United MSD Foundation Inc
Generate awareness and help fund medical and scientific research dedicated to curing multiple sulfatase deficiency (MSD)
United MSD Foundation Inc at a glance
In short: United MSD Foundation Inc gave $25K across 2 grants in 2025 (avg $13K), mostly in Pennsylvania. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $25,198
- +134.9% vs 2024
- Grants made (2025)
- 2
- +100.0% vs 2024
- Average grant
- $12,599
- +17.4% vs 2024
- Median grant
- $12,599
- Total assets
- $232,078
- +3.7% vs 2024
- Primary geography
- Pennsylvania (79% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who United MSD Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was Children's Hospital of Philadelphia ($20K). Together the top 2 received $25K.
Grant Size Distribution
7 grants across all recorded years
The most common grant size was under $50K: 4 grants of 7 (57%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
Cities
How United MSD Foundation Inc gives
- Giving fell 93% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $11K (2024) to $352K (2022). In 2025 it made 2 grants totaling $25K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Children's Hospital of Philadelphia Philadephia, PA | Research Proposal | $20,000 |
| Genetic Alliance Damascus, MD | Sample Management | $5,198 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $232,078 | $320,623 | $311,637 | $25,198 | 2 | $1,894 |
| 2024 | $223,869 | $330,516 | $388,232 | $10,729 | 1 | $1,046 |
| 2023 | $287,939 | $305,138 | $638,180 | $258,015 | 2 | $2,156 |
| 2022 | $665,027 | $720,064 | $645,733 | $351,701 | 1 | $882 |
| 2021 | $539,519 | $562,636 | $422,505 | $144,000 | 1 | $235 |
| 2020 | $402,910 | $354,216 | $378,076 | $145,407 | 1 | $440 |
About United MSD Foundation Inc
Based on IRS filings
United MSD Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Biloxi, MS. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $232K in total assets. In 2025, it awarded 2 grants totaling $25K. Net investment income was $2K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
United MSD Foundation Inc is led by Rich Schega, President since 2025 (on filings since 2023); none of the 15 officers listed in 2025 report compensation.
Officers on the 2025 filing
Rich Schega
President
Director → Vice President, 2024
Vice President → President, 2025
On filings since 2023
5 hrs/week
No compensation reported
George Loukatos
Director
On filings since 2020
1 hr/week
No compensation reported
Brad Ball
Director
On filings since 2023
1 hr/week
No compensation reported
Amanda Haldet-Phillips
Director
On filings since 2024
1 hr/week
No compensation reported
Jacki Thornburg
Director
On filings since 2024
1 hr/week
No compensation reported
Julie Rosner-Lengele
Director
On filings since 2024
1 hr/week
No compensation reported
Angela Wolfe
Director
New on the 2025 filing
1 hr/week
No compensation reported
Brandy Brockus
Director
New on the 2025 filing
1 hr/week
No compensation reported
Michelle Fox
Director
New on the 2025 filing
1 hr/week
No compensation reported
Rochelly Colburn
Director
New on the 2025 filing
1 hr/week
No compensation reported
Sophia Grise
Director
New on the 2025 filing
1 hr/week
No compensation reported
Sue Rokaw
Director
New on the 2025 filing
1 hr/week
No compensation reported
Renee Elliot
Past President
Director → President, 2024
President → Past President, 2025
On filings since 2020
1 hr/week
No compensation reported
Eryn Marchiolo
Secretary
Director → Secretary, 2024
On filings since 2022
1 hr/week
No compensation reported
Roy Taylor
Treasurer
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (11)
- Former: Hope Blankenship (2020–2024) — Treasurer
- Former: Gigi Burke (2020–2023) — Director
- Former: John Ewen (2020–2023) — President
- Former: Mike Streiff (2020–2023) — Secretary
- Former: Mauricio De Castro (2020–2022) — Research Chair
- Former: Richard Schega (2020–2022) — Director
- Former: Sebastian Ballauz (2020–2022) — Director
- Former: Bradley Ball (2022) — Director
- Former: Julie Gresham (2022) — Director
- Former: Amanda Burke (2020–2021) — Director
- Former: Jennifer Frank (2020–2021) — President
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about United MSD Foundation Inc
How much does United MSD Foundation Inc give each year?
United MSD Foundation Inc gave $25K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $11K across 1 grant.
How large is United MSD Foundation Inc?
United MSD Foundation Inc reported $232K in total assets on its 2025 IRS Form 990. Its revenue that year was $321K.
What is United MSD Foundation Inc?
United MSD Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Biloxi, MS. It holds $232K in total assets as of 2025.
Where does United MSD Foundation Inc operate?
United MSD Foundation Inc has awarded grants in Maryland, Pennsylvania, Texas, Virginia.
What is United MSD Foundation Inc's EIN?
United MSD Foundation Inc's EIN (Employer Identification Number) is 81-3669443. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS October 19, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS August 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS July 18, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS August 21, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS August 17, 2026)
Live grants for the work United MSD Foundation Inc funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in United MSD Foundation Inc's focus areas in our free grants database
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