Alport Syndrome Foundation Inc
The foundation was created to educate and support patients and families that have been affected by this genetic kidney disease with a goal of funding research, to find more effective treatment protocols and to ultimately find a cure.
Alport Syndrome Foundation Inc at a glance
In short: Alport Syndrome Foundation Inc gave $315K across 3 grants in 2024 (avg $105K), mostly in Michigan. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $314,631
- +223.9% vs 2023
- Grants made (2024)
- 3
- +200.0% vs 2023
- Average grant
- $104,877
- +8.0% vs 2023
- Median grant
- $132,835
- Total assets
- $2,817,931
- +5.6% vs 2023
- Primary geography
- Michigan (54% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Alport Syndrome Foundation Inc
Open Grants
4 open opportunities from Alport Syndrome Foundation Inc
ASF Research Program
Alport Syndrome Foundation Inc
Amount
$125,000
Deadline
Deadline not published
ASF Research Program Award
Alport Syndrome Foundation Inc
Amount
Up to $125K
Deadline
Deadline not published
Paul Silver Enrichment Award
Alport Syndrome Foundation Inc
Amount
Varies
Deadline
Deadline not published
Who Alport Syndrome Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
The largest 2024 recipient was University of Michigan ($171K). Together the top 3 received $315K.
Grant Size Distribution
9 grants across all recorded years
The most common grant size was under $50K: 4 grants of 9 (44%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 3 itemized grants.
Cities
How Alport Syndrome Foundation Inc gives
- Giving grew 99% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $35K (2020) to $315K (2024). In 2024 it made 3 grants totaling $315K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Michigan Ann Arbor, MI | Alport Syn ancillary natural history study | $170,733 |
| Univ of Washington at St Louis St. Louis, MO | School of Medicine Alport Study in mice | $132,835 |
| Others under threshold | Alport Syndrome research | $11,063 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,817,931 | $1,194,735 | $1,003,948 | $314,631 | 3 | $131,479 |
| 2023 | $2,669,586 | $1,016,405 | $612,534 | $97,151 | 1 | $63,369 |
| 2022 | $2,277,966 | $990,673 | $499,455 | $92,268 | 2 | $170 |
| 2021 | $1,762,638 | $993,526 | $478,020 | $158,000 | 2 | $47 |
| 2020 | $1,307,819 | $738,552 | $438,250 | $35,289 | 1 | $707 |
About Alport Syndrome Foundation Inc
Based on IRS filings
Alport Syndrome Foundation Inc is a public charity focused on Health, based in Scottsdale, AZ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.8M in total assets. In 2024, it awarded 3 grants totaling $315K. Net investment income was $131K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Alport Syndrome Foundation Inc is led by Lisa Bonebrake, Executive Director on every filing since 2020; 1 of 10 officers listed in 2024 is compensated.
Officers on the 2024 filing
Lisa Bonebrake
Executive Director
On filings since 2020
65 hrs/week
$105K (2024)
Andrew Kronenberg
Board Chair
Chair → Board Chair, 2023
On filings since 2020
10 hrs/week
No compensation reported
Phillip Kumnick
Director
Director → Director Development Chair, 2023
Director Development Chair → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
Stephen Malach
Director
Director → Director Program Chair, 2023
Director Program Chair → Director, 2024
On filings since 2022
1 hr/week
No compensation reported
Amy Rhodes
Director
Director Fb Moderator → Director, 2024
On filings since 2023
5 hrs/week
No compensation reported
December West
Director
New on the 2024 filing
1 hr/week
No compensation reported
Marty Dunleavy
Director
New on the 2024 filing
1 hr/week
No compensation reported
Ryan Linder
Secretary
On filings since 2020
2.5 hrs/week
No compensation reported
Sharon Lagas
Co-Founder & Director Past Chair
Co-Founder Past Chair → Co-Founder Director, 2022
Co-Founder Director → Co-Founder & Director Past Chair, 2023
On filings since 2020
5 hrs/week
No compensation reported
Daniel Kilpatrick
Treasurer
Director Finance Committee → Treasurer, 2024
On filings since 2023
5 hrs/week
No compensation reported
Former officers (4)
- Former: Andre Weinstock (2020–2023) — Director Research Chair
- Former: Martin Dunleavy (2020–2023) — Treasurer
- Former: Janine Reed (2020–2022) — Director
- Former: Jennifer Beauchamp (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $105K, to Lisa Bonebrake (Executive Director).
Frequently asked questions about Alport Syndrome Foundation Inc
How much does Alport Syndrome Foundation Inc give each year?
Alport Syndrome Foundation Inc gave $315K across 3 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $97K across 1 grant.
What is Alport Syndrome Foundation Inc's typical grant size?
Alport Syndrome Foundation Inc's median grant in 2024 was $132,835, and its average grant was $104,877, across 3 grants on its 2024 IRS Form 990.
Where does Alport Syndrome Foundation Inc give grants?
Alport Syndrome Foundation Inc gives mostly in Michigan: 54% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest state was Missouri (42%).
Does Alport Syndrome Foundation Inc give general operating support?
Not in 2024: none of the 3 grants with a stated purpose on Alport Syndrome Foundation Inc's 2024 IRS Form 990 were described as general or operating support.
How large is Alport Syndrome Foundation Inc?
Alport Syndrome Foundation Inc reported $2.8M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.2M.
What is Alport Syndrome Foundation Inc?
Alport Syndrome Foundation Inc is a public charity focused on Health, based in Scottsdale, AZ. It holds $2.8M in total assets as of 2024.
What is Alport Syndrome Foundation Inc's EIN?
Alport Syndrome Foundation Inc's EIN (Employer Identification Number) is 20-8237159. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS August 5, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS July 10, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 11, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 5, 2025)
- IRS filings on file for fiscal years 2020–2024
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