THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.8M
+5.6% YoY
Annual Giving
$315K
+223.9% YoY
Grant Count
3
+200.0% YoY
Avg Grant Size
$105K
+8.0% YoY
About Alport Syndrome Foundation Inc
Based on IRS filings
Alport Syndrome Foundation Inc is a nonprofit organization focused on Health, based in SCOTTSDALE, AZ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.8M in total assets. In 2024, it awarded 3 grants totaling $315K. Net investment income was $131K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,817,931 | $2,669,586 | $2,277,966 |
| Revenue | $1,194,735 | $1,016,405 | $990,673 |
| Expenses | $1,003,948 | $612,534 | $499,455 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $131,479 | $63,369 | $170 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
9 grants across all recorded years
Open Grants
2 open opportunities from Alport Syndrome Foundation Inc
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include University of Michigan ($170,733), Univ of Washington at St Louis ($132,835), Others under threshold ($11,063).
| Recipient | Purpose | Amount |
|---|---|---|
| University of Michigan Ann Arbor, MI | Alport Syn ancillary natural history study | $170,733 |
| Univ of Washington at St Louis St Louis, MO | School of Medicine Alport Study in mice | $132,835 |
| Others under threshold | Alport Syndrome research | $11,063 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| LISA BONEBRAKE | EXECUTIVE DIRECTOR | 65 | $105,000 |
| ANDREW KRONENBERG | BOARD CHAIR | 10 | — |
| RYAN LINDER | SECRETARY | 2.5 | — |
| DANIEL KILPATRICK | TREASURER | 5 | — |
| SHARON LAGAS | CO-FOUNDER, DIRECTOR PAST CHAIR | 5 | — |
| AMY RHODES | DIRECTOR | 5 | — |
| DECEMBER WEST | DIRECTOR | 1 | — |
| MARTY DUNLEAVY | DIRECTOR | 1 | — |
| PHILLIP KUMNICK | DIRECTOR | 1 | — |
| STEPHEN MALACH | DIRECTOR | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Alport Syndrome Foundation Inc?
Alport Syndrome Foundation Inc is a nonprofit organization focused on Health, based in SCOTTSDALE, AZ. It holds $2.8M in total assets as of 2024.
How large is Alport Syndrome Foundation Inc?
As of 2024, Alport Syndrome Foundation Inc holds $2.8M in total assets with $1.2M in annual revenue. It awarded 3 grants totaling $315K in 2024.
Where does Alport Syndrome Foundation Inc operate?
Alport Syndrome Foundation Inc has awarded grants in Massachusetts, Michigan, Minnesota, Missouri.
What size grants does Alport Syndrome Foundation Inc award?
In 2024, Alport Syndrome Foundation Inc awarded 3 grants totaling $315K — an average of about $105K per grant, based on its IRS Form 990 filings.
What is Alport Syndrome Foundation Inc's EIN?
Alport Syndrome Foundation Inc's EIN (Employer Identification Number) is 20-8237159. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Alport Syndrome Foundation Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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