Texas Neurofibromatosis Foundation
To fund neurofibromatosis research and education and to provide for support groups for those facing the illness.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$506K
-5.1% YoY
Annual Giving
$10K
-91.1% YoY
Grant Count
1
-66.7% YoY
Avg Grant Size
$10K
-73.2% YoY
About Texas Neurofibromatosis Foundation
Based on IRS filings
Texas Neurofibromatosis Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in IRVING, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $506K in total assets. In 2024, it awarded 1 grants totaling $10K. Net investment income was $23K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $505,675 | $532,847 | $590,826 |
| Revenue | $616,238 | $646,731 | $564,208 |
| Expenses | $623,837 | $692,762 | $576,691 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $23,478 | $20,560 | $2,426 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
9 grants across all recorded years
Open Grants
1 open opportunity from Texas Neurofibromatosis Foundation
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Laura G Lyon | Director/President | 5 | — |
| Liana Olinger | Director/ VP | 5 | — |
| Tricia Madden | Director/Secretary | 5 | — |
| Janie Perleman | Director | 1 | — |
| Tammy Benson O'Brien | Director | 1 | — |
| Jane Hoskins | Director | 1 | — |
| Scott Remphrey | Director | 1 | — |
| Jon Keith | Director | 1 | — |
| John Slopis MD | Director | 1 | — |
| Jeff Davidson | Director | 1 | — |
| Katie Lange | Treasurer | 1 | — |
| Edel Cuadra | Director | 1 | — |
| Kathryn Loo | Director | 1 | — |
| Krista Comfort | Director | 1 | — |
| Jane Perelman | Director | 1 | — |
| Cindy Hahn | Executive Director | 40 | $84,000 |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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