Creutzfeldt-jakob Disease Foundation Inc
CREUTZFELDT-JAKOB DISEASE (CJD) IS A RARE, RAPIDLY PROGRESSIVE NEURODEGENERATIVE DISEASE, ONE OF SEVERAL PRION DISEASES CAUSED BY PRION PROTEINS THAT MISFOLD IN THE BRAIN. THERE IS NO TREATMENT OR CURE AND THE DISEASE IS INVARIABLY FATAL. (CONTINUED ON SCHEDULE O)
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$9.2M
+12.9% YoY
Annual Giving
$200K
-42.9% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$100K
-14.3% YoY
About Creutzfeldt-jakob Disease Foundation Inc
Based on IRS filings
Creutzfeldt-jakob Disease Foundation Inc is a nonprofit organization, based in AKRON, OH. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $9.2M in total assets. In 2024, it awarded 2 grants totaling $200K. Net investment income was $341K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $9,188,820 | $8,137,536 | $6,412,924 |
| Revenue | $2,870,657 | $2,943,480 | $2,861,917 |
| Expenses | $1,865,950 | $1,541,598 | $1,274,442 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $341,468 | $84,302 | $37,113 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
15 grants across all recorded years
Open Grants
9 open opportunities from Creutzfeldt-jakob Disease Foundation Inc
The Barbara Carl Memorial Research Grant
CREUTZFELDT-JAKOB DISEASE FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
The Dr. Jim Barnette Memorial Grant
CREUTZFELDT-JAKOB DISEASE FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
The Dr. Robert Brooks Memorial Grant
CREUTZFELDT-JAKOB DISEASE FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Case Western Reserve ($100,000), National Institute of Allergy and Infectious Diseases ($100,000).
| Recipient | Purpose | Amount |
|---|---|---|
| CASE WESTERN RESERVE CLEVELAND, OH | RESEARCH | $100,000 |
| NATIONAL INSTITUTE OF ALLERGY AND INFECTIOUS DISEASES BETHESDA, MD | RESEARCH | $100,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| BRIAN APPLEBY | BOARD MEMBER | 2 | — |
| TREVOR BAIERL | BOARD MEMBER (THROUGH 2/28/24) | 2 | — |
| MATT COLLINS | BOARD MEMBER | 2 | — |
| PAMELA FEAR | BOARD MEMBER | 2 | — |
| LAVONNE HALL | BOARD MEMBER (THROUGH 2/7/24) | 2 | — |
| CLARENCE HUNTER | BOARD MEMBER | 2 | — |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | — |
| JANINE KOCK | BOARD MEMBER | 2 | — |
| PATRICIA MCGILL | TREASURER | 2 | — |
| KIRSTEN MCGINNIS | SECRETARY | 2 | — |
| BRENDA MEANEY | BOARD MEMBER | 2 | — |
| DAVE MORRIS | BOARD MEMBER | 2 | — |
| FRANK MYERS | BOARD MEMBER | 2 | — |
| MOLLY NOCERINO | BOARD MEMBER (THROUGH 4/30/24) | 2 | — |
| JOE POHL | BOARD MEMBER | 2 | — |
| MARK ROBERTS | BOARD MEMBER | 2 | — |
| JACOB SCHWISTER | BOARD MEMBER | 2 | — |
| TIM SCHWISTER | BOARD MEMBER | 2 | — |
| NANCY SWEELY | BOARD MEMBER | 2 | — |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | — |
| MICHAEL VITANZA | BOARD MEMBER (THROUGH 7/10/24) | 2 | — |
| STUART YAFFA | CHAIR | 2 | — |
| DEBORAH YOBS | PRESIDENT/EXECUTIVE DIRECTOR | 40 | $111,457 |
Frequently Asked Questions
How large is Creutzfeldt-jakob Disease Foundation Inc?
As of 2024, Creutzfeldt-jakob Disease Foundation Inc holds $9.2M in total assets with $2.9M in annual revenue. It awarded 2 grants totaling $200K in 2024.
Where does Creutzfeldt-jakob Disease Foundation Inc operate?
Creutzfeldt-jakob Disease Foundation Inc has awarded grants in Colorado, Massachusetts, Maryland, Missouri, Montana, Nebraska, Ohio, Texas.
What size grants does Creutzfeldt-jakob Disease Foundation Inc award?
In 2024, Creutzfeldt-jakob Disease Foundation Inc awarded 2 grants totaling $200K — an average of about $100K per grant, based on its IRS Form 990 filings.
What is Creutzfeldt-jakob Disease Foundation Inc's EIN?
Creutzfeldt-jakob Disease Foundation Inc's EIN (Employer Identification Number) is 65-0404623. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Creutzfeldt-jakob Disease Foundation Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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