Fore Batten Foundation
To fund pioneering research and compassionately support the batten community. The organization works tirelessly to give children with batten disease the best possible life, to spread awareness of the urgency to fund new treatments, and to help all families affected by batten disease.
Fore Batten Foundation at a glance
In short: Fore Batten Foundation gave $235K across 2 grants in 2024 (avg $117K), mostly in South Dakota. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $234,579
- -65.1% vs 2023
- Grants made (2024)
- 2
- -66.7% vs 2023
- Average grant
- $117,290
- +4.6% vs 2023
- Median grant
- $117,290
- Total assets
- $383,105
- -80.8% vs 2023
- Primary geography
- South Dakota (96% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Fore Batten Foundation funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was Sanford Research ($226K). Together the top 2 received $235K.
Grant Size Distribution
26 grants across all recorded years
The most common grant size was in the $50–100K range: 9 grants of 26 (35%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
Cities
How Fore Batten Foundation gives
- Giving fell 71% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $235K (2024) to $991K (2022). In 2024 it made 2 grants totaling $235K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Sanford Research Sioux Falls, SD | To support and promote the pursuit of the highest caliber, publishable research (1) relating to the development/delivery of quality medical and health care services, (2) advancing medical or scientific knowledge and skills, and/or (3) benefiting the education of health science students, residents, health professionals and the general public | $225,666 |
| BDSRA Columbus, OH | To fund research for a cure for and to promote awareness of batten disease. | $8,913 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $383,105 | $1,072,285 | $2,686,450 | $234,579 | 2 | $10,598 |
| 2023 | $1,997,270 | $1,550,288 | $1,725,984 | $673,091 | 6 | $48,821 |
| 2022 | $2,172,966 | $1,452,603 | $1,160,011 | $991,164 | 6 | $2,876 |
| 2021 | $1,880,374 | $1,570,342 | $961,714 | $811,355 | 8 | $177 |
| 2020 | $1,271,746 | $940,947 | $601,648 | $451,820 | 4 | $11,421 |
About Fore Batten Foundation
Based on IRS filings
Fore Batten Foundation is a public charity focused on Medical Research, based in Chapel Hill, NC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $383K in total assets. In 2024, it awarded 2 grants totaling $235K. Net investment income was $11K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Fore Batten Foundation is led by Karen Kahn, President & CEO on every filing since 2020; none of the 5 officers listed in 2024 report compensation.
Officers on the 2024 filing
Karen Kahn
President & CEO
On filings since 2020
10 hrs/week
No compensation reported
David Kahn
Director
On filings since 2020
4 hrs/week
No compensation reported
Jennifer McGinn
Director
On filings since 2020
2 hrs/week
No compensation reported
Kathryn Niederer
Director
On filings since 2020
2 hrs/week
No compensation reported
Marlena Kahn
Secretary
On filings since 2020
1 hr/week
No compensation reported
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Fore Batten Foundation
How much does Fore Batten Foundation give each year?
Fore Batten Foundation gave $235K across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $673K across 6 grants.
How large is Fore Batten Foundation?
Fore Batten Foundation reported $383K in total assets on its 2024 IRS Form 990. Its revenue that year was $1.1M.
What is Fore Batten Foundation?
Fore Batten Foundation is a public charity focused on Medical Research, based in Chapel Hill, NC. It holds $383K in total assets as of 2024.
Where does Fore Batten Foundation operate?
Fore Batten Foundation has awarded grants in Arizona, Colorado, Illinois, Missouri, North Carolina, New Hampshire, New York, Ohio, South Dakota.
What is Fore Batten Foundation's EIN?
Fore Batten Foundation's EIN (Employer Identification Number) is 82-2661656. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 8, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS August 12, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 23, 2025)
- IRS filings on file for fiscal years 2020–2024
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