Spastic Paraplegia Foundation Inc
1. To fund scientific research to discover the cures for hereditary spastic paraplegia and primary lateral sclerosis. 2. To provide information about the disorders to patients and their loved ones, and to the general public. 3. To provide emotional support to patients and their loved ones
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.1M
-6.6% YoY
Annual Giving
$310K
-75.7% YoY
Grant Count
3
-50.0% YoY
Avg Grant Size
$103K
-51.4% YoY
About Spastic Paraplegia Foundation Inc
Based on IRS filings
Spastic Paraplegia Foundation Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in O FALLON, MO. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.1M in total assets. In 2024, it awarded 3 grants totaling $310K. Net investment income was $90K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,089,987 | $3,308,442 | $2,855,492 |
| Revenue | $1,730,780 | $1,324,845 | $1,249,081 |
| Expenses | $899,593 | $1,928,614 | $748,401 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $90,207 | $30,504 | $-63,697 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
9 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Emory University ($150,000), Drexel University ($150,000), Columbia University ($10,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Emory University Atlanta, GA | Modulation of Spasticity Using a Chemogenetic Approach. Led by Dr. Anthony Donsante, PhD | $150,000 |
| Drexel University Philadelphia, PA | M1 monoclonal antibodies: A new tool for detection and treatment of SPG4-HSP. Led by Dr. Peter Baas. | $150,000 |
| Columbia University New York, NY | PLS International Conference | $10,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Lorri Steiner | Treasurer | 10 | $38,350 |
| Corey Braastad | Director | 2 | — |
| Hank Chiuppi | Secretary/Director | 15 | — |
| John Cobb | Director | 5 | — |
| Tina Croghan | Director | 5 | — |
| Frank Davis | Director | 5 | — |
| Dina Landphair | Director | 5 | — |
| David Lewis | Treasurer | 2 | — |
| Greg Pruitt | President/Director | 30 | — |
| Jim Sheorn | Vice President/Director | 30 | — |
| Carina Thurgood | Director | 2 | — |
| Jackie Wellman | Director | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Spastic Paraplegia Foundation Inc?
Spastic Paraplegia Foundation Inc is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in O FALLON, MO. It holds $3.1M in total assets as of 2024.
How large is Spastic Paraplegia Foundation Inc?
As of 2024, Spastic Paraplegia Foundation Inc holds $3.1M in total assets with $1.7M in annual revenue. It awarded 3 grants totaling $310K in 2024.
Where does Spastic Paraplegia Foundation Inc operate?
Spastic Paraplegia Foundation Inc has awarded grants in Florida, Georgia, Illinois, Massachusetts, New York, Pennsylvania.
What size grants does Spastic Paraplegia Foundation Inc award?
In 2024, Spastic Paraplegia Foundation Inc awarded 3 grants totaling $310K — an average of about $103K per grant, based on its IRS Form 990 filings.
What is Spastic Paraplegia Foundation Inc's EIN?
Spastic Paraplegia Foundation Inc's EIN (Employer Identification Number) is 04-3594491. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.