Down Syndrome Association of Greater Cincinnati logo

Down Syndrome Association of Greater Cincinnati

Public charity · Grantmaker Cincinnati, OH EIN: 31-1051378 Website

To empower individuals, educate families, enhance communities and together celebrate the extraordinary lives of people with down syndrome.

Down Syndrome Association of Greater Cincinnati at a glance

In short: Down Syndrome Association of Greater Cincinnati reported $5K in grants paid in 2025 (a total; its filing lists no individual grants). Source: 2025 IRS Form 990.

Grants paid (2025)
$5,000 — reported as a total on the IRS filing, without an itemized list
Total assets
$4,962,649
+13.0% vs 2024
Revenue (2025)
$1,791,033
-0.3% vs 2024
Net investment income (2025)
$141,299
+7.5% vs 2024
Expenses (2025)
$1,725,299
+4.1% vs 2024
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated October 2026.

Who Down Syndrome Association of Greater Cincinnati funds

How this funder distributes its grants

Grant Size Distribution

3 grants across all recorded years

<$50K1$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $100–250K range: 2 grants of 3 (67%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

2states

States

Cities

Cincinnati

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$50K$100K$150K0 grants2020 1 grant2021 1 grant2022 1 grant2023 0 grants2024 Total only2025

From 2021 to 2025, annual grant giving ranged from $5K (2025) to $124K (2021). In 2025 it reported $5K in grants paid, as a total without an itemized list.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Ken Anderson Alliance Cincinnati, INGeneral Support$95,367
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2025$4,962,649$1,791,033$1,725,299$5,000Total only$141,299
2024$4,391,752$1,796,776$1,658,089——$131,416
2023$4,263,540$1,883,770$1,639,454$95,3671$87,013
2022$3,929,083$2,821,991$1,498,564$110,8461$49,880
2021$2,318,538$1,930,904$1,300,326$123,8911$15,456
2020$1,684,170$1,398,587$1,130,437——$17,330

"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.

About Down Syndrome Association of Greater Cincinnati

Based on IRS filings

Down Syndrome Association of Greater Cincinnati is a public charity, based in Cincinnati, OH. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $5.0M in total assets. In 2025, it reported $5K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $141K.

Leadership & Key People

Officers and directors from IRS filings

Down Syndrome Association of Greater Cincinnati is led by Elizabeth Smith, Executive Director on every filing since 2024; 1 of 19 officers listed in 2025 is compensated.

Officers on the 2025 filing

  • Elizabeth Smith

    Executive Director

    On filings since 2024

    40 hrs/week

    $18K (2024) → $134K (2025)

  • Carrie Sheil

    President

    Director → President-Elect, 2024

    President-Elect → President, 2025

    On filings since 2021

    1 hr/week

    No compensation reported

  • Leesha Thrower

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Shawn Wilson

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Ann Beers

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Megan Burger

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Rosie Abel

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Ryan Duggan

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Caitlin Smith

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Kira Hinkle

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Ryan O'Brien

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Bill Metz

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Bridget Duggan

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Winsome Wilson

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Phillip Knollman

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Sara Williams

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Derrick Theetge

    Treasurer

    Director → Treasurer, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Evelyn Gibfried

    Secretary

    Director → Secretary, 2022

    On filings since 2021

    1 hr/week

    No compensation reported

  • Niki Krebs

    Governance

    Director → Governance, 2024

    On filings since 2023

    1 hr/week

    No compensation reported

Former officers (23)
  • Former: Anna Esbensen (2020–2024) — Director
  • Former: Erin Brown (2020–2024) — President
  • Former: Jim Hudson (2020–2024) — Executive Director
  • Former: Tim Vasconcellos (2022–2024) — Director
  • Former: Emily Pan (2023–2024) — Director
  • Former: Doug Burger (2024) — Director
  • Former: Kelsey Bertke (2024) — Director
  • Former: Kelsey Bartlett (2020–2023) — Director
  • Former: Michael Sottile (2020–2023) — Director
  • Former: Clarissa Rentz (2020–2022) — Director
  • Former: Luke Hail (2020–2022) — Treasurer
  • Former: Rebecca Scherer (2020–2022) — Director
  • Former: Calista Hargrove (2020–2021) — Director
  • Former: Kim Schmitz (2020–2021) — Secretary
  • Former: Mark Deis (2020–2021) — Director
  • Former: Rich Dineen (2020–2021) — Director
  • Former: Teresa Cracas (2020–2021) — President
  • Former: Ashley Barlow (2020) — President
  • Former: Brendan Walsh (2020) — Director
  • Former: Charlene Ware (2020) — Director
  • Former: Kasey Young (2020) — Director
  • Former: Marina Vina (2020) — Director
  • Former: Tony Thornberry (2020) — Director

Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Elizabeth Smith — Executive Director: $134KElizabeth SmithExecutive Director$134K

The highest reported compensation on the 2025 filing was $134K, to Elizabeth Smith (Executive Director).

Frequently asked questions about Down Syndrome Association of Greater Cincinnati

How much does Down Syndrome Association of Greater Cincinnati give each year?

Down Syndrome Association of Greater Cincinnati reported $5K in grants paid in 2025 on its 2025 IRS Form 990, as a total without an itemized list of grants.

How large is Down Syndrome Association of Greater Cincinnati?

Down Syndrome Association of Greater Cincinnati reported $5.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.8M.

Where does Down Syndrome Association of Greater Cincinnati operate?

Down Syndrome Association of Greater Cincinnati has awarded grants in Indiana, Ohio.

What is Down Syndrome Association of Greater Cincinnati's EIN?

Down Syndrome Association of Greater Cincinnati's EIN (Employer Identification Number) is 31-1051378. IRS Form 990 filing data is available on this page for 2020–2025.

Data last updated October 2026. Sourced from IRS Form 990 filings.

Data update history

(5)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2021 (received by the IRS November 14, 2022)
  2. Updated Form 990 for fiscal year 2022 (received by the IRS November 10, 2023)
  3. Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
  4. Added Form 990 for fiscal year 2025 (received by the IRS August 26, 2026)
  5. IRS filings on file for fiscal years 2020–2024

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from Down Syndrome Association of Greater Cincinnati's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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