Celiac Disease Foundation
The Celiac Disease Foundation is the leading global patient advocacy organization committed to accelerating diagnosis, treatments, and a cure for celiac disease. Our mission is to improve the health and well-being of the millions of individuals around the world affected by this genetic autoimmune disease through our strategic investments in research, advocacy, and education.
Celiac Disease Foundation at a glance
In short: Celiac Disease Foundation gave $352K across 5 grants in 2025 (avg $70K), top state Massachusetts. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $351,540
- +29.0% vs 2024
- Grants made (2025)
- 5
- +150.0% vs 2024
- Average grant
- $70,308
- -48.4% vs 2024
- Median grant
- $67,500
- Total assets
- $8,297,238
- +9.8% vs 2024
- Primary geography
- Massachusetts (46% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Celiac Disease Foundation
Open Grants
18 open opportunities from Celiac Disease Foundation
CDF-SSCD Outreach Program to Improve Detection of Celiac Disease Research Award
Celiac Disease Foundation
Amount
$100,000
Deadline
Deadline not published
Celiac Disease Foundation Global Patient Education Grant Award
Celiac Disease Foundation
Amount
Varies
Deadline
Deadline not published
Celiac Disease Foundation Rising Villus Student Research Award
Celiac Disease Foundation
Amount
Varies
Deadline
Deadline not published
Who Celiac Disease Foundation funds
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
The largest 2025 recipient was Beth Israel Deaconess Medical Center Inc ($100K). Together the top 5 received $352K.
Grant Size Distribution
11 grants across all recorded years
The most common grant size was in the $50–100K range: 5 grants of 11 (45%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 5 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $75K (2022) to $360K (2021). In 2025 it made 5 grants totaling $352K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Beth Israel Deaconess Medical Center Inc Boston, MA | Celiac Disease Research | $100,000 |
| Uc Davis Los Angeles, CA | Celiac Disease Research | $97,500 |
| North Carolina State University Raleigh, NC | Celiac Disease Research | $67,500 |
| Childrens Hospital Corp Boston, MA | Celiac Disease Research | $61,540 |
| Naspghan Ambler, PA | Celiac Disease Research | $25,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $8,297,238 | $5,315,881 | $4,579,989 | $351,540 | 5 | $149,308 |
| 2024 | $7,559,145 | $4,294,353 | $4,336,074 | $272,500 | 2 | $151,072 |
| 2023 | $5,959,854 | $4,203,443 | $2,975,235 | $249,000 | 3 | $125,118 |
| 2022 | $4,468,403 | $3,118,626 | $2,177,592 | $75,000 | Total only | $27,932 |
| 2021 | $4,098,155 | $3,008,388 | $2,060,664 | $360,000 | 1 | $25,044 |
| 2020 | $2,936,533 | $1,888,616 | $1,396,407 | — | — | $63 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Celiac Disease Foundation
Based on IRS filings
Celiac Disease Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Woodland Hills, CA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $8.3M in total assets. In 2025, it awarded 5 grants totaling $352K. Net investment income was $149K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Celiac Disease Foundation is led by Marilyn Grunzweig Geller, CEO on every filing since 2020; 3 of 18 officers listed in 2025 are compensated.
