Down Syndrome Innovations

Nonprofit · Grant recipient Shawnee Mission, KS EIN 43-1427760

Funding Overview

From IRS Form 990 filings · 2019–2025

Total received

$1.4M

Foundation funders

35

Grants recorded

60

Years covered

2019–2025

Who funds Down Syndrome Innovations?

Down Syndrome Innovations is funded by 35 grantmakers, led by Ronald D Deffenbaugh Foundation CO Charles E Wetzler - Trustee ($600K), Jackson County Community Children's Services Fund ($113K), United Way of Greater Kansas City Inc ($100K). In total, IRS Form 990 filings record $1.4M in grants to Down Syndrome Innovations between 2019–2025.

FunderTotal givenGrantsYears
Ronald D Deffenbaugh Foundation CO Charles E Wetzler - Trustee$600,00012021
Jackson County Community Children's Services Fund$112,81912024
United Way of Greater Kansas City Inc$100,00332021–2025
Cocherl Family Foundation$90,00022023–2024
The Sherman Family Foundation$60,00032022–2024
Mitchem-Chase Family Foundation$56,20732024–2025
Veterans United Foundation$53,30562021–2025
Sam Price Family Foundation$30,00032023–2025
Kearney Wornall Foundation 10017900$25,00012024
Nebraska Community Foundation$20,00012023
The Kansas City Royals Foundation$20,00022021–2023
Joseph M Fahey and Mary Elizabeth Rogers Fahey Foundation Inc$19,50032020–2022
Cog Clinical Research Foundation Inc$15,00032023–2025
Ernst Family Foundation$15,00012022
Servant Foundation$15,00022020–2022
Orscheln Industries Foundation Inc$13,50052021–2025
CHC Creating Healthier Communities$13,05812019
Lockton Family Foundation$12,50012021
Greater Horizons$10,02012024
Backstrom Family Foundation$10,00012025
Kentucky Fried Chicken Foundation Inc$10,00012024
Philadelphia Insurance Companies Fdn$10,00012023
The Pritzker Pucker Family$9,13112024
The Blackbaud Giving Fund$7,35112023
Natl Christian Charitable Fdn Inc$6,70012021
Show all 35 funders

Funding over time

Grant dollars and counts received per year

$0$200K$400K$600K$800K1 grant2019 2 grants2020 8 grants2021 9 grants2022 17 grants2023 16 grants2024 7 grants2025

From 2019 to 2025, annual grant giving ranged from $12K (2020) to $672K (2021). In 2025 it made 7 grants totaling $122K.

What grants has Down Syndrome Innovations received?

Individual grants from IRS Form 990 filings, newest first

YearFunderPurposeAmount
2025United Way of Greater Kansas City IncDonor Designations$48,344
2025Mitchem-Chase Family FoundationGENERAL USE$33,207
2025Sam Price Family FoundationOperational grant$10,000
2025Veterans United FoundationPROGRAM SUPPORT$10,000
2025Backstrom Family FoundationTO BE USED AT THE$10,000
2025Cog Clinical Research Foundation IncTO FUND LIFE-CHANGING SERVICES THAT ENABLE PEOPLE WITH DOWN SYNDROME$5,000
2025Orscheln Industries Foundation IncDONATION$5,000
2024Jackson County Community Children's Services FundMENTH HEALTH SERVICES FOR FAMILIES TO SUPPORT LIFE TRAJECTORIES FOR CHILDREN IN JACKSON COUNTY$112,819
2024Cocherl Family FoundationSUPPORT ORGANIZATION MISSION$70,000
2024United Way of Greater Kansas City IncProgram Funding and Designagtions$28,900
2024Kearney Wornall Foundation 10017900EST NEURODIVERSITY$25,000
2024Mitchem-Chase Family FoundationGENERAL USE$22,500
2024The Sherman Family FoundationTO SUPPORT SERVICES FOR THOSE WITH DOWN SYNDROME.$20,000
2024Greater HorizonsHuman Services$10,020
2024Sam Price Family FoundationOperational grant$10,000
2024Veterans United FoundationDIRECT PROGRAM SUPPORT$10,000
2024Kentucky Fried Chicken Foundation IncCharitable$10,000
2024The Pritzker Pucker FamilyGENERAL OPERATING SUPPORT$9,131
2024Cog Clinical Research Foundation IncTO FUND LIFE-CHANGING SERVICES THAT ENABLE PEOPLE WITH DOWN SYNDROME$5,000
2024Orscheln Industries Foundation IncDonation$2,500
2024Commerce Bancshares FoundationUSED AT THE DISCRETION OF THE BOARD OF DIRECTORS OR TRUSTEES AS THEY SEE FIT FOR OPERATING THEIR ORGANIZATION$500
2024Veterans United FoundationDIRECT PROGRAM SUPPORT$500
2024Mitchem-Chase Family FoundationGENERAL USE$500
2023Cocherl Family FoundationSUPPORT ORGANIZATION MISSION$20,000
2023Nebraska Community FoundationEDUCATED WORKFORCE SUPPORT$20,000
2023The Sherman Family FoundationTO SUPPORT SERVICES FOR THOSE WITH DOWN SYNDROME.$20,000
2023Sam Price Family FoundationOperational grant$10,000
2023Veterans United FoundationHEALTH & WELLNESS FOR PEOPLE WITH DOWN SYNDROME$10,000
2023Philadelphia Insurance Companies FdnGENERAL CHARITABLE PURPOSES$10,000
2023The Kansas City Royals FoundationPROGRAMS$10,000

Showing 30 most recent of 60 recorded grants.

Frequently Asked Questions

Who funds Down Syndrome Innovations?

Down Syndrome Innovations is funded by 35 grantmakers, led by Ronald D Deffenbaugh Foundation CO Charles E Wetzler - Trustee ($600K), Jackson County Community Children's Services Fund ($113K), United Way of Greater Kansas City Inc ($100K). In total, IRS Form 990 filings record $1.4M in grants to Down Syndrome Innovations between 2019–2025.

Who is Down Syndrome Innovations's largest funder?

Ronald D Deffenbaugh Foundation CO Charles E Wetzler - Trustee is the largest recorded funder of Down Syndrome Innovations, with $600K across 1 grant (2021).

How much grant funding has Down Syndrome Innovations received?

IRS 990 filings record $1.4M in grants to Down Syndrome Innovations across 60 grants from 35 funders between 2019–2025. Filings are published on a delay, so recent grants may not appear yet.

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