The Parkinson Council
The Parkinson Council is the premier local organization dedicated to improving the quality of life for people with parkinson's, their care partners, and families. We invest in research, education, and programs provided by world-renowned institutions and innovative service organizations in the greater philadelphia area. We strengthen our role in the parkinson's community by increasing the number of lives we touch every year.
The Parkinson Council at a glance
In short: The Parkinson Council gave $253K across 9 grants in 2024 (avg $28K), mostly in Pennsylvania. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $253,000
- -18.7% vs 2023
- Grants made (2024)
- 9
- -10.0% vs 2023
- Average grant
- $28,111
- -9.7% vs 2023
- Median grant
- $20,000
- Total assets
- $484,670
- -26.1% vs 2023
- Primary geography
- Pennsylvania (84% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who The Parkinson Council funds
How this funder distributes its grants
Top Recipients
Top 8 recipients in 2024
The largest 2024 recipient was Penn Medicine Department of Neurology ($75K). Together the top 8 received $253K.
Grant Size Distribution
44 grants across all recorded years
The most common grant size was under $50K: 37 grants of 44 (84%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 9 itemized grants.
Cities
How The Parkinson Council gives
- Giving held roughly steady from 2021 to 2024 (+16%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $120K (2020) to $311K (2023). In 2024 it made 9 grants totaling $253K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Penn Medicine Department of Neurology Philadelphia, PA | Counseling - continued salary support for two counselors who facilitate support groups. Social worker - funding support for social worker for newly established palliative adult children care partner support group. | $75,000 |
| Thomas Jefferson University Hospitals Philadelphia, PA | Funding for patient and caregiver guides for the parkinson's pals program, a novel peer mentorship program, led by a group of patient leaders in collaboration with jefferson parkinson's disease movement center and home visit program for physician time and effort related to travel, encounter time (average 60-90 minutes per visit). | $45,000 |
| Thomas Jefferson University Hospitals Philadelphia, PA | Support to validate the neuroprotective mechanism ofgdf15 (a protein that serves as a biomarker for a range of diseases and conditions) in vitro and in vivo using gdf15 (ngm395: a chemically modified form of the growth factor that crosses the blood-brain barrier and is ready for clinical trials in patients). | $28,000 |
| The Barnes Foundation Philadelphia, PA | Funding for an 18-month planning and implementation grant for a pilot to engage pwp and their caregivers through visual arts. | $25,000 |
| Arcadia University Glenside, PA | Funding salaries and benefits for one pt to staff the stay fit virtual classes and one pt to lead in-person classes and supplies. | $20,000 |
| University of Delaware - Nurse Managed Care Center Newark, DE | Salary and reimbursement for staff to provide comprehensive care and treatment, including psychological and caregiver support. | $20,000 |
| Temple University - of the Commonwealth System of Higher Education New York, NY | Funding for an outpatient medical social worker to do outreach and education with a focus on dbs | $20,000 |
| Music Matters International Philadelphia, PA | Funding Support for Choir Meetings and Activities. | $10,000 |
| Joe Hand Boxing Gym Inc Feastervilletrevose, PA | Parkinson's Boxing Program | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $484,670 | $420,894 | $543,220 | $253,000 | 9 | $34 |
| 2023 | $656,108 | $477,980 | $620,997 | $311,377 | 10 | $2,354 |
| 2022 | $807,895 | $614,637 | $541,288 | $305,810 | 11 | $114 |
| 2021 | $627,546 | $571,319 | $438,181 | $218,753 | 8 | $-113 |
| 2020 | $389,553 | $425,328 | $416,049 | $120,000 | 6 | $54 |
About The Parkinson Council
Based on IRS filings
The Parkinson Council is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Philadelphia, PA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $485K in total assets. In 2024, it awarded 9 grants totaling $253K. Net investment income was $34.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
The Parkinson Council is led by Wendy Lewis, Chief Executive Officer since 2021 (on filings since 2020); 1 of 18 officers listed in 2024 is compensated.
