Celiac Disease Foundation logo

Celiac Disease Foundation

WOODLAND HILLS, CA EIN: 95-4310830 Website

THE CELIAC DISEASE FOUNDATION IS A LEADING GLOBAL PATIENT ADVOCACY ORGANIZATION COMMITTED TO ACCELERATING DIAGNOSIS, TREATMENTS, AND A CURE FOR CELIAC DISEASE. OUR MISSION IS TO IMPROVE THE HEALTH AND WELL-BEING OF THE MILLIONS OF INDIVIDUALS AROUND THE WORLD AFFECTED BY THIS GENETIC AUTOIMMUNE DISEASE THROUGH OUR STRATEGIC INVESTMENTS IN RESEARCH, ADVOCACY, AND EDUCATION.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$7.6M

+26.8% YoY

Annual Giving

$273K

+9.4% YoY

Grant Count

2

-33.3% YoY

Avg Grant Size

$136K

+64.2% YoY

About Celiac Disease Foundation

Based on IRS filings

Celiac Disease Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in WOODLAND HILLS, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $7.6M in total assets. In 2024, it awarded 2 grants totaling $273K. Net investment income was $151K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

5states

Cities

AmblerBostonDavisNew YorkRaleigh

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$1M$2M$4M$5M20202021202220232024
Metric202420232022
Total Assets$7,559,145$5,959,854$4,468,403
Revenue$4,294,353$4,203,443$3,118,626
Expenses$4,336,074$2,975,235$2,177,592
Qualifying Distributions
Net Investment Income$151,072$125,118$27,932
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$68K$136K$204K$273K0 grants20200 grants20210 grants20223 grants20232 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 2 recipients in 2024

NASPGHAN$175KNORTH CAROLINA STATE UNI…$98K

Grant Size Distribution

5 grants across all recorded years

1<$50K2$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Open Grants

13 open opportunities from Celiac Disease Foundation

Show all 13 →

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

MARILYN GRUNZWEIG GE…CEO$336KBRETT SPITALECHIEF OF STAFF$209KVANESSA WEISBRODCHIEF EDUCATION & COMMUNITY …$186K

From 2024 filing

NameTitleHoursCompensation
BRADLEY HERREMABOARD SECRETARY2
JOHN WAGNERVICE CHAIR2
JORDAN RAMERTREASURER2
ADRIENNE BENDERBOARD CHAIR2
LEE JONESDEVELOPMENT COMMITTEE CHAI2
JAMIE RESINMEMBER2
WARREN SAFTMEMBER2
DAN GIBBONSMEMBER2
KRISTIN YAREMAMEMBER2
YASITH WEERASURIYAMEMBER2
CASEY GUBERMEMBER2
JENNIFER SULLIVANMEMBER2
BLAKELY BRANIFFMEMBER2
MARILYN GRUNZWEIG GELLERCEO40$335,685
BRETT SPITALECHIEF OF STAFF40$208,636
VANESSA WEISBRODCHIEF EDUCATION & COMMUNITY ENG. OFFICER40$185,611

Subject Areas

Focus areas based on grantmaking activity

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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