Progressive Familial Intrahepatic Cholestasis
To improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC.
Progressive Familial Intrahepatic Cholestasis at a glance
In short: Progressive Familial Intrahepatic Cholestasis gave $82K across 1 grant in 2025 (avg $82K), mostly in California. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $81,748
- +132.8% vs 2024
- Grants made (2025)
- 1
- Average grant
- $81,748
- Median grant
- $81,748
- Total assets
- $458,434
- +115.5% vs 2024
- Primary geography
- California (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Progressive Familial Intrahepatic Cholestasis funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was UCSF Benioff Childrens Hospitals ($82K).
Grant Size Distribution
1 grant across all recorded years
The most common grant size was in the $50–100K range: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $4K (2023) to $82K (2025). In 2025 it made 1 grant totaling $82K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| UCSF Benioff Childrens Hospitals Oakland, CA | — | $81,748 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $458,434 | $696,612 | $529,691 | $81,748 | 1 | $341 |
| 2024 | $212,778 | $352,401 | $502,308 | $35,119 | Total only | — |
| 2023 | $353,142 | $365,826 | $470,106 | $3,606 | Total only | — |
| 2022 | $487,255 | $270,986 | $527,048 | $30,000 | Total only | — |
| 2021 | $718,340 | $808,755 | $235,204 | $8,000 | Total only | — |
| 2020 | $99,034 | $101,541 | $77,107 | — | — | — |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Progressive Familial Intrahepatic Cholestasis
Based on IRS filings
Progressive Familial Intrahepatic Cholestasis is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Stanton, KY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $458K in total assets. In 2025, it awarded 1 grant totaling $82K. Net investment income was $341.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Progressive Familial Intrahepatic Cholestasis is led by Emily Ventura, Co-Founder Executive Director since 2021 (on filings since 2020); 2 of 8 officers listed in 2025 are compensated.
Officers on the 2025 filing
Emily Ventura
Co-Founder Executive Director
Executive Di → Co-Founder Executive Director, 2021
On filings since 2020
40 hrs/week
$65K (2021) → $73K (2025)
Walter Perez
President
On filings since 2020
2 hrs/week
No compensation reported
Erik Lontok
Director
On filings since 2024
1 hr/week
No compensation reported
Tyler Bradley
Director
New on the 2025 filing
1 hr/week
No compensation reported
Tara Kearns
Co-Founder
Vice President → Vice President Co- Founder, 2021
Vice President Co- Founder → Co-Founder, 2025
On filings since 2020
2 hrs/week
$4K (2025)
Erin Hovey
Secretary
On filings since 2020
2 hrs/week
No compensation reported
Charmaine Gravener
Vice President
Director → Vice President, 2025
On filings since 2021
1 hr/week
No compensation reported
Hayley Ardila
Treasurer
New on the 2025 filing
2 hrs/week
No compensation reported
Former officers (1)
- Former: Hayley Watts (2020–2024) — Treasurer
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $73K, to Emily Ventura (Co-Founder Executive Director). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Progressive Familial Intrahepatic Cholestasis
How much does Progressive Familial Intrahepatic Cholestasis give each year?
Progressive Familial Intrahepatic Cholestasis gave $82K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it reported $35K in grants paid.
How large is Progressive Familial Intrahepatic Cholestasis?
Progressive Familial Intrahepatic Cholestasis reported $458K in total assets on its 2025 IRS Form 990. Its revenue that year was $697K.
What is Progressive Familial Intrahepatic Cholestasis?
Progressive Familial Intrahepatic Cholestasis is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Stanton, KY. It holds $458K in total assets as of 2025.
Where does Progressive Familial Intrahepatic Cholestasis operate?
Progressive Familial Intrahepatic Cholestasis has awarded grants in California.
What is Progressive Familial Intrahepatic Cholestasis's EIN?
Progressive Familial Intrahepatic Cholestasis's EIN (Employer Identification Number) is 83-1084501. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS August 26, 2026)
- Updated Form 990 for fiscal year 2021 (received by the IRS June 7, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 16, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS July 9, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 10, 2025)
Live grants for the work Progressive Familial Intrahepatic Cholestasis funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
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