Texas Neurofibromatosis Foundation
To fund neurofibromatosis research and education and to provide for support groups for those facing the illness.
Texas Neurofibromatosis Foundation at a glance
- Total assets
- $625,545
- +23.7% vs 2024
- Revenue (2025)
- $802,784
- +30.3% vs 2024
- Net investment income (2025)
- $25,997
- +10.7% vs 2024
- Expenses (2025)
- $676,450
- +8.4% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated November 2026.
Who Texas Neurofibromatosis Foundation funds
How this funder distributes its grants
Grant Size Distribution
7 grants across all recorded years
The most common grant size was under $50K: 7 grants of 7 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
How Texas Neurofibromatosis Foundation gives
- Giving fell 67% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $10K (2024) to $112K (2023). In 2024 it made 1 grant totaling $10K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| El Paso Dermatology El Paso, TX | Clinic aid | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $625,545 | $802,784 | $676,450 | — | — | $25,997 |
| 2024 | $505,675 | $616,238 | $623,837 | $10,000 | 1 | $23,478 |
| 2023 | $532,847 | $646,731 | $692,762 | $112,000 | 3 | $20,560 |
| 2022 | $590,826 | $564,208 | $576,691 | $45,000 | 2 | $2,426 |
| 2021 | $579,783 | $347,948 | $330,225 | $30,000 | 1 | $10,045 |
| 2020 | $618,464 | $263,365 | $351,222 | $15,000 | 1 | $4,416 |
About Texas Neurofibromatosis Foundation
Based on IRS filings
Texas Neurofibromatosis Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Flower Mound, TX. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $626K in total assets. Net investment income was $26K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Texas Neurofibromatosis Foundation is led by Cindy Hahn, Executive Director on every filing since 2020; 1 of 15 officers listed in 2025 is compensated.
Officers on the 2025 filing
Cindy Hahn
Executive Director
On filings since 2020
40 hrs/week
$76K (2020) → $107K (2025)
Laura G Lyon
Director & President
On filings since 2020
5 hrs/week
No compensation reported
Edel Cuadra
Director
On filings since 2020
1 hr/week
No compensation reported
Jane Hoskins
Director
On filings since 2020
1 hr/week
No compensation reported
Janie Perelman
Director
On filings since 2020
1 hr/week
No compensation reported
Jeff Davison
Director
On filings since 2020
1 hr/week
No compensation reported
John M Slopis MD
Director
On filings since 2020
1 hr/week
No compensation reported
Jon Keith
Director
On filings since 2020
1 hr/week
No compensation reported
Katie Lange
Director & Treasurer
Director → Treasurer, 2024
Treasurer → Director & Treasurer, 2025
On filings since 2020
5 hrs/week
No compensation reported
Tammy Benson O'Brien
Director
On filings since 2020
1 hr/week
No compensation reported
Tricia Madden
Director & Secretary
On filings since 2020
5 hrs/week
No compensation reported
Liana Olinger
Director & Vice President
On filings since 2023
5 hrs/week
No compensation reported
Krista Comfort
Director
On filings since 2024
1 hr/week
No compensation reported
Carran Cullinan
Director
New on the 2025 filing
1 hr/week
No compensation reported
Josh Hebert
Director
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (8)
- Former: Kathryn Loo (2020–2024) — Director
- Former: Scott Remphrey (2020–2024) — Director
- Former: Janie Perleman (2023–2024) — Director
- Former: Bob Boronow (2020–2023) — Director
- Former: John Lowe (2020–2023) — Director
- Former: Laina Olinger (2020–2022) — Director & Vice President
- Former: Paul Schrier (2020–2022) — Director
- Former: Chris Cason (2020–2021) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $107K, to Cindy Hahn (Executive Director).
Frequently asked questions about Texas Neurofibromatosis Foundation
How large is Texas Neurofibromatosis Foundation?
Texas Neurofibromatosis Foundation reported $626K in total assets on its 2025 IRS Form 990. Its revenue that year was $803K.
What is Texas Neurofibromatosis Foundation?
Texas Neurofibromatosis Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Flower Mound, TX. It holds $626K in total assets as of 2025.
Where does Texas Neurofibromatosis Foundation operate?
Texas Neurofibromatosis Foundation has awarded grants in Texas.
What is Texas Neurofibromatosis Foundation's EIN?
Texas Neurofibromatosis Foundation's EIN (Employer Identification Number) is 74-2138345. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated November 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS September 4, 2026)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 18, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 14, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS June 30, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 6, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 23, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Texas Neurofibromatosis Foundation funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Texas Neurofibromatosis Foundation's focus areas in our free grants database
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Texas Neurofibromatosis Foundation down — hundreds of funders to go?