Fibromuscular Dysplasia Society of
Fibromuscular Dysplasia Society of is a public charity focused on Medical Research, based in North Olmsted, OH. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $135K in total assets.
Fibromuscular Dysplasia Society of at a glance
- Total assets
- $134,555
- -2.4% vs 2024
- Revenue (2025)
- $158,513
- +9.0% vs 2024
- Expenses (2025)
- $161,812
- +5.6% vs 2024
- Latest 990 filing
- Form 990-EZ, 2025 View filing
Data from IRS Form 990-EZ, 2025; updated September 2026.
Who Fibromuscular Dysplasia Society of funds
How this funder distributes its grants
Grant Size Distribution
1 grant across all recorded years
The most common grant size was in the $50–100K range: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
How Fibromuscular Dysplasia Society of gives
- Giving grew 21% from 2019 to 2022. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2022, annual grant giving ranged from $41K (2019) to $52K (2020). In 2022 it made 1 grant totaling $50K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| MCORRP University of Michigan Ann Arbor, MI | Patient registry | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $134,555 | $158,513 | $161,812 | — | — | — |
| 2024 | $137,816 | $145,437 | $153,228 | — | — | — |
| 2023 | $145,032 | $159,378 | $187,385 | — | — | — |
| 2022 | $175,125 | $142,247 | $162,689 | $50,000 | 1 | $11 |
| 2021 | $199,366 | $202,620 | $157,746 | $50,000 | Total only | $22 |
| 2020 | $161,979 | $150,966 | $154,404 | $51,666 | 1 | $39 |
| 2019 | $154,206 | $224,913 | $173,027 | $41,250 | 1 | $171 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
Leadership & Key People
Officers and directors from IRS filings
Fibromuscular Dysplasia Society of is led by Pam Mace, Executive Director on every filing since 2023; none of the 6 officers listed in 2025 report compensation.
Officers on the 2025 filing
Pam Mace
Executive Director
On filings since 2023
60 hrs/week
No compensation reported
Kay Tanner
President
New on the 2025 filing
5 hrs/week
No compensation reported
Allison Gaines
Director
Director at Large → Director at Lar, 2023
Director at Lar → Director, 2025
On filings since 2021
2.5 hrs/week
No compensation reported
Cathlin Jamison
Director
Director at Large → Director at Lar, 2023
Director at Lar → Director, 2025
On filings since 2021
40 hrs/week
No compensation reported
Giamila Fantuzzi
Director
New on the 2025 filing
2.5 hrs/week
No compensation reported
Rosie Miklavcic
Secretary
Director at Large → Treasurer, 2021
Treasurer → Secretary, 2025
On filings since 2020
5 hrs/week
No compensation reported
Former officers (15)
- Former: Bradley Darr (2019–2024) — President
- Former: Rochelle Desrochers (2020–2024) — Director at Lar
- Former: Jazette Vicedor (2022–2024) — Director at Lar
- Former: Christi Eberhardt (2020–2023) — Director at Lar
- Former: Pamela Mace (2019–2022) — Executive Director
- Former: Lisa Foster (2019–2021) — Director at Large
- Former: Carol Rogers (2019–2020) — Vice President
- Former: Molly Clark (2019–2020) — Director at Large
- Former: Claudia Kime (2020) — Director at Large
- Former: Dawn Marisch (2020) — Director at Large
- Former: Sally Albrigo (2020) — Director at Large
- Former: Virginia Edleman (2020) — Secretary
- Former: Christi Nelson (2019) — Director at Large
- Former: Cindy Basque (2019) — Treasurer
- Former: Maureen Womack (2019) — Secretary
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Fibromuscular Dysplasia Society of
How large is Fibromuscular Dysplasia Society of?
Fibromuscular Dysplasia Society of reported $135K in total assets on its 2025 IRS Form 990-EZ. Its revenue that year was $159K.
What is Fibromuscular Dysplasia Society of?
Fibromuscular Dysplasia Society of is a public charity focused on Medical Research, based in North Olmsted, OH. It holds $135K in total assets as of 2025.
Where does Fibromuscular Dysplasia Society of operate?
Fibromuscular Dysplasia Society of has awarded grants in Michigan.
What is Fibromuscular Dysplasia Society of's EIN?
Fibromuscular Dysplasia Society of's EIN (Employer Identification Number) is 01-0771966. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS June 24, 2022)
- Updated Form 990-EZ for fiscal year 2023 (received by the IRS June 26, 2024)
- Updated Form 990-EZ for fiscal year 2024 (received by the IRS February 13, 2025)
- Updated Form 990-EZ for fiscal year 2025 (received by the IRS February 27, 2026)
- Updated Form 990 for fiscal year 2019 (received by the IRS June 3, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS October 13, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS July 25, 2023)
Live grants for the work Fibromuscular Dysplasia Society of funds
Medical Research Open opportunities, soonest deadline first.
- Dr. Richard A. Falls Virginia Lions Eye Institute Research Grant Up to $40,000 (yearly total budget) · Due October 25, 2026
- NSF Graduate Research Fellowship Program (GRFP) $32,000 annually plus $12,000 cost of education allowance · Due October 27, 2026
- Social, Political and Economic Inequality Grants Due October 28, 2026
Explore Open Grants
Browse active grant opportunities in Fibromuscular Dysplasia Society of's focus areas in our free grants database
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