarded 2 grants totaling $235K — an average of about $117K per grant, based on its IRS Form 990 filings.
What is Fore Batten Foundation's EIN?
Fore Batten Foundation's EIN (Employer Identification Number) is 82-2661656. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Fore Batten Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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