Texas Neurofibromatosis Foundation
To fund neurofibromatosis research and education and to provide for support groups for those facing the illness.
Texas Neurofibromatosis Foundation at a glance
In short: Texas Neurofibromatosis Foundation gave $10K across 1 grant in 2024 (avg $10K), mostly in Texas. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $10,000
- -91.1% vs 2023
- Grants made (2024)
- 1
- -66.7% vs 2023
- Average grant
- $10,000
- -73.2% vs 2023
- Median grant
- $10,000
- Total assets
- $505,675
- -5.1% vs 2023
- Primary geography
- Texas (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Texas Neurofibromatosis Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was El Paso Dermatology ($10K).
Grant Size Distribution
8 grants across all recorded years
The most common grant size was under $50K: 8 grants of 8 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
How Texas Neurofibromatosis Foundation gives
- Giving fell 67% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $10K (2024) to $112K (2023). In 2024 it made 1 grant totaling $10K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| El Paso Dermatology El Paso, TX | Clinic aid | $10,000 |
Ready to take the next step with Texas Neurofibromatosis Foundation?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $505,675 | $616,238 | $623,837 | $10,000 | 1 | $23,478 |
| 2023 | $532,847 | $646,731 | $692,762 | $112,000 | 3 | $20,560 |
| 2022 | $590,826 | $564,208 | $576,691 | $45,000 | 2 | $2,426 |
| 2021 | $579,783 | $347,948 | $330,225 | $30,000 | 1 | $10,045 |
| 2020 | $618,464 | $263,365 | $351,222 | $15,000 | 1 | $4,416 |
About Texas Neurofibromatosis Foundation
Based on IRS filings
Texas Neurofibromatosis Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Irving, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $506K in total assets. In 2024, it awarded 1 grant totaling $10K. Net investment income was $23K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Texas Neurofibromatosis Foundation is led by Cindy Hahn, Executive Director on every filing since 2020; 1 of 16 officers listed in 2024 is compensated.
Officers on the 2024 filing
Cindy Hahn
Executive Director
On filings since 2020
40 hrs/week
$76K (2020) → $84K (2024)
Laura G Lyon
Director & President
On filings since 2020
5 hrs/week
No compensation reported
Edel Cuadra
Director
On filings since 2020
1 hr/week
No compensation reported
Jane Hoskins
Director
On filings since 2020
1 hr/week
No compensation reported
Jane Perelman
Director
On filings since 2020
1 hr/week
No compensation reported
Jeff Davidson
Director
On filings since 2020
1 hr/week
No compensation reported
John Slopis MD
Director
On filings since 2020
1 hr/week
No compensation reported
Jon Keith
Director
On filings since 2020
1 hr/week
No compensation reported
Kathryn Loo
Director
Treasurer → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
Scott Remphrey
Director
On filings since 2020
1 hr/week
No compensation reported
Tammy Benson O'Brien
Director
On filings since 2020
1 hr/week
No compensation reported
Tricia Madden
Director & Secretary
On filings since 2020
5 hrs/week
No compensation reported
Janie Perleman
Director
On filings since 2023
1 hr/week
No compensation reported
Liana Olinger
Director & Vice President
On filings since 2023
5 hrs/week
No compensation reported
Krista Comfort
Director
New on the 2024 filing
1 hr/week
No compensation reported
Katie Lange
Treasurer
Director → Treasurer, 2024
On filings since 2020
1 hr/week
No compensation reported
Former officers (5)
- Former: Bob Boronow (2020–2023) — Director
- Former: John Lowe (2020–2023) — Director
- Former: Laina Olinger (2020–2022) — Director & Vice President
- Former: Paul Schrier (2020–2022) — Director
- Former: Chris Cason (2020–2021) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $84K, to Cindy Hahn (Executive Director).
Frequently asked questions about Texas Neurofibromatosis Foundation
How much does Texas Neurofibromatosis Foundation give each year?
Texas Neurofibromatosis Foundation gave $10K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $112K across 3 grants.
How large is Texas Neurofibromatosis Foundation?
Texas Neurofibromatosis Foundation reported $506K in total assets on its 2024 IRS Form 990. Its revenue that year was $616K.
What is Texas Neurofibromatosis Foundation?
Texas Neurofibromatosis Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Irving, TX. It holds $506K in total assets as of 2024.
Where does Texas Neurofibromatosis Foundation operate?
Texas Neurofibromatosis Foundation has awarded grants in Texas.
What is Texas Neurofibromatosis Foundation's EIN?
Texas Neurofibromatosis Foundation's EIN (Employer Identification Number) is 74-2138345. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 18, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 14, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS June 30, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS August 6, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 23, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Texas Neurofibromatosis Foundation funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Texas Neurofibromatosis Foundation's focus areas in our free grants database
Similar Funders
Similar funders in Texas
Communities Foundation of Texas Inc
Dallas, TX
Communities Foundation of Texas funds a broad range of community needs, including health, education, housing, and community development, primarily in North Texas and across Texas. Its 2025 grants had a median of about $18,800, though amounts varied widely; nearly all opportunities are by invitation, with some specific programs open for applications.
Assets
$1.2B
Grants
2,209
Total Given
$209.2M
Greater Houston Community Foundation
Houston, TX
The Foundation makes grants through donor-advised and other donor-established funds for public benefit, human services, education, and health, including initiatives addressing economic mobility and poverty in Harris County. In 2024, its median grant was $25,000; it serves Greater Houston, while grants also go to recipients elsewhere in Texas and beyond. It does not accept proposals for the upcoming High-Impact Grantmaking cycle and plans to invite selected organizations or collaboratives to apply.
Assets
$1.1B
Grants
1,724
Total Given
$232.3M
Baker Hughes Foundation
Houston, TX
Assets
$2.2M
Grants
990
Total Given
$3.2M
BNSF Railway Foundation
Fort Worth, TX
The BNSF Railway Foundation funds civic, cultural, education, health and human services, environmental, and youth programs, including operating costs and specific projects. Its 2025 median grant was $2,500, though awards ranged from $100 to $500,000; it supports eligible organizations serving communities near BNSF rail lines across its 28 operating states. The foundation provides an online application process, but whether it accepts unsolicited requests is not stated.
Assets
$23.0M
Grants
993
Total Given
$7.0M
Community Foundation of North Texas (Tax
Fort Worth, TX
The foundation supports nonprofits and community projects in areas including animal welfare, nonprofit capacity building, first responders, land conservation, neighborhood development, opportunity and access, and scholarships. In 2024, grants ranged from $5,100 to $1.5 million, with a median of $14,250; its service area covers 11 North Texas counties. It accepts applications for some competitive grant programs through its online portal, but donor-advised grants are not open to nonprofit applications.
Assets
$544.9M
Grants
872
Total Given
$41.3M
Michael & Susan Dell Foundation
Austin, TX
The Michael & Susan Dell Foundation funds education, health, jobs and livelihoods, and family economic stability, with its deepest U.S. focus in Texas and additional work across the U.S. and internationally. In 2024 it awarded 835 grants totaling about $164.6 million; grants ranged from $75 to $50 million, with a median of $19,324. It accepts unsolicited requests through its online application process.
Assets
$7.8B
Grants
835
Total Given
$164.6M
More similar funders
More Funders in Texas
The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from Texas Neurofibromatosis Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Texas Neurofibromatosis Foundation down — hundreds of funders to go?