CURE LGMD2i FOUNDATION
Fund research for cure of limb girdle muscular dystrophy
CURE LGMD2i FOUNDATION at a glance
In short: CURE LGMD2i FOUNDATION gave $55K across 4 grants in 2024 (avg $14K), top state Massachusetts. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $55,000
- +120.0% vs 2023
- Grants made (2024)
- 4
- +100.0% vs 2023
- Average grant
- $13,750
- +10.0% vs 2023
- Median grant
- $12,500
- Total assets
- $360,790
- -34.8% vs 2023
- Primary geography
- Massachusetts (42% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who CURE LGMD2i FOUNDATION funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
The largest 2024 recipient was Umass Chan Medical School ($23K). Together the top 4 received $55K.
Grant Size Distribution
10 grants across all recorded years
The most common grant size was under $50K: 8 grants of 10 (80%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 4 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2024, annual grant giving ranged from $25K (2023) to $220K (2022). In 2024 it made 4 grants totaling $55K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Umass Chan Medical School Worcester, MA | LGMD2I Therapeutics for FKRP Gene Correction via Prime | $23,000 |
| The Speak Foundation Norwalk, CT | 2025 International LGMD Conference | $15,000 |
| University of Iowa Iowa City, IA | Dystroglycanopathy Patient and Family Conference | $10,000 |
| LGMD Awareness Foundation Twin Lakes, WI | 10TH Annual LGMD Awareness Day Sponsorship | $7,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $360,790 | $222,772 | $415,545 | $55,000 | 4 | $14,028 |
| 2023 | $553,188 | $235,256 | $106,164 | $25,000 | 2 | $1,989 |
| 2022 | $421,482 | $208,047 | $257,714 | $220,000 | 4 | $93 |
| 2021 | $471,149 | $185,046 | $33,022 | — | — | — |
| 2020 | $319,125 | $121,000 | $67,829 | — | — | — |
About CURE LGMD2i FOUNDATION
Based on IRS filings
CURE LGMD2i FOUNDATION is a public charity focused on Human Services, based in Columbia, PA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $361K in total assets. In 2024, it awarded 4 grants totaling $55K. Net investment income was $14K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
CURE LGMD2i FOUNDATION is led by Kelly Brazzo, President & CEO on every filing since 2020; 1 of 6 officers listed in 2024 is compensated.
Officers on the 2024 filing
Kelly Brazzo
President & CEO
On filings since 2020
5 hrs/week
$45K (2024)
Jean Pierre Laurent
Scientific Director
New on the 2024 filing
1 hr/week
No compensation reported
John Spencer
Creative Director & Executive Board Member
New on the 2024 filing
1 hr/week
No compensation reported
Kaitlyn Neroladakis
Communications Director & Executive Board Member
New on the 2024 filing
1 hr/week
No compensation reported
Kristen Olsen
Secretary & Treasurer
Secretary → Secretary & Treasurer, 2024
On filings since 2020
1 hr/week
No compensation reported
Dan Pope
Vice President
New on the 2024 filing
5 hrs/week
No compensation reported
Former officers (3)
- Former: Herb Stevenson (2020–2023) — Medical Director
- Former: Kate Zaccariello (2020–2023) — Treasurer
- Former: Keith Brazzo (2020–2023) — Vice President
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $45K, to Kelly Brazzo (President/CEO).
Frequently asked questions about CURE LGMD2i FOUNDATION
How much does CURE LGMD2i FOUNDATION give each year?
CURE LGMD2i FOUNDATION gave $55K across 4 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $25K across 2 grants.
What is CURE LGMD2i FOUNDATION's typical grant size?
CURE LGMD2i FOUNDATION's median grant in 2024 was $12,500, and its average grant was $13,750, across 4 grants on its 2024 IRS Form 990.
Where does CURE LGMD2i FOUNDATION give grants?
CURE LGMD2i FOUNDATION's top state is Massachusetts, with 42% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Connecticut (27%) and Iowa (18%).
Does CURE LGMD2i FOUNDATION give general operating support?
Not in 2024: none of the 4 grants with a stated purpose on CURE LGMD2i FOUNDATION's 2024 IRS Form 990 were described as general or operating support.
How large is CURE LGMD2i FOUNDATION?
CURE LGMD2i FOUNDATION reported $361K in total assets on its 2024 IRS Form 990. Its revenue that year was $223K.
What is CURE LGMD2i FOUNDATION?
CURE LGMD2i FOUNDATION is a public charity focused on Human Services, based in Columbia, PA. It holds $361K in total assets as of 2024.
What is CURE LGMD2i FOUNDATION's EIN?
CURE LGMD2i FOUNDATION's EIN (Employer Identification Number) is 80-0680447. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS September 5, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS July 1, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 12, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work CURE LGMD2i FOUNDATION funds
Human Services Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in CURE LGMD2i FOUNDATION's focus areas in our free grants database
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