Progressive Familial Intrahepatic Cholestasis logo

Progressive Familial Intrahepatic Cholestasis

Public charity · Grantmaker Stanton, KY EIN: 83-1084501 Website

To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.

Key facts about Progressive Familial Intrahepatic Cholestasis

In short: Progressive Familial Intrahepatic Cholestasis gave $82K across 1 grant in 2025 (avg $82K), mostly in California. Source: 2025 IRS Form 990.

EIN
83-1084501
Latest 990 filing
Form 990, 2025
Annual giving (2025)
$81,748
Grants made (2025)
1
Average grant
$81,748
Median grant
$81,748
Total assets
$458,434
Primary geography
California (100% of itemized 2025 grant dollars)

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$458K

+115.5% YoY

Annual Giving

$82K

+132.8% YoY

Grant Count

1

Avg Grant Size

$82K

About Progressive Familial Intrahepatic Cholestasis

Based on IRS filings

Progressive Familial Intrahepatic Cholestasis is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Stanton, KY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $458K in total assets. In 2025, it awarded 1 grant totaling $82K. Net investment income was $341.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

1state

Share of the 2025 grant dollars on its one itemized grant.

States

Cities

Oakland

Giving Over Time

Total grant dollars and number of grants per year

$0$25K$50K$75K$100K0 grants2020 Total only2021 Total only2022 Total only2023 Total only2024 1 grant2025

From 2021 to 2025, annual grant giving ranged from $4K (2023) to $82K (2025). In 2025 it made 1 grant totaling $82K.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grant Insights

How this funder distributes its grants

Top Recipients

Top recipient in 2025

UCSF Benioff Childrens Hospitals: $82KUCSF Benioff ChildrensHospitals$82K

The largest 2025 recipient was UCSF Benioff Childrens Hospitals ($82K).

Grant Size Distribution

1 grant across all recorded years

<$50K1$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $50–100K range: 1 grant of 1 (100%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
UCSF Benioff Childrens Hospitals Oakland, CA—$81,748

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$250K$500K$750K$1M2020 2021 2022 2023 2024 2025
Metric202520242023
Total Assets$458,434$212,778$353,142
Revenue$696,612$352,401$365,826
Expenses$529,691$502,308$470,106
Net Investment Income$341——

Data update history

When this profile's IRS filing data changed on Grantable

  1. Added Form 990 for fiscal year 2025 (received by the IRS August 26, 2026)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS June 7, 2022)
  3. Updated Form 990 for fiscal year 2022 (received by the IRS October 16, 2023)
  4. Updated Form 990 for fiscal year 2023 (received by the IRS July 9, 2024)
  5. Updated Form 990 for fiscal year 2024 (received by the IRS July 10, 2025)

Leadership & Key People

Officers and directors from IRS filings

Progressive Familial Intrahepatic Cholestasis is led by Emily Ventura, Co-Founder Executive Director since 2021 (on filings since 2020); 2 of 8 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Emily Ventura

    Co-Founder Executive Director

    Executive Di → Co-Founder Executive Director, 2021

    On filings since 2020

    40 hrs/week

    $65K (2021) → $73K (2025)

  • Walter Perez

    President

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Erik Lontok

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Tyler Bradley

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Tara Kearns

    Co-Founder

    Vice President → Vice President Co- Founder, 2021

    Vice President Co- Founder → Co-Founder, 2025

    On filings since 2020

    2 hrs/week

    $4K (2025)

  • Erin Hovey

    Secretary

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Charmaine Gravener

    Vice President

    Director → Vice President, 2025

    On filings since 2021

    1 hr/week

    No compensation reported

  • Hayley Ardila

    Treasurer

    New on the 2025 filing

    2 hrs/week

    No compensation reported

Former officers (1)
  • Former: Hayley Watts (2020–2024) — Treasurer

Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Emily Ventura — Co-Founder Executive Director: $73KEmily VenturaCo-Founder Executive Director$73KTara Kearns — Co-Founder: $4KTara KearnsCo-Founder$4K

The highest reported compensation on the 2025 filing was $73K, to Emily Ventura (Co-Founder Executive Director). 2 officers or directors reported compensation on that filing.

Frequently asked questions about Progressive Familial Intrahepatic Cholestasis

How much does Progressive Familial Intrahepatic Cholestasis give each year?

Progressive Familial Intrahepatic Cholestasis gave $82K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it reported $35K in grants paid.

How large is Progressive Familial Intrahepatic Cholestasis?

Progressive Familial Intrahepatic Cholestasis reported $458K in total assets on its 2025 IRS Form 990. Its revenue that year was $697K.

What is Progressive Familial Intrahepatic Cholestasis?

Progressive Familial Intrahepatic Cholestasis is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Stanton, KY. It holds $458K in total assets as of 2025.

Where does Progressive Familial Intrahepatic Cholestasis operate?

Progressive Familial Intrahepatic Cholestasis has awarded grants in California.

What is Progressive Familial Intrahepatic Cholestasis's EIN?

Progressive Familial Intrahepatic Cholestasis's EIN (Employer Identification Number) is 83-1084501. IRS Form 990 filing data is available on this page for 2020–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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