Cure Dystonia Now Inc
Cure Dystonia Now inc. Is committed to advancing research for more and/or improved treatments, and ultimately a cure, for dystonia.
Cure Dystonia Now Inc at a glance
In short: Cure Dystonia Now Inc reported $81K in grants paid in 2022 (a total; its filing lists no individual grants). Source: 2022 IRS Form 990.
- Grants paid (2022)
- $80,632 — reported as a total on the IRS filing, without an itemized list
- -84.3% vs 2021
- Revenue (2022)
- $3,774
- -97.9% vs 2021
- Expenses (2022)
- $91,822
- -82.6% vs 2021
- Latest 990 filing
- Form 990, 2022 View filing
Data from IRS Form 990, 2022; updated September 2026.
Who Cure Dystonia Now Inc funds
How this funder distributes its grants
Grant Size Distribution
4 grants across all recorded years
The most common grant size was in the $50–100K range: 2 grants of 4 (50%).
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2022, annual grant giving ranged from $81K (2022) to $515K (2021). In 2022 it reported $81K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Dystonia Medical Research Foundation Chicago, IL | Perform research for more treatments and ultimately a cure for dystonia. | $515,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2022 | — | $3,774 | $91,822 | $80,632 | Total only | — |
| 2021 | $88,048 | $180,712 | $527,842 | $515,000 | 1 | $35 |
| 2020 | $435,178 | $90,828 | $168,500 | $163,000 | 1 | $74 |
| 2019 | $512,850 | $156,905 | $135,538 | $120,000 | 2 | $100 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Cure Dystonia Now Inc
Based on IRS filings
Cure Dystonia Now Inc is a public charity, based in Melville, NY. IRS filing data is available from 2019 through 2022. In 2022, it reported $81K in grants paid as a total on its IRS filing, without an itemized list.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Cure Dystonia Now Inc is led by Marc Miller, Co-President & Treasurer since 2021 (on filings since 2019); none of the 3 officers listed in 2022 report compensation.
Officers on the 2022 filing
Marc Miller
Co-President & Treasurer
Co-President, Treasurer & Secretary → Co-President & Treasurer, 2021
On filings since 2019
1 hr/week
No compensation reported
Robin Miller
Co-President
On filings since 2019
1 hr/week
No compensation reported
Sidney Miller
Vice President
On filings since 2019
1 hr/week
No compensation reported
Data from IRS Form 990 filings, 2019–2022. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Cure Dystonia Now Inc
How much does Cure Dystonia Now Inc give each year?
Cure Dystonia Now Inc reported $81K in grants paid in 2022 on its 2022 IRS Form 990, as a total without an itemized list of grants. In 2021 it gave $515K across 1 grant.
Where does Cure Dystonia Now Inc operate?
Cure Dystonia Now Inc has awarded grants in Georgia, Illinois.
What is Cure Dystonia Now Inc's EIN?
Cure Dystonia Now Inc's EIN (Employer Identification Number) is 45-5000038. IRS Form 990 filing data is available on this page for 2019–2022.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS November 16, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 13, 2023)
- IRS filings on file for fiscal years 2019–2022
Live grants for the work Cure Dystonia Now Inc funds
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