Charge Syndrome Foundation
WE LEAD AND PARTNER TO IMPROVE THE LIVES OF PEOPLE WITH CHARGE SYNDROME LOCALLY, NATIONALLY, AND INTERNATIONALLY THROUGH OUTREACH, EDUCATION, AND RESEARCH.
Key facts about Charge Syndrome Foundation
- EIN
- 43-1642150
- Latest 990 filing
- Form 990-PF, 2024
- Total assets
- $1,718,691
Data from IRS Form 990-PF, 2024; updated September 2026.
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Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.7M
+8.0% YoY
Revenue
$539K
-52.2% YoY
Net Investment Income
$49K
+30.1% YoY
Expenses
$544K
-41.0% YoY
About Charge Syndrome Foundation
Based on IRS filings
Charge Syndrome Foundation is a nonprofit organization focused on Philanthropy, Voluntarism & Grantmaking, based in Buffalo Grove, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.7M in total assets. Net investment income was $49K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,718,691 | $1,592,023 | $1,432,888 |
| Revenue | $539,340 | $1,127,763 | $502,106 |
| Expenses | $544,100 | $922,660 | $355,542 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $48,824 | $37,533 | $10,127 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
1 grants across all recorded years
Open Grants
7 open opportunities from Charge Syndrome Foundation
CHARGE Scientific & Clinical Research Grant
Charge Syndrome Foundation
Amount
Varies
Deadline
Rolling / Open
CHARGE Syndrome Foundation Scientific & Clinical Research Grant
Charge Syndrome Foundation
Amount
Varies
Deadline
Rolling / Open
CHARGE Syndrome Foundation: Clinical Research Grant Program
Charge Syndrome Foundation
Amount
Up to US $50,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Neal Stanger | President | 20 | — |
| Ben Daigle | Director | 5 | — |
| Minnie Lee Lambert | Director | 8 | — |
| Lisa Cunningham | Executive Director | 40 | $135,196 |
| Lily Slavin | Director | 5 | — |
| Sara Espanet | Director | 5 | — |
| Penni Echols | Vice President | 10 | — |
| Joanne Lent | Secretary | 10 | — |
| Amrit Mehta | Treasurer | 10 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Charge Syndrome Foundation?
Charge Syndrome Foundation is a nonprofit organization focused on Philanthropy, Voluntarism & Grantmaking, based in Buffalo Grove, IL. It holds $1.7M in total assets as of 2024.
How large is Charge Syndrome Foundation?
As of 2024, Charge Syndrome Foundation holds $1.7M in total assets with $539K in annual revenue.
Where does Charge Syndrome Foundation operate?
Charge Syndrome Foundation has awarded grants in New York.
What is Charge Syndrome Foundation's EIN?
Charge Syndrome Foundation's EIN (Employer Identification Number) is 43-1642150. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.