Turner Syndrome Society of the U S
Turner Syndrome Society of the United States (TSSUS) advances knowledge, facilitates research, and provides support for all persons touched by Turner syndrome.
Turner Syndrome Society of the U S at a glance
In short: Turner Syndrome Society of the U S gave $25K across 1 grant in 2025 (avg $25K), mostly in Texas. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $25,000
- Grants made (2025)
- 1
- Average grant
- $25,000
- Median grant
- $25,000
- Total assets
- $1,504,346
- -1.2% vs 2024
- Primary geography
- Texas (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Turner Syndrome Society of the U S funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was UT Health ($25K).
Grant Size Distribution
1 grant across all recorded years
The most common grant size was under $50K: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2025 it made 1 grant totaling $25K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| UT Health Houston, TX | Adult ambulatory care grant | $25,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,504,346 | $692,386 | $686,538 | $25,000 | 1 | $60,836 |
| 2024 | $1,522,139 | $832,833 | $625,371 | — | — | $49,855 |
| 2023 | $1,287,754 | $1,110,552 | $556,677 | — | — | $136 |
| 2022 | $723,870 | $522,013 | $350,675 | — | — | — |
| 2021 | $549,602 | $482,741 | $345,098 | — | — | $18 |
| 2020 | $462,005 | $400,483 | $378,615 | — | — | $724 |
| 2019 | $396,921 | $642,665 | $626,905 | — | — | $3,294 |
About Turner Syndrome Society of the U S
Based on IRS filings
Turner Syndrome Society of the U S is a public charity, based in Houston, TX. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $1.5M in total assets. In 2025, it awarded 1 grant totaling $25K. Net investment income was $61K.
Leadership & Key People
Officers and directors from IRS filings
Turner Syndrome Society of the U S is led by Cindy C. Scurlock, President & CEO on every filing since 2019; 1 of 11 officers listed in 2025 is compensated.
Officers on the 2025 filing
Cindy C. Scurlock
President & CEO
On filings since 2019
40 hrs/week
$82K (2019) → $89K (2025)
Sarah Bauer
Chairman
Director → Board Chair - Elect, 2023
Board Chair - Elect → Chairman, 2024
On filings since 2022
3 hrs/week
No compensation reported
Bria Kelly
Director
On filings since 2023
3 hrs/week
No compensation reported
Danielle Smith
Director
On filings since 2023
3 hrs/week
No compensation reported
Elizabeth Dabrowski
Director
On filings since 2023
3 hrs/week
No compensation reported
Alicia Hernandez
Director
New on the 2025 filing
3 hrs/week
No compensation reported
Elizabeth Reader
Director
New on the 2025 filing
3 hrs/week
No compensation reported
Laura Palko
Director
New on the 2025 filing
3 hrs/week
No compensation reported
Toni Farrell
Director
New on the 2025 filing
3 hrs/week
No compensation reported
Dawn Aye
Secretary
Director → Secretary, 2024
On filings since 2023
3 hrs/week
No compensation reported
Mary Greenberg
Treasurer
New on the 2025 filing
3 hrs/week
No compensation reported
Former officers (26)
- Former: Jennifer Steele (2021–2024) — Director
- Former: Daniel Tompkins (2022–2024) — Treasurer
- Former: Jeanna Lee (2022–2024) — Chairman
- Former: Kimberly Walker-Vanover (2022–2024) — Director
- Former: Kristen McKenney (2022–2024) — Director
- Former: Laura Wuertele (2022–2024) — Director
- Former: Brittani Laski (2022) — Board Chair
- Former: Christine Haley (2022) — Director
- Former: Janine Reyes (2022) — Director
- Former: Brittani Ehrhorn (2019–2021) — Board Chair Elect
- Former: Jeff Hynes (2019–2021) — Director
- Former: Michael Silberbach (2019–2021) — Director
- Former: Nancy Bryant (2019–2021) — Board Chair
- Former: Erica Melman (2020–2021) — Director
- Former: Meagan Given (2020–2021) — Director
- Former: Melissa Caulum (2020–2021) — Director
- Former: Carolyn Gibbs (2021) — Treasurer
- Former: Kimberly Walker (2021) — Director
- Former: Rosemary Morris (2019–2020) — Director
- Former: Sarah Sullivan (2019–2020) — Treasurer
- Former: Kathleen Maley (2020) — Director
- Former: Dorothy Baume (2019) — Director
- Former: Elizabeth Fontenot (2019) — Director
- Former: Emily Havrilak (2019) — Board Chair
- Former: Mandy Long (2019) — Director
- Former: Mysti Harrison (2019) — Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $89K, to Cindy Scurlock (President & CEO).
Frequently asked questions about Turner Syndrome Society of the U S
How much does Turner Syndrome Society of the U S give each year?
Turner Syndrome Society of the U S gave $25K across 1 grant in 2025, according to its 2025 IRS Form 990.
How large is Turner Syndrome Society of the U S?
Turner Syndrome Society of the U S reported $1.5M in total assets on its 2025 IRS Form 990. Its revenue that year was $692K.
Where does Turner Syndrome Society of the U S operate?
Turner Syndrome Society of the U S has awarded grants in Texas.
What is Turner Syndrome Society of the U S's EIN?
Turner Syndrome Society of the U S's EIN (Employer Identification Number) is 41-1596910. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS April 30, 2026)
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Figures come from Turner Syndrome Society of the U S's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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