Officers on the 2025 filing
Marilyn Grunzweig Geller
CEO
On filings since 2020
40 hrs/week
$230K (2020) → $351K (2025)
John Wagner
Government & Advocacy Committee Chair
Executive, Government & Advocacy → Vice Chair, 2023
Vice Chair → Government & Advocacy Committee Chair, 2025
On filings since 2020
2 hrs/week
No compensation reported
William Thurston
Board Chair
Member → Board Chair, 2025
On filings since 2022
2 hrs/week
No compensation reported
Blakely Braniff
Development Committee Chair
Member → Development Committee Chair, 2025
On filings since 2024
2 hrs/week
No compensation reported
Brett Spitale
Chief of Staff
On filings since 2024
40 hrs/week
$209K (2024) → $223K (2025)
Vanessa Weisbrod
Chief Education & Communit
Chief Education & Community Eng. Officer → Chief Education & Communit, 2025
On filings since 2024
40 hrs/week
$186K (2024) → $186K (2025)
Adrienne Bender
Vice Chair
Executive & Developmnet → Board Chair, 2023
Board Chair → Vice Chair, 2025
On filings since 2020
2 hrs/week
No compensation reported
Bradley Herrema
Board Secretary
Board Member & Secretary → Executive & Governance, 2022
Executive & Governance → Board Secretary, 2023
On filings since 2020
2 hrs/week
No compensation reported
Jamie Resin
Member
Board Member → Member & Development, 2022
Member & Development → Member, 2023
On filings since 2020
2 hrs/week
No compensation reported
Jordan Ramer
Board Governance Co-Chair
Executive & Finance → Treasurer, 2023
Treasurer → Board Governance Co-Chair, 2025
On filings since 2020
2 hrs/week
No compensation reported
Kristin Yarema
Member
Board Member → Goverment & Advocacy, 2022
Goverment & Advocacy → Member, 2023
On filings since 2020
2 hrs/week
No compensation reported
Lee Jones
Board Governance Co-Chair
Development Committee Chair → Development Committee Chai, 2024
Development Committee Chai → Board Governance Co-Chair, 2025
On filings since 2020
2 hrs/week
No compensation reported
Warren Saft
Treasurer
Member & Development → Member, 2023
Member → Treasurer, 2025
On filings since 2021
2 hrs/week
No compensation reported
Dan Gibbons
Member
On filings since 2023
2 hrs/week
No compensation reported
Jennifer Sullivan
Member
On filings since 2024
2 hrs/week
No compensation reported
Beth Blue
Member
New on the 2025 filing
2 hrs/week
No compensation reported
Greg Frasca
Member
New on the 2025 filing
2 hrs/week
No compensation reported
Karen Wicker
Member
New on the 2025 filing
2 hrs/week
No compensation reported
Former officers (8)
- Former: Yasith Weerasuriya (2020–2024) — Member
- Former: Casey Guber (2021–2024) — Member
- Former: Deborah Ceizler (2020–2023) — CDO
- Former: Jim Watson (2020–2022) — Finance & Developmnet
- Former: Linda Solomon (2020–2022) — Finance & Developmnet
- Former: Rhonda Resnick (2020–2022) — Member & Development
- Former: Christopher Holland (2020) — Board Member
- Former: Courtney De Balmann (2020) — Board Member & Chair
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $351K, to Marilyn Grunzweig Geller (CEO). 3 officers or directors reported compensation on that filing.
Frequently asked questions about Celiac Disease Foundation
How much does Celiac Disease Foundation give each year?
Celiac Disease Foundation gave $352K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $273K across 2 grants.
What is Celiac Disease Foundation's typical grant size?
Celiac Disease Foundation's median grant in 2025 was $67,500, and its average grant was $70,308, across 5 grants on its 2025 IRS Form 990.
Where does Celiac Disease Foundation give grants?
Celiac Disease Foundation's top state is Massachusetts, with 46% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were California (28%) and North Carolina (19%). The most frequent recipient cities were Boston, MA (2 grants).
Does Celiac Disease Foundation give general operating support?
Not in 2025: none of the 5 grants with a stated purpose on Celiac Disease Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Celiac Disease Research" (5 grants).
Who are Celiac Disease Foundation's largest grantees?
Celiac Disease Foundation's largest 2025 grantees include Beth Israel Deaconess Medical Center Inc ($100,000), Uc Davis ($97,500) and North Carolina State University ($67,500), according to its 2025 IRS Form 990. Together they received 75% of its itemized 2025 grant dollars.
How large is Celiac Disease Foundation?
Celiac Disease Foundation reported $8.3M in total assets on its 2025 IRS Form 990. Its revenue that year was $5.3M.
What is Celiac Disease Foundation?
Celiac Disease Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Woodland Hills, CA. It holds $8.3M in total assets as of 2025.
What is Celiac Disease Foundation's EIN?
Celiac Disease Foundation's EIN (Employer Identification Number) is 95-4310830. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS May 16, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 2, 2023)
- Added Form 990 for fiscal year 2025 (received by the IRS June 22, 2026)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Celiac Disease Foundation funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Celiac Disease Foundation's focus areas in our free grants database
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Celiac Disease Foundation down — hundreds of funders to go?