Neuroendocrine Tumor Research Foundation
The Neuroendocrine Tumor Research Foundation (NETRF) is a public charity based in Quincy, Massachusetts, that funds research on neuroendocrine cancers. Its website describes it as a global funder of basic, translational, and clinical research, with a mission to accelerate scientific discovery and support the development of more effective therapies.
Neuroendocrine Tumor Research Foundation at a glance
In short: Neuroendocrine Tumor Research Foundation gave $1.4M across 10 grants in 2025 (avg $143K), top state California. 50% of 2025 grantees were new. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $1,432,223
- -23.0% vs 2024
- Grants made (2025)
- 10
- -9.1% vs 2024
- Average grant
- $143,222
- -15.3% vs 2024
- Median grant
- $95,974
- Total assets
- $27,566,655
- +29.0% vs 2024
- New grantees (estimate)
- 50% first-time grantees (5 of 10, 2025; small sample)
- Primary geography
- California (42% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to Neuroendocrine Tumor Research Foundation
- How to Apply
-
Review the guidelines for the relevant award and apply through the award’s application process. Requests must align with a specific award.
- Contact
Mailing address: 100 Hancock St Third Floor, Quincy, MA 02171
Phone: (617) 946-1780
Website: https://netrf.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Open Grants
5 open opportunities from Neuroendocrine Tumor Research Foundation
Accelerator Awards
Neuroendocrine Tumor Research Foundation
Amount
Varies
Deadline
Deadline not published
Collaborative Grants and Projects
Neuroendocrine Tumor Research Foundation
Amount
Varies
Deadline
Deadline not published
Investigator Awards
Neuroendocrine Tumor Research Foundation
Amount
Varies
Deadline
Deadline not published
Who Neuroendocrine Tumor Research Foundation funds
How this funder distributes its grants
Top Recipients
Top 9 recipients in 2025
The largest 2025 recipient was The Board of Trustees of the Leland Stanford Junior University ($257K). Together the top 9 received $1.2M.
Organizations only. It also paid 1 grant to individuals ($257,356), which are not listed by name.
Grant Size Distribution
47 grants across all recorded years
The most common grant size was in the $250–500K range: 17 grants of 47 (36%).
Geographic Focus
Where this funder awards grants
NETRF describes its research funding as global. In 2025, its grant dollars went to recipients in multiple states: California received 42%, Michigan 18%, New York 13%, Massachusetts 13%, and Nebraska 7%. These shares do not account for all grant dollars.
Grant Distribution by State
Share of 2025 grant dollars across all 10 itemized grants.
States
Cities
Is Neuroendocrine Tumor Research Foundation open to new grantees?
50%
first-time grantees, 2025
In 2025, 5 of 10 grantees (50%) were first-time recipients. With only 10 grantees, that is a small sample: one grantee more or less moves the share by about 10 points. First grants averaged $158K; repeat grants $129K. How we count
Medians: $95K first-time, $97K repeat.
- 40% of 2025 grantees were also funded in 2024. Method
- Giving held roughly steady from 2022 to 2025 (+18%). Method
Estimate from itemized grant lists in IRS Form 990 filings (2019–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $1.1M (2023) to $3.5M (2021). In 2025 it made 10 grants totaling $1.4M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The Board of Trustees of the Leland Stanford Junior University Stanford, CA | Research | $257,356 |
| The Regents of University University of California Irvine Irvine, CA | Research | $257,356 |
| 1 grant to individuals Recipients not named | — | $257,356 |
| Education and Research Foundation Omaha, NE | Research | $100,000 |
| North Amer Neuroendocrine Tumor Society Albany, NY | Research | $96,630 |
| Dana-Farber Cancer Institute Boston, MA | Research | $95,317 |
| University of Colorado Denver AMC and DC Denver, CO | Research | $95,317 |
| Columbia University Irving Medical Center New York, NY | Research | $95,317 |
| Beckman Research Institute of the City of Hope Duarte, CA | Research | $88,787 |
| Johns Hopkins University School of Medicine Baltimore, MA | Research | $88,787 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $27,566,655 | $8,684,021 | $4,788,567 | $1,432,223 | 10 | $785,476 |
| 2024 | $21,377,613 | $3,993,657 | $3,778,477 | $1,859,056 | 11 | $855,797 |
| 2023 | $20,633,243 | $3,196,257 | $3,580,473 | $1,100,000 | 6 | $637,647 |
| 2022 | $20,523,118 | $3,075,371 | $3,490,037 | $1,210,000 | 8 | $637,549 |
| 2021 | $26,608,419 | $8,207,303 | $5,440,887 | $3,500,000 | 12 | $838,328 |
| 2020 | $23,779,492 | $4,650,373 | $4,020,651 | $1,220,000 | 8 | $650,766 |
| 2019 | $22,312,772 | $5,224,012 | $5,992,524 | $3,274,757 | 11 | $486,926 |
Research compiled by Grantable AI from public sources. Last updated October 2026.
