Alport Syndrome Foundation Inc logo

Alport Syndrome Foundation Inc

SCOTTSDALE, AZ EIN: 20-8237159 Website

THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$2.8M

+5.6% YoY

Annual Giving

$315K

+223.9% YoY

Grant Count

3

+200.0% YoY

Avg Grant Size

$105K

+8.0% YoY

About Alport Syndrome Foundation Inc

Based on IRS filings

Alport Syndrome Foundation Inc is a nonprofit organization focused on Health, based in SCOTTSDALE, AZ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.8M in total assets. In 2024, it awarded 3 grants totaling $315K. Net investment income was $131K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

4states

Cities

Ann ArborBostonMinneapolisSt Louis

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$329K$657K$986K$1M20202021202220232024
Metric202420232022
Total Assets$2,817,931$2,669,586$2,277,966
Revenue$1,194,735$1,016,405$990,673
Expenses$1,003,948$612,534$499,455
Qualifying Distributions
Net Investment Income$131,479$63,369$170
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$79K$157K$236K$315K1 grants20202 grants20212 grants20221 grants20233 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 3 recipients in 2024

University of Michigan$171KUniv of Washington at St…$133KOthers under threshold$11K

Grant Size Distribution

9 grants across all recorded years

4<$50K2$50–100K3$100–250K$250–500K$500K–1M$1–5M$5M+

Open Grants

2 open opportunities from Alport Syndrome Foundation Inc

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include University of Michigan ($170,733), Univ of Washington at St Louis ($132,835), Others under threshold ($11,063).

RecipientPurposeAmount
University of Michigan Ann Arbor, MIAlport Syn ancillary natural history study$170,733
Univ of Washington at St Louis St Louis, MOSchool of Medicine Alport Study in mice$132,835
Others under threshold Alport Syndrome research$11,063

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

LISA BONEBRAKEEXECUTIVE DIRECTOR$105K

From 2024 filing

NameTitleHoursCompensation
LISA BONEBRAKEEXECUTIVE DIRECTOR65$105,000
ANDREW KRONENBERGBOARD CHAIR10
RYAN LINDERSECRETARY2.5
DANIEL KILPATRICKTREASURER5
SHARON LAGASCO-FOUNDER, DIRECTOR PAST CHAIR5
AMY RHODESDIRECTOR5
DECEMBER WESTDIRECTOR1
MARTY DUNLEAVYDIRECTOR1
PHILLIP KUMNICKDIRECTOR1
STEPHEN MALACHDIRECTOR1

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Alport Syndrome Foundation Inc?

Alport Syndrome Foundation Inc is a nonprofit organization focused on Health, based in SCOTTSDALE, AZ. It holds $2.8M in total assets as of 2024.

How large is Alport Syndrome Foundation Inc?

As of 2024, Alport Syndrome Foundation Inc holds $2.8M in total assets with $1.2M in annual revenue. It awarded 3 grants totaling $315K in 2024.

Where does Alport Syndrome Foundation Inc operate?

Alport Syndrome Foundation Inc has awarded grants in Massachusetts, Michigan, Minnesota, Missouri.

What size grants does Alport Syndrome Foundation Inc award?

In 2024, Alport Syndrome Foundation Inc awarded 3 grants totaling $315K — an average of about $105K per grant, based on its IRS Form 990 filings.

What is Alport Syndrome Foundation Inc's EIN?

Alport Syndrome Foundation Inc's EIN (Employer Identification Number) is 20-8237159. IRS Form 990 filing data is available on this page for 2020–2024.

Explore Open Grants

Browse active grant opportunities in Alport Syndrome Foundation Inc's focus areas in our free grants database

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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