Cure Dystonia Now Inc logo

Cure Dystonia Now Inc

Public charity · Grantmaker Melville, NY EIN: 45-5000038 Website

Cure Dystonia Now inc. Is committed to advancing research for more and/or improved treatments, and ultimately a cure, for dystonia.

Key facts about Cure Dystonia Now Inc

In short: Cure Dystonia Now Inc reported $81K in grants paid in 2022 (a total; its filing lists no individual grants). Source: 2022 IRS Form 990.

EIN
45-5000038
Latest 990 filing
Form 990, 2022
Grants paid (2022)
$80,632 — reported as a total on the IRS filing, without an itemized list

Data from IRS Form 990, 2022; updated September 2026.

Financial Overview

From 2022 IRS Form 990 · View filing

Total Assets

—

-100.0% YoY

Grants Paid (reported total)

$81K

-84.3% YoY

Revenue

$4K

-97.9% YoY

About Cure Dystonia Now Inc

Based on IRS filings

Cure Dystonia Now Inc is a public charity, based in Melville, NY. IRS filing data is available from 2019 through 2022. In 2022, it reported $81K in grants paid as a total on its IRS filing, without an itemized list.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

2states

Cities

ChicagoAtlanta

Giving Over Time

Total grant dollars and number of grants per year

$0$200K$400K$600K2 grants2019 1 grant2020 1 grant2021 Total only2022

From 2019 to 2022, annual grant giving ranged from $81K (2022) to $515K (2021). In 2022 it reported $81K in grants paid, as a total without an itemized list.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grant Insights

How this funder distributes its grants

Grant Size Distribution

4 grants across all recorded years

<$50K2$50–100K1$100–250K$250–500K1$500K–1M$1–5M$5M+

The most common grant size was in the $50–100K range: 2 grants of 4 (50%).

Giving History

Grant recipients and amounts by year

No grants recorded for 2022.

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$200K$400K$600K2019 2020 2021 2022
Metric202220212020
Total Assets—$88,048$435,178
Revenue$3,774$180,712$90,828
Expenses$91,822$527,842$168,500
Net Investment Income—$35$74

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2019 (received by the IRS November 16, 2020)
  2. Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
  3. Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
  4. Updated Form 990 for fiscal year 2022 (received by the IRS November 13, 2023)
  5. IRS filings on file for fiscal years 2019–2022

Leadership & Key People

Officers and directors from IRS filings

Cure Dystonia Now Inc is led by Marc Miller, Co-President & Treasurer since 2021 (on filings since 2019); none of the 3 officers listed in 2022 report compensation.

Officers on the 2022 filing

  • Marc Miller

    Co-President & Treasurer

    Co-President, Treasurer & Secretary → Co-President & Treasurer, 2021

    On filings since 2019

    1 hr/week

    No compensation reported

  • Robin Miller

    Co-President

    On filings since 2019

    1 hr/week

    No compensation reported

  • Sidney Miller

    Vice President

    On filings since 2019

    1 hr/week

    No compensation reported

Data from IRS Form 990 filings, 2019–2022. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about Cure Dystonia Now Inc

How much does Cure Dystonia Now Inc give each year?

Cure Dystonia Now Inc reported $81K in grants paid in 2022 on its 2022 IRS Form 990, as a total without an itemized list of grants. In 2021 it gave $515K across 1 grant.

Where does Cure Dystonia Now Inc operate?

Cure Dystonia Now Inc has awarded grants in Georgia, Illinois.

What is Cure Dystonia Now Inc's EIN?

Cure Dystonia Now Inc's EIN (Employer Identification Number) is 45-5000038. IRS Form 990 filing data is available on this page for 2019–2022.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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