Prader-Willi Syndrome Association
Funding Overview
From IRS Form 990 filings · 2019–2025
Total received
$295K
Foundation funders
25
Grants recorded
47
Years covered
2019–2025
Who funds Prader-Willi Syndrome Association?
Prader-Willi Syndrome Association is funded by 25 grantmakers, led by The Estes Family Foundation ($70K), Elevare Foundation ($62K), Lorenzini Family Foundation ($57K). In total, IRS Form 990 filings record $295K in grants to Prader-Willi Syndrome Association between 2019–2025.
Funding over time
Grant dollars and counts received per year
From 2019 to 2025, annual grant giving ranged from $550 (2019) to $101K (2025). In 2025 it made 7 grants totaling $101K.
What grants has Prader-Willi Syndrome Association received?
Individual grants from IRS Form 990 filings, newest first
| Year | Funder | Purpose | Amount |
|---|---|---|---|
| 2025 | Elevare Foundation | UNRESTRICTED CONTR TO PUBLIC CHARITY | $62,000 |
| 2025 | Johnson James Hervey Char Ed Trust | General Purposes | $30,000 |
| 2025 | The Okusa-Dellinger Foundation | General & Unrestricted | $2,500 |
| 2025 | Irving May and Edith H May Foundation | OPERATIONS | $2,500 |
| 2025 | The Andrew C Virostek Foundation | DONATION | $2,073 |
| 2025 | The Ruttenbergkagan Foundation | CHARITABLE PURPOSE OF RECIPIENT | $1,000 |
| 2025 | McDowell Family Foundation | PWSACO Derby Days | $500 |
| 2024 | Johnson James Hervey Char Ed Trust | General Purposes | $10,000 |
| 2024 | The Estes Family Foundation | General & Unrestricted | $4,250 |
| 2024 | The Strong-Lachemann Foundation | To be used to in any manner that the organization deems proper. | $2,000 |
| 2024 | The Andrew C Virostek Foundation | DONATION | $518 |
| 2024 | Bame Foundation | CHARITABLE GIFT | $100 |
| 2024 | The Lazard Charitable Foundation | UNRESTRICTED | $50 |
| 2023 | Lorenzini Family Foundation | Production of a documentary film preliminarily titled "The Life You're Given" | $20,000 |
| 2023 | Johnson James Hervey Char Ed Trust | General Purposes | $10,000 |
| 2023 | Natl Christian Charitable Fdn Inc | SUPPORT | $10,000 |
| 2023 | The Blackbaud Giving Fund | GENERAL SUPPORT | $6,236 |
| 2023 | Susan a & Donald P Babson Foundation | GENERAL | $4,000 |
| 2023 | The Strong-Lachemann Foundation | To be used to in any manner that the organization deems proper. | $2,000 |
| 2023 | Leslie Family Foundation | GENERAL SUPPORT | $1,000 |
| 2023 | Harry and Lillian Hoffman Foundation | HEALTH CARE | $500 |
| 2022 | The Estes Family Foundation | General & Unrestricted | $15,000 |
| 2022 | Susan a & Donald P Babson Foundation | GENERAL | $6,500 |
| 2022 | The Strong-Lachemann Foundation | To be used to in any manner that the organization deems proper. | $2,000 |
| 2022 | The Dixie Starnes Wenger Foundation | OPERATIONS | $1,000 |
| 2022 | Salem Foundation Inc | SOCIAL SERVICES PROGRAM SUPPORT | $500 |
| 2022 | Synchrony Foundation | EMPLOYEE MATCHING | $250 |
| 2021 | Lorenzini Family Foundation | Production of a documentary film preliminarily titled "The Life You're Given" | $37,000 |
| 2021 | The Estes Family Foundation | General & Unrestricted | $35,550 |
| 2021 | The Strong-Lachemann Foundation | To be used to in any manner that the organization deems proper. | $4,000 |
Showing 30 most recent of 47 recorded grants.
Frequently Asked Questions
Who funds Prader-Willi Syndrome Association?
Prader-Willi Syndrome Association is funded by 25 grantmakers, led by The Estes Family Foundation ($70K), Elevare Foundation ($62K), Lorenzini Family Foundation ($57K). In total, IRS Form 990 filings record $295K in grants to Prader-Willi Syndrome Association between 2019–2025.
Who is Prader-Willi Syndrome Association's largest funder?
The Estes Family Foundation is the largest recorded funder of Prader-Willi Syndrome Association, with $70K across 4 grants (2020–2024).
How much grant funding has Prader-Willi Syndrome Association received?
IRS 990 filings record $295K in grants to Prader-Willi Syndrome Association across 47 grants from 25 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.
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Grant data is drawn from IRS Form 990 filings via Grantable's GrantGraph™. Filings are published on a delay; recent grants may not appear yet.
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