Scleroderma Assistance Grants
Scleroderma Assistance Grants is a private foundation based in Austin, Texas. It supports people diagnosed with scleroderma by reimbursing eligible out-of-pocket expenses related to the burden of care that are not covered by insurance or other benefit programs.
Scleroderma Assistance Grants at a glance
In short: Scleroderma Assistance Grants gave $28K across 20 grants in 2025 (avg $1K), mostly in Texas. Source: 2025 IRS Form 990-PF.
- Annual giving (2025)
- $28,157
- +47.0% vs 2024
- Grants made (2025)
- 20
- +42.9% vs 2024
- Average grant
- $1,408
- +2.9% vs 2024
- Median grant
- $1,200
- Total assets
- $28,123
- +707.0% vs 2024
- Primary geography
- Texas (95% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990-PF, 2025 View filing
Data from IRS Form 990-PF, 2025; updated October 2026.
How to apply to Scleroderma Assistance Grants
- How to Apply
-
The foundation’s website says eligible applicants may apply for full or partial reimbursement. Applications are evaluated by the board based on need, the expense’s relationship to the disease, the amount needed, and the foundation’s ability to fund. Applicants must provide a copy of a scleroderma diagnosis or treatment plan issued by a health care professional. The 2025 filing lists no award restrictions and says applications may be made without a deadline.
- Contact
Application contact: Faith Rubenstein
Mailing address: 23 Hedge Lane, Austin, TX 78746
Phone: (512) 656-3872
Website: https://sclerodermaassistancegrants.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Who Scleroderma Assistance Grants funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Rochelle Stephens ($3K). Together the top 10 received $20K.
Grant Size Distribution
49 grants across all recorded years
The most common grant size was under $50K: 49 grants of 49 (100%).
Geographic Focus
Where this funder awards grants
The website describes the program as helping people diagnosed with scleroderma in Texas. In filing year 2025, 95% of grant dollars went to recipients in Texas and 5% to recipients in Arizona.
Grant Distribution by State
Share of 2025 grant dollars across all 20 itemized grants.
Cities
How Scleroderma Assistance Grants gives
- 40% of 2025 grantees were also funded in 2024. Method
- Giving grew 512% from 2022 to 2025. Method
- In 2025 it paid out well above its IRS minimum distribution (the 5% rule). Method
Estimate from itemized grant lists in IRS Form 990-PF filings (2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2025, annual grant giving ranged from $5K (2022) to $28K (2025). In 2025 it made 20 grants totaling $28K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Rochelle Stephens Longview, TX | Scleroderma | $3,000 |
| Stephani Rhoten Amarillo, TX | Scleroderma | $3,000 |
| Brenda Bowden Gilmer, TX | Scleroderma | $2,513 |
| Joel Sanchez Pearland, TX | Scleroderma | $2,500 |
| Leslie Calhoun Manvel, TX | Scleroderma | $2,000 |
| Barbara Ragsdale San Antonio, TX | Scleroderma | $1,594 |
| Kathleen Kiehl Golden Valley, AZ | Scleroderma | $1,500 |
| Peihong Edris Pearland, TX | Scleroderma | $1,500 |
| Letitia Aguilar Cotilla, TX | Scleroderma | $1,275 |
| Nhi Phan Houston, TX | Scleroderma | $1,200 |
Ready to take the next step with Scleroderma Assistance Grants?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions | Net Investment Income | Distributable Amount |
|---|---|---|---|---|---|---|---|---|
| 2025 | $28,123 | $74,632 | $29,723 | $28,157 | 20 | $28,157 | $20,755 | $490 |
| 2024 | $3,485 | $33,733 | $21,310 | $19,148 | 14 | $19,148 | $19,224 | — |
| 2023 | $15,745 | $29,080 | $15,218 | $13,396 | 10 | $13,396 | $16,558 | $546 |
| 2022 | $14,435 | $26,411 | $8,206 | $4,600 | 5 | $4,600 | $7,245 | $610 |
| 2021 | — | $5,775 | $5,775 | — | — | — | — | — |
Under IRS private-foundation payout rules, Scleroderma Assistance Grants reported a distributable amount of $490 for 2025 — the minimum it must pay out in qualifying distributions.
