CureSHANK Research-to-Cure Grant: Epilepsy
Funding Amount
$250,000
Deadline
Deadline not published
Grant Type
Foundation
Overview
Focus Area: SHANK3-related epilepsy in Phelan-McDermid syndrome (PMS)
Number of Awards: Two or more research proposals will be funded
Background
Announced December 1, 2023, this Request for Applications (RFA) seeks researchers to study the connection between SHANK3 gene deletions/variants and epilepsy. Epilepsy is responsible for many deaths in both children and young adults with PMS and is one of the disorder's most distressing symptoms. Research has historically focused more on autism and intellectual disability rather than epilepsy.
Research Priorities
Research priorities and recommendations were developed by experts at a groundbreaking conference "Defining a Roadmap for SHANK3-related Epilepsy Research" held on September 27 at Boston Children's Hospital Brain Mind Behavior Center. The meeting was jointly hosted by the Rare Diseases Clinical Research Network (RDCRN) Developmental Synaptopathies Consortium and the Rosamund Stone Zander Translational Neuroscience Center.
Funder Information
Location: California, US
Mission: To accelerate the development of treatments for Phelan-McDermid syndrome & SHANK-related disorders
What Cureshank actually gave
Source: IRS Form 990, 2024
- Grants in 2024
- 2
- Total given
- $72K
- Median grant
- $36K
- Range
- $10K–$62K
- By dollars: Utah 86%, New York 14%. Top recipient cities: Salt Lake City, UT; New York, NY.
Example grants
University of Utah · Salt Lake City, UT
$62K
Icahn School of Medicine · New York, NY
$10K
Focus Areas & Funding Uses
Fields of Work
- Science research
Categories
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