Mission & Focus Areas
NETRF’s stated mission is to fund research to discover cures and more effective treatments for neuroendocrine cancers, while improving the lives of people affected by the disease through information and educational resources.
Its website describes three research pillars: early detection, new therapeutic development, and precision medicine. NETRF supports basic, translational, and clinical research, and its funding programs include Accelerator, Investigator, Pilot, and Mentored Research Awards. The website says grant awards range from $100,000 to $800,000.
The 2025 grants were designated for research and went to universities, medical centers, research institutes, and a neuroendocrine tumor society. Among the supported organizations, the Education and Research Foundation describes its mission as advancing healthcare through grants and awards in nuclear medicine and molecular imaging. The North American Neuroendocrine Tumor Society says its mission is to improve neuroendocrine tumor disease management through increased research and educational opportunities. Beckman Research Institute of the City of Hope describes its primary purpose as conducting medical research.
Grantmaking
In filing year 2025, NETRF reported 10 grants totaling $1,432,223. Grant amounts ranged from $88,787 to $257,356, with a median of $95,974. The three largest grants were $257,356 each, to Stanford University, the University of California, Irvine, and the University of Michigan Medical Center, all for research. Other grants included $100,000 to the Education and Research Foundation and $96,630 to the North American Neuroendocrine Tumor Society, both for research.
NETRF’s website says requests must align with a specific research award. Applicants may submit letters of intent to more than one program but may submit only one application per cycle; an awardee may hold only one NETRF-sponsored award at a time. The website describes the grant review process as rigorous and competitive and directs applicants to review the program guidelines and application process. It does not specify application materials or a deadline in the information provided here.
Leadership & Key People
Leadership team and compensation from IRS filings
The 2025 filing lists Todd Gilman as president and Josh Mailman as treasurer. Directors listed on the filing are Mark Lewis, Valorie Seyfert, Laurie Rains, Anthony Detre, Elaine Nord, Stephen Kaufer, and Joseph Li. Julie Shaffer Mebane is listed as vice president.
Neuroendocrine Tumor Research Foundation is led by Elyse Gellerman, Chief Executive Officer on every filing since 2019; 4 of 16 officers listed in 2025 are compensated.
