Down Syndrome Connection of the Bay Area
Our mission is to empower, inspire and support people with Down Syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.
Down Syndrome Connection of the Bay Area at a glance
In short: Down Syndrome Connection of the Bay Area reported $6K in grants paid in 2025 (a total; its filing lists no individual grants). Source: 2025 IRS Form 990.
- Grants paid (2025)
- $6,000 — reported as a total on the IRS filing, without an itemized list
- +0.0% vs 2024
- Total assets
- $3,524,085
- +5.4% vs 2024
- Revenue (2025)
- $1,420,299
- +17.9% vs 2024
- Net investment income (2025)
- $110,492
- -31.5% vs 2024
- Expenses (2025)
- $1,364,535
- +15.9% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated October 2026.
Who Down Syndrome Connection of the Bay Area funds
How this funder distributes its grants
Grant Size Distribution
2 grants across all recorded years
The most common grant size was under $50K: 1 grant of 2 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2025, annual grant giving ranged from $6K (2024) to $100K (2023). In 2025 it reported $6K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| UCSF Benioff Childrens Hosp San Francisco, CA | Clinic Support | $90,000 |
| Lifehouse Petaluma, CA | Support | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $3,524,085 | $1,420,299 | $1,364,535 | $6,000 | Total only | $110,492 |
| 2024 | $3,344,574 | $1,204,470 | $1,177,133 | $6,000 | Total only | $161,185 |
| 2023 | $3,264,432 | $3,000,131 | $1,313,714 | $100,000 | 2 | $58,047 |
| 2022 | $1,062,710 | $1,267,009 | $1,267,554 | — | — | $2,491 |
| 2021 | $705,430 | $1,097,068 | $1,097,068 | — | — | $1,989 |
| 2020 | $882,654 | $1,107,161 | $1,015,856 | — | — | $156,031 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Down Syndrome Connection of the Bay Area
Based on IRS filings
Down Syndrome Connection of the Bay Area is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Danville, CA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $3.5M in total assets. In 2025, it reported $6K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $110K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Down Syndrome Connection of the Bay Area is led by Teresa Devincenzi, Executive Director on every filing since 2023; 1 of 6 officers listed in 2025 is compensated.
Officers on the 2025 filing
Teresa Devincenzi
Executive Director
On filings since 2023
40 hrs/week
$99K (2023) → $124K (2025)
Frank Benavidez
Chairman
Director → Chairman, 2025
On filings since 2023
2 hrs/week
No compensation reported
Jean Johnston
Director
Director → Vice Chair, 2024
Vice Chair → Director, 2025
On filings since 2023
2 hrs/week
No compensation reported
Steven Pugsley
Treasurer
Co Treasurer → Co-Treasurer, 2021
Co-Treasurer → Treasurer, 2023
On filings since 2020
2 hrs/week
No compensation reported
Erick Montgomery
Treasurer
Director → Treasurer, 2024
On filings since 2023
2 hrs/week
No compensation reported
Julie Sodestrom
Vice Chair & Secretary
Secretary → Vice Chair & Secretary, 2025
On filings since 2023
2 hrs/week
No compensation reported
Former officers (18)
- Former: Jonas Kriksciunus (2020–2024) — Director
- Former: Clay Mauritson (2022–2024) — Director
- Former: Mike Lin (2022–2024) — Chairman
- Former: Dana Morris (2020–2023) — Director
- Former: Dan Ensimger (2023) — Treasurer
- Former: Nancy Labelle (2023) — Executive Director
- Former: Dan Ensminger (2020–2022) — Co-Treasurer
- Former: Nathan Leiser (2020–2022) — Director
- Former: Jennifer Schmid (2021–2022) — Secretary
- Former: Kimberly Bellinger (2021–2022) — Director
- Former: Chris Riffel (2020–2021) — Director
- Former: David Keenan (2020–2021) — Director
- Former: Jessica Graham (2020–2021) — Director
- Former: Rick Vandenberg (2020–2021) — Vice Chairman
- Former: Carter Westfall (2020) — Director
- Former: Gabe Savage (2020) — Director
- Former: Martha Hogan (2020) — Director
- Former: Reema Siddiqui (2020) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $124K, to Teresa Devincenzi (Executive Dir.).
Frequently asked questions about Down Syndrome Connection of the Bay Area
How much does Down Syndrome Connection of the Bay Area give each year?
Down Syndrome Connection of the Bay Area reported $6K in grants paid in 2025 on its 2025 IRS Form 990, as a total without an itemized list of grants. In 2024 it reported $6K in grants paid.
How large is Down Syndrome Connection of the Bay Area?
Down Syndrome Connection of the Bay Area reported $3.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.4M.
What is Down Syndrome Connection of the Bay Area?
Down Syndrome Connection of the Bay Area is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Danville, CA. It holds $3.5M in total assets as of 2025.
Where does Down Syndrome Connection of the Bay Area operate?
Down Syndrome Connection of the Bay Area has awarded grants in California.
What is Down Syndrome Connection of the Bay Area's EIN?
Down Syndrome Connection of the Bay Area's EIN (Employer Identification Number) is 91-1904304. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2023 (received by the IRS September 27, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS June 3, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS May 20, 2026)
Live grants for the work Down Syndrome Connection of the Bay Area funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Down Syndrome Connection of the Bay Area's focus areas in our free grants database
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Figures come from Down Syndrome Connection of the Bay Area's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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