New Jersey Rett Syndrome Association
To increase public understanding of the rett syndrome, its nature and treatment; to research rett syndrome and reduce the stigma of the same by means of education of the community concerning rett syndrome as a disease and public health problem; to maintain a rett syndrome.
New Jersey Rett Syndrome Association at a glance
In short: New Jersey Rett Syndrome Association gave $50K across 3 grants in 2025 (avg $17K), top state Ohio. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $50,000
- Grants made (2025)
- 3
- Average grant
- $16,667
- Median grant
- $20,000
- Total assets
- $52,358
- -17.1% vs 2024
- Primary geography
- Ohio (40% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated October 2026.
Who New Jersey Rett Syndrome Association funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2025
The largest 2025 recipient was International Rett Syndrome Foundat ($20K). Together the top 3 received $50K.
Grant Size Distribution
12 grants across all recorded years
The most common grant size was under $50K: 12 grants of 12 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 3 itemized grants.
States
Cities
How New Jersey Rett Syndrome Association gives
- Giving held roughly steady from 2022 to 2025 (−11%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $42K (2023) to $70K (2021). In 2025 it made 3 grants totaling $50K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| International Rett Syndrome Foundat Cincinnati, OH | To Help Fund Researc | $20,000 |
| Rett Syndrome Research Trust Trumbull, CT | To Help Fund Researc | $20,000 |
| Montefiore Medical Center-Rett Cent Bronx, NY | To Help Fund Researc | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $52,358 | $44,467 | $55,261 | $50,000 | 3 | — |
| 2024 | $63,152 | $29,783 | $5,705 | — | — | — |
| 2023 | $39,074 | $21,485 | $45,829 | $42,000 | 3 | — |
| 2022 | $63,418 | $56,958 | $62,199 | $56,000 | 3 | — |
| 2021 | $68,659 | $55,470 | $74,873 | $70,000 | 3 | $63 |
About New Jersey Rett Syndrome Association
Based on IRS filings
New Jersey Rett Syndrome Association is a public charity focused on Medical Research, based in Freehold, NJ. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $52K in total assets. In 2025, it awarded 3 grants totaling $50K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
New Jersey Rett Syndrome Association is led by Leslie Greenfield, Executive Director on every filing since 2021; none of the 6 officers listed in 2025 report compensation.
Officers on the 2025 filing
Leslie Greenfield
Executive Director
On filings since 2021
20 hrs/week
No compensation reported
Steve Medlin
Trustee
On filings since 2021
5 hrs/week
No compensation reported
Carl Raso MD
Trustee
On filings since 2022
20 hrs/week
No compensation reported
Carla Benetatos
Trustee
On filings since 2022
5 hrs/week
No compensation reported
Gerard Saydah
Trustee
On filings since 2022
5 hrs/week
No compensation reported
Robin Diamond
Treasurer
On filings since 2021
20 hrs/week
No compensation reported
Former officers (3)
- Former: James E. Wark MD (2021) — Vice President
- Former: Kapila Seshadri MD (2021) — President
- Former: Sharon Lutz Hornaday Mswlswcps (2021) — Trustee
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about New Jersey Rett Syndrome Association
How much does New Jersey Rett Syndrome Association give each year?
New Jersey Rett Syndrome Association gave $50K across 3 grants in 2025, according to its 2025 IRS Form 990.
What is New Jersey Rett Syndrome Association's typical grant size?
New Jersey Rett Syndrome Association's median grant in 2025 was $20,000, and its average grant was $16,667, across 3 grants on its 2025 IRS Form 990.
Where does New Jersey Rett Syndrome Association give grants?
New Jersey Rett Syndrome Association's top state is Ohio, with 40% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Connecticut (40%) and New York (20%).
Does New Jersey Rett Syndrome Association give general operating support?
Not in 2025: none of the 3 grants with a stated purpose on New Jersey Rett Syndrome Association's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "To Help Fund Researc" (3 grants).
How large is New Jersey Rett Syndrome Association?
New Jersey Rett Syndrome Association reported $52K in total assets on its 2025 IRS Form 990. Its revenue that year was $44K.
What is New Jersey Rett Syndrome Association?
New Jersey Rett Syndrome Association is a public charity focused on Medical Research, based in Freehold, NJ. It holds $52K in total assets as of 2025.
What is New Jersey Rett Syndrome Association's EIN?
New Jersey Rett Syndrome Association's EIN (Employer Identification Number) is 26-1359425. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS May 13, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 10, 2024)
- Added Form 990 for fiscal year 2025 (received by the IRS May 14, 2026)
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