Charley's Fund Inc
Charley's Fund's singular mission is to support the development of treatments and a cure for duchenne muscular dystrophy (DMD). We identify and direct funding to the most compelling research and treatment programs related to DMD and,
Charley's Fund Inc at a glance
In short: Charley's Fund Inc gave $422K across 1 grant in 2024 (avg $422K), mostly in Massachusetts. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $421,729
- -23.3% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $421,729
- -23.3% vs 2023
- Median grant
- $421,729
- Total assets
- $1,076,613
- +4.7% vs 2023
- Primary geography
- Massachusetts (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Charley's Fund Inc funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Umass Memorial Foundation ($422K).
Grant Size Distribution
8 grants across all recorded years
The most common grant size was in the $1–5M range: 3 grants of 8 (38%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
Cities
How Charley's Fund Inc gives
- Giving fell 66% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $422K (2024) to $1.3M (2020). In 2024 it made 1 grant totaling $422K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Umass Memorial Foundation Shrewsbury, MA | Research Grant | $421,729 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $1,076,613 | $628,496 | $491,964 | $421,729 | 1 | $12,755 |
| 2023 | $1,028,035 | $684,167 | $724,013 | $550,000 | 1 | $15,464 |
| 2022 | $4,104,795 | $652,985 | $1,447,384 | $1,250,000 | 1 | $756 |
| 2021 | $5,463,767 | $1,781,625 | $1,811,866 | $1,250,000 | 3 | $2,144 |
| 2020 | $4,987,686 | $1,182,641 | $1,902,221 | $1,328,648 | 2 | $2,751 |
| 2019 | $5,842,303 | $2,197,115 | $2,276,439 | $1,208,694 | 2 | $14,707 |
About Charley's Fund Inc
Based on IRS filings
Charley's Fund Inc is a public charity focused on Medical Research, based in Great Barrington, MA. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $1.1M in total assets. In 2024, it awarded 1 grant totaling $422K. Net investment income was $13K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Charley's Fund Inc is led by Benjamin Seckler MD, President since 2022 (on filings since 2019); none of the 4 officers listed in 2024 report compensation.
Officers on the 2024 filing
Benjamin Seckler MD
President
Board Chairman → President, 2022
On filings since 2019
2 hrs/week
No compensation reported
Tracy Kramer Seckler
Director
Co-Founder & CEO → Director, 2022
On filings since 2019
15 hrs/week
$74K (2019) → $0 (2024)
Randy Reiff
Director
Board Member → Director, 2022
On filings since 2019
2 hrs/week
No compensation reported
Earl Kramer
Treasurer
On filings since 2019
2 hrs/week
No compensation reported
Former officers (5)
- Former: Ellen Wilner (2019–2021) — Board Member
- Former: Karen Climo (2019–2021) — Clerk
- Former: Kathe Kramer Chase (2019–2021) — Board Member
- Former: Laura Dalle Pazze (2019–2021) — President & COO
- Former: Mark Avagliano (2019–2021) — Board Member
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2022 IRS filing
The highest reported compensation on the 2022 filing was $13K, to Tracy Kramer Seckler (Director).
Frequently asked questions about Charley's Fund Inc
How much does Charley's Fund Inc give each year?
Charley's Fund Inc gave $422K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $550K across 1 grant.
How large is Charley's Fund Inc?
Charley's Fund Inc reported $1.1M in total assets on its 2024 IRS Form 990. Its revenue that year was $628K.
What is Charley's Fund Inc?
Charley's Fund Inc is a public charity focused on Medical Research, based in Great Barrington, MA. It holds $1.1M in total assets as of 2024.
Where does Charley's Fund Inc operate?
Charley's Fund Inc has awarded grants in Massachusetts, Missouri, New York.
What is Charley's Fund Inc's EIN?
Charley's Fund Inc's EIN (Employer Identification Number) is 20-2014968. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS November 13, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 11, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 13, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 7, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 14, 2025)
- IRS filings on file for fiscal years 2020–2024
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