Alagille Syndrome Vitamins and Supplements Fund Grant

Alagille Syndrome Vitamins and Supplements Fund Grant

Status: ACTIVE
Funder: Healthwell Foundation
Amount: Up to US $1,500
Last Updated: February 11, 2026

Summary

The Alagille Syndrome Vitamins and Supplements Fund, managed by the HealthWell Foundation, offers financial assistance to patients suffering from Alagille Syndrome. This fund helps cover the costs of essential vitamins and supplements needed for treatment. With a maximum award of $1,500, the program aims to reduce financial barriers for underinsured individuals, ensuring they receive the necessary support to manage their health, thereby enhancing their quality of life.

Overview

Note:  If we do not have a fund that currently covers your diagnosis, please check back as we frequently open and reopen programs as funding becomes available. The Foundation is able to help patients receiving treatment for indications for which we currently have an open fund. What We Do Our Mission: To reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. The HealthWell Foundation is a leading independent non-profit dedicated to improving access to health care for America’s underinsured. When health insurance is not enough, we fill the gap by assisting with copays, premiums, deductibles and out-of-pocket expenses. In 2025, we awarded more than $1.1 billion in grants through our Disease Funds, and since 2004 we have helped more than 1,390,000 patients afford essential treatments and medications. HealthWell is recognized as one of America’s most efficient charities — 100 percent of every dollar donated goes directly to patient grants and services. We provide financial assistance to help with: Prescription copaysHealth insurance premiums, deductibles and coinsurancePediatric treatment costsTravel costsBehavioral health services Our Vision: To ensure that no patient goes without health care because they cannot afford it. Alagille Syndrome Vitamins and Supplements About Alagille Syndrome Alagille syndrome (ALGS) is a rare genetic disorder that can affect multiple organ systems of the body including the liver, heart, skeleton, eyes and kidneys. The specific symptoms and severity of ALGS can vary greatly from one person to another. Some individuals may have a mild form of the disorder that can virtually go unnoticed, while others may have a serious form of the disorder that can potentially cause life-threatening complications. Common symptoms, which often develop during the first three months of life, include blockage of the flow of bile from the liver (cholestasis), yellowing of the skin and mucous membranes (jaundice), poor weight gain and growth, severe itching (pruritis) and pale, loose stools. Because the body cannot properly absorb fats and fat-soluble vitamins (vitamins A, D, E, and K), affected children may also experience growth deficiencies and failure to thrive. Malabsorption of vital nutrients can also lead to other conditions such as rickets, vision problems, poor coordination and developmental delays, and blood clotting problems. About Our Alagille Syndrome Vitamins and Supplements Fund HealthWell’s Alagille Syndrome Vitamins and Supplements Fund is designed to assist eligible people living with Alagille Syndrome with the full or partial cost-shares associated with vitamins and supplements. We are committed to supporting the ALGS community and the established guidelines around our covered product list are meant to focus on the areas of greatest need for the majority of people living with ALGS. We understand there are additional areas to be addressed and, over time, it is our hope to be able to expand our coverage even further. Fund Definition Assistance with vitamins and supplements formulated to support treatment and management of Alagille Syndrome. Grant Utilization HealthWell estimates that patients use an average of $730 during their 12-month grant period for this disease area. Assistance Type Prescription Drug Copay Maximum Award Level $1,500 Pharmacy Card Fund Yes Minimum Copay Reimbursement Amount None Minimum Premium Reimbursement Amount None Treatments Covered Infant FormulasAlfamino (all Varieties)Alimentum (all Varieties)Elacare (all Varieties)Enfamil (all Varieties)Enfaport (all Varieties)Gerber Good Start (all Varieties)High Mct Formulas (all Varieties)Monogen (all Varieties)Neocate Formula (all Varieties)Nutramigen (all Varieties)Pediasure Peptide (all Varieties)Pregestimil (all Varieties)Puramino (all Varieties)Similac (all Varieties)Oral/Tube Feeding SupplementsBoost (all Varieties)Kate Farms (all Varieties)Lutrish (all Varieties)Mct Oil (all Varieties)Pediasure (all Varieties)Peptamen (all Varieties)SeracalVitaminsDeka (plus And Essentials)Mvw Adek GummiesMvw Complete Formulation (adult And Kids)Vitamin A (all Varieties)Vitamin C (all Varieties)Vitamin D (all Varieties)Vitamin E (all Varieties)Vitamin K (all Varieties)*

Eligibility

You can learn more about this opportunity by visiting the funder's website. Do I Qualify?HealthWell bases eligibility on an individual’s medical, financial and insurance situation. To qualify for HealthWell’s assistance, applicants must meet the following eligibility requirements:You are being treated for Alagille Syndrome.We can only assist with medications that have been prescribed to treat the disease/covered diagnosis. You will be asked to provide the Foundation with the patient’s diagnosis, which must be verified by a physician, nurse practitioner, or physician assistant’s signature. The patient must receive treatment in the United States.You have insurance.To qualify for assistance from HealthWell, you must have some form of health insurance (private insurance, Medicare, Medicaid, TriCare, etc.). For our Alagille Syndrome Vitamins and Supplements Fund, we understand that your insurance may not cover the cost of your vitamins and supplements.Your income falls within our guidelines.HealthWell assists individuals with incomes up to 300-500% of the Federal Poverty Level.The Foundation also considers the number in a household and cost of living in a particular city or state. If you believe you qualify for assistance, you may begin the application process here.You are receiving treatment in the United States.Please note that you will be asked to provide a Social Security Number in order to create a grant. This information is gathered to eliminate duplicate applications and is kept secure and confidential.

Ineligibility

Treatments Covered*These products are not billable through HealthWell’s pharmacy card. Please submit requests for reimbursement through our paper claim process.Please note that we are not able to assist with special requests outside of our covered product list at this time.