Officers on the 2024 filing
Wendy Lewis
Chief Executive Officer
Executive Director → Chief Executive Officer, 2021
On filings since 2020
40 hrs/week
$87K (2020) → $101K (2024)
Eric Berkowitz
Board Member
Vice President → Board Member, 2022
On filings since 2020
1 hr/week
No compensation reported
Erica Domingo
Vice President
Secretary → Vice President, 2022
On filings since 2020
1 hr/week
No compensation reported
George C. Pilallis
Board Member
On filings since 2020
1 hr/week
No compensation reported
Lorraine Iacovitti
Board Member
On filings since 2020
1 hr/week
No compensation reported
Scott Larson
Board Member
On filings since 2020
1 hr/week
No compensation reported
Shilpa Agarwala
Board Member
On filings since 2020
1 hr/week
No compensation reported
Suzanne Reichwein
Board Member
On filings since 2020
1 hr/week
No compensation reported
William Quinlan
Board Member
On filings since 2020
1 hr/week
No compensation reported
Carlie Johnson Tully
Board Member
Board Member → Secretary, 2022
Secretary → Board Member, 2023
On filings since 2021
1 hr/week
No compensation reported
Howard Hurtig
Board Member
On filings since 2021
1 hr/week
No compensation reported
Lance M. Wilson
Board Member
On filings since 2021
1 hr/week
No compensation reported
Sharon Klazmer
Board Member
On filings since 2021
1 hr/week
No compensation reported
Michael F. Johnson
Treasurer
Board Member → Treasurer, 2023
On filings since 2022
1 hr/week
No compensation reported
Cherie Crosby-Weeks
Board Member
On filings since 2023
1 hr/week
No compensation reported
Kevin Hayes
Board Member
On filings since 2023
1 hr/week
No compensation reported
Shirley Grass
Board Member
On filings since 2023
3 hrs/week
No compensation reported
Steven Biss
Board Member
On filings since 2023
1 hr/week
No compensation reported
Former officers (11)
- Former: Jeff Keefer (2020–2023) — Board Member
- Former: Jason Ross (2021–2023) — Board Member
- Former: Carol Leiper (2020–2022) — Ex-Officio President
- Former: David Gutowski (2020–2022) — Board Member
- Former: Erika Aaron (2020–2022) — President
- Former: Kristina Vivian (2020–2022) — Treasurer
- Former: Cherie Crosby (2021–2022) — Board Member
- Former: Susan Lehman (2021–2022) — Board Member
- Former: Ellen Perlmutter (2020–2021) — Board Member
- Former: David Schaaf (2021) — Board Member
- Former: Suzanne Quinn (2020) — Board Member
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $101K, to Wendy Lewis (Chief Executive Officer).
Frequently asked questions about The Parkinson Council
How much does The Parkinson Council give each year?
The Parkinson Council gave $253K across 9 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $311K across 10 grants.
What is The Parkinson Council's typical grant size?
The Parkinson Council's median grant in 2024 was $20,000, and its average grant was $28,111, across 9 grants on its 2024 IRS Form 990.
Where does The Parkinson Council give grants?
The Parkinson Council gives mostly in Pennsylvania: 84% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest states were Delaware (8%) and New York (8%). The most frequent recipient cities were Philadelphia, PA (5 grants).
Does The Parkinson Council give general operating support?
Not in 2024: none of the 9 grants with a stated purpose on The Parkinson Council's 2024 IRS Form 990 were described as general or operating support.
Who are The Parkinson Council's largest grantees?
The Parkinson Council's largest 2024 grantees include Penn Medicine Department of Neurology ($75,000), Thomas Jefferson University Hospitals ($73,000 across 2 grants) and The Barnes Foundation ($25,000), according to its 2024 IRS Form 990. Together they received 68% of its itemized 2024 grant dollars.
How large is The Parkinson Council?
The Parkinson Council reported $485K in total assets on its 2024 IRS Form 990. Its revenue that year was $421K.
What is The Parkinson Council?
The Parkinson Council is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Philadelphia, PA. It holds $485K in total assets as of 2024.
What is The Parkinson Council's EIN?
The Parkinson Council's EIN (Employer Identification Number) is 91-1803234. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 10, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 8, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 14, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work The Parkinson Council funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in The Parkinson Council's focus areas in our free grants database
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The Parkinson Council down — hundreds of funders to go?