Celiac Disease Foundation
THE CELIAC DISEASE FOUNDATION IS A LEADING GLOBAL PATIENT ADVOCACY ORGANIZATION COMMITTED TO ACCELERATING DIAGNOSIS, TREATMENTS, AND A CURE FOR CELIAC DISEASE. OUR MISSION IS TO IMPROVE THE HEALTH AND WELL-BEING OF THE MILLIONS OF INDIVIDUALS AROUND THE WORLD AFFECTED BY THIS GENETIC AUTOIMMUNE DISEASE THROUGH OUR STRATEGIC INVESTMENTS IN RESEARCH, ADVOCACY, AND EDUCATION.
Key facts about Celiac Disease Foundation
- EIN
- 95-4310830
- Latest 990 filing
- Form 990-PF, 2024
- Annual giving (2024)
- $272,500
- Grants made (2024)
- 2
- Average grant
- $136,250
- Median grant
- $136,250
- Total assets
- $7,559,145
- Primary geography
- Pennsylvania (64% of itemized 2024 grant dollars)
Data from IRS Form 990-PF, 2024; updated September 2026.
Next steps with Celiac Disease Foundation
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Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$7.6M
+26.8% YoY
Annual Giving
$273K
+9.4% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$136K
+64.2% YoY
About Celiac Disease Foundation
Based on IRS filings
Celiac Disease Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Woodland Hills, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $7.6M in total assets. In 2024, it awarded 2 grants totaling $273K. Net investment income was $151K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 2 itemized 2024 grant dollars.
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $7,559,145 | $5,959,854 | $4,468,403 |
| Revenue | $4,294,353 | $4,203,443 | $3,118,626 |
| Expenses | $4,336,074 | $2,975,235 | $2,177,592 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $151,072 | $125,118 | $27,932 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Open Grants
18 open opportunities from Celiac Disease Foundation
CDF-SSCD Outreach Program to Improve Detection of Celiac Disease Research Award
Celiac Disease Foundation
Amount
$100,000
Deadline
Rolling / Open
Celiac Disease Foundation Global Patient Education Grant Award
Celiac Disease Foundation
Amount
Varies
Deadline
Rolling / Open
Celiac Disease Foundation Rising Villus Student Research Award
Celiac Disease Foundation
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest recipients include Naspghan ($175,000), North Carolina State University ($97,500).
| Recipient | Purpose | Amount |
|---|---|---|
| NASPGHAN Ambler, PA | CELIAC DISEASE RESEARCH | $175,000 |
| NORTH CAROLINA STATE UNIVERSITY Raleigh, NC | CELIAC DISEASE RESEARCH | $97,500 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Bradley Herrema | Board Secretary | 2 | — |
| John Wagner | Vice Chair | 2 | — |
| Jordan Ramer | Treasurer | 2 | — |
| Adrienne Bender | Board Chair | 2 | — |
| Lee Jones | Development Committee Chai | 2 | — |
| Jamie Resin | Member | 2 | — |
| Warren Saft | Member | 2 | — |
| Dan Gibbons | Member | 2 | — |
| Kristin Yarema | Member | 2 | — |
| Yasith Weerasuriya | Member | 2 | — |
| Casey Guber | Member | 2 | — |
| Jennifer Sullivan | Member | 2 | — |
| Blakely Braniff | Member | 2 | — |
| Marilyn Grunzweig Geller | CEO | 40 | $335,685 |
| Brett Spitale | Chief of Staff | 40 | $208,636 |
| Vanessa Weisbrod | Chief Education & Community Eng. Officer | 40 | $185,611 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Celiac Disease Foundation?
Celiac Disease Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Woodland Hills, CA. It holds $7.6M in total assets as of 2024.
How large is Celiac Disease Foundation?
As of 2024, Celiac Disease Foundation holds $7.6M in total assets with $4.3M in annual revenue. It awarded 2 grants totaling $273K in 2024.
Where does Celiac Disease Foundation operate?
Celiac Disease Foundation has awarded grants in California, Massachusetts, North Carolina, New York, Pennsylvania.
What size grants does Celiac Disease Foundation award?
In 2024, Celiac Disease Foundation awarded 2 grants totaling $273K — an average of about $136K per grant, based on its IRS Form 990 filings.
What is Celiac Disease Foundation's EIN?
Celiac Disease Foundation's EIN (Employer Identification Number) is 95-4310830. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.