Scleroderma Foundation of Greater Chicago
3 fold mission of support, education, and research. Support: to help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. Education: to promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. Research: to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
Scleroderma Foundation of Greater Chicago at a glance
- Total assets
- $3,611,524
- +4.1% vs 2023
- Revenue (2024)
- $456,038
- +10.3% vs 2023
- Net investment income (2024)
- $216,669
- -5.2% vs 2023
- Expenses (2024)
- $308,083
- -15.9% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Scleroderma Foundation of Greater Chicago funds
How this funder distributes its grants
Grant Size Distribution
4 grants across all recorded years
The most common grant size was in the $50–100K range: 3 grants of 4 (75%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
How Scleroderma Foundation of Greater Chicago gives
- Giving held roughly steady from 2020 to 2023 (−13%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2023, annual grant giving ranged from $15K (2022) to $96K (2020). In 2023 it made 1 grant totaling $84K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Scleroderma Foundation Danvers, MA | Fund Research Projects | $83,780 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $3,611,524 | $456,038 | $308,083 | — | — | $216,669 |
| 2023 | $3,470,220 | $413,276 | $366,478 | $83,780 | 1 | $228,588 |
| 2022 | $3,349,550 | $427,266 | $266,262 | $14,823 | 1 | $209,076 |
| 2021 | $3,677,722 | $389,268 | $303,970 | $81,638 | 1 | $161,391 |
| 2020 | $3,321,142 | $311,756 | $317,374 | $96,235 | 1 | $53,576 |
About Scleroderma Foundation of Greater Chicago
Based on IRS filings
Scleroderma Foundation of Greater Chicago is a public charity, based in Chicago, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.6M in total assets. Net investment income was $217K.
Leadership & Key People
Officers and directors from IRS filings
Scleroderma Foundation of Greater Chicago is led by Stephanie Gresh, Executive Director on every filing since 2020; 1 of 12 officers listed in 2024 is compensated.
Officers on the 2024 filing
Stephanie Gresh
Executive Director
On filings since 2020
40 hrs/week
$92K (2020) → $112K (2024)
Tony Cogan
President
On filings since 2020
1 hr/week
No compensation reported
Carol Goldman
Director
On filings since 2020
1 hr/week
No compensation reported
Cleetus Friedman
Director
On filings since 2020
1 hr/week
No compensation reported
David Helfand
Director
On filings since 2020
1 hr/week
No compensation reported
Jules Cogan
Director
On filings since 2020
1 hr/week
No compensation reported
Julie L. Drewniak
Director
On filings since 2020
1 hr/week
No compensation reported
Mary Carns
Director
On filings since 2020
1 hr/week
No compensation reported
Peter Goldman
Director
On filings since 2020
1 hr/week
No compensation reported
Dan Clarin
Treasurer
On filings since 2020
1 hr/week
No compensation reported
Eliisa Capstick
Secretary
On filings since 2020
1 hr/week
No compensation reported
Jennifer Bryson
Vice President
On filings since 2020
1 hr/week
No compensation reported
Former officers (1)
- Former: John Varga MD (2020–2023) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $112K, to Stephanie Gresh (Executive Director).
Frequently asked questions about Scleroderma Foundation of Greater Chicago
How large is Scleroderma Foundation of Greater Chicago?
Scleroderma Foundation of Greater Chicago reported $3.6M in total assets on its 2024 IRS Form 990. Its revenue that year was $456K.
Where does Scleroderma Foundation of Greater Chicago operate?
Scleroderma Foundation of Greater Chicago has awarded grants in Massachusetts.
What is Scleroderma Foundation of Greater Chicago's EIN?
Scleroderma Foundation of Greater Chicago's EIN (Employer Identification Number) is 36-3238642. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS July 12, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS April 25, 2024)
- IRS filings on file for fiscal years 2020–2024
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