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
The organization says it helps with necessary expenses arising from scleroderma that are not otherwise paid for. Its website gives dog walking, lawn care, and housekeeping as examples of services that may ease the burden of the disease. It also says expenses incurred by a household member may qualify when related to scleroderma.
Grantmaking
In filing year 2025, the foundation gave 20 grants totaling $28,157. Grants ranged from $500 to $3,000, with a median of $1,200. Among the largest were $3,000 to Rochelle Stephens and $3,000 to an individual recipient; both grants listed “Scleroderma” as the purpose. Other notable awards included $2,513 to Brenda Bowden and $2,500 to Joel Sanchez, also for “Scleroderma.”
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Faith Rubenstein, Mark Eaker, and James Marinello as directors. The organization’s website identifies Rubenstein as its founder and describes her experience with systemic scleroderma and patient support. It describes Eaker as a professor and retired hedge fund manager who has supported his wife through scleroderma, and Marinello as an attorney with experience in disability-access matters and caring for people with health conditions.
Scleroderma Assistance Grants's 2025 filing lists 3 officers; none of the 3 officers listed in 2025 report compensation.
Officers on the 2025 filing
Faith Rubenstein
Director
On filings since 2021
5 hrs/week
No compensation reported
James Marinello
Director
On filings since 2021
5 hrs/week
No compensation reported
Mark Eaker
Director
On filings since 2021
5 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Scleroderma Assistance Grants
How much does Scleroderma Assistance Grants give each year?
Scleroderma Assistance Grants gave $28K across 20 grants in 2025, according to its 2025 IRS Form 990-PF. In 2024 it gave $19K across 14 grants.
What is Scleroderma Assistance Grants's typical grant size?
Scleroderma Assistance Grants's median grant in 2025 was $1,200, and its average grant was $1,408, across 20 grants on its 2025 IRS Form 990-PF.
Where does Scleroderma Assistance Grants give grants?
Scleroderma Assistance Grants gives mostly in Texas: 95% of the grant dollars itemized on its 2025 IRS Form 990-PF went to recipients there. The next largest state was Arizona (5%). The most frequent recipient cities were Pearland, TX (2 grants), San Antonio, TX (2 grants), Fulshear, TX (2 grants) and Katy, TX (2 grants).
Does Scleroderma Assistance Grants give general operating support?
Not in 2025: none of the 20 grants with a stated purpose on Scleroderma Assistance Grants's 2025 IRS Form 990-PF were described as general or operating support. Recurring purposes include "Scleroderma" (20 grants).
Who are Scleroderma Assistance Grants's largest grantees?
Scleroderma Assistance Grants's largest 2025 grantees include Rochelle Stephens ($3,000), Stephani Rhoten ($3,000) and Brenda Bowden ($2,513), according to its 2025 IRS Form 990-PF. Together they received 30% of its itemized 2025 grant dollars.
How large is Scleroderma Assistance Grants?
Scleroderma Assistance Grants reported $28K in total assets on its 2025 IRS Form 990-PF. It paid out $28K in qualifying distributions that year, against a required minimum of $490 (roughly 5% of its investment assets).
What does Scleroderma Assistance Grants fund?
The organization says it helps with necessary expenses arising from scleroderma that are not otherwise paid for. Its website gives dog walking, lawn care, and housekeeping as examples of services that may ease the burden of the disease. See mission & focus areas ↑
How do I apply for a grant from Scleroderma Assistance Grants?
The foundation’s website says eligible applicants may apply for full or partial reimbursement. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Scleroderma Assistance Grants's EIN?
Scleroderma Assistance Grants's EIN (Employer Identification Number) is 87-4001503. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated October 2026. Sourced from IRS Form 990-PF filings. Research dossier generated September 2026.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Added Form 990-PF for fiscal year 2025 (received by the IRS May 14, 2026)
- IRS filings on file for fiscal years 2021–2024
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