Officers on the 2025 filing
Elyse Gellerman
Chief Executive Officer
On filings since 2019
40 hrs/week
$179K (2019) → $213K (2025)
Todd Gilman
President
Vice Chair → President, 2022
On filings since 2019
4 hrs/week
No compensation reported
Anna Greene
Director of Research
On filings since 2024
40 hrs/week
$137K (2024) → $155K (2025)
Jessica Thomas
Director of Patient Education
On filings since 2024
40 hrs/week
$112K (2024) → $123K (2025)
Anthony Detre
Director
On filings since 2019
4 hrs/week
No compensation reported
Joseph Li MD
Director
Chair → Director, 2022
On filings since 2019
4 hrs/week
No compensation reported
Stephen Kaufer
Director
On filings since 2019
4 hrs/week
No compensation reported
Laurie Rains
Director
On filings since 2020
4 hrs/week
No compensation reported
Laurie Littlepage
Director
On filings since 2023
4 hrs/week
No compensation reported
Carrie Camino
Director
On filings since 2024
4 hrs/week
No compensation reported
Elaine Nord
Director
New on the 2025 filing
4 hrs/week
No compensation reported
Valorie Seyfert
Director
New on the 2025 filing
4 hrs/week
No compensation reported
Susan Harrington
Chief Development Officer
On filings since 2023
40 hrs/week
$159K (2023) → $199K (2025)
Josh Mailman
Treasurer
On filings since 2019
4 hrs/week
No compensation reported
Julie Shaffer Mebane
Vice President
Director → Vice President, 2022
On filings since 2020
4 hrs/week
No compensation reported
Suzanne Ludlow
Secretary
Director → Secretary, 2024
On filings since 2022
4 hrs/week
No compensation reported
Former officers (9)
- Former: Mark Lewis MD (2019–2025) — Director · Filing note: Until 032025
- Former: Brendan Foley (2019–2024) — Secretary · Filing note: Until 62024
- Former: Jonathan Soroff (2019–2024) — Director · Filing note: Until 012024
- Former: Stephen Blackwood PhD (2019–2024) — Director
- Former: Christina Coffey (2022–2024) — Director of Communications · Filing note: Until 072024
- Former: Susan H. Payson (2019–2022) — Chief Development Officer
- Former: John Kanki (2020–2022) — Director of Research
- Former: Carol Branaman (2019) — Vice Chair to June
- Former: James Panagis (2019) — Clerk
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $213K, to Elyse Gellerman (Chief Executive Officer). 4 officers or directors reported compensation on that filing.
Frequently asked questions about Neuroendocrine Tumor Research Foundation
How much does Neuroendocrine Tumor Research Foundation give each year?
Neuroendocrine Tumor Research Foundation gave $1.4M across 10 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $1.9M across 11 grants.
What is Neuroendocrine Tumor Research Foundation's typical grant size?
Neuroendocrine Tumor Research Foundation's median grant in 2025 was $95,974, and its average grant was $143,222, across 10 grants on its 2025 IRS Form 990. Organizations receiving their first grant from Neuroendocrine Tumor Research Foundation that year got $158K on average.
Where does Neuroendocrine Tumor Research Foundation give grants?
Neuroendocrine Tumor Research Foundation's top state is California, with 42% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Michigan (18%) and New York (13%).
Does Neuroendocrine Tumor Research Foundation give general operating support?
Not in 2025: none of the 10 grants with a stated purpose on Neuroendocrine Tumor Research Foundation's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (10 grants).
Who are Neuroendocrine Tumor Research Foundation's largest grantees?
Neuroendocrine Tumor Research Foundation's largest 2025 grantees include The Board of Trustees of the Leland Stanford Junior University ($257,356), The Regents of University University of California Irvine ($257,356) and Education and Research Foundation ($100,000), according to its 2025 IRS Form 990. It also paid 1 grant to individuals ($257,356), which are not listed by name. Together they received 43% of its itemized 2025 grant dollars.
How large is Neuroendocrine Tumor Research Foundation?
Neuroendocrine Tumor Research Foundation reported $27.6M in total assets on its 2025 IRS Form 990. Its revenue that year was $8.7M.
What does Neuroendocrine Tumor Research Foundation fund?
NETRF’s stated mission is to fund research to discover cures and more effective treatments for neuroendocrine cancers, while improving the lives of people affected by the disease through information and educational resources. See mission & focus areas ↑
How do I apply for a grant from Neuroendocrine Tumor Research Foundation?
Review the guidelines for the relevant award and apply through the award’s application process. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Neuroendocrine Tumor Research Foundation's EIN?
Neuroendocrine Tumor Research Foundation's EIN (Employer Identification Number) is 20-1945347. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated October 2026.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS May 13, 2021)
- Updated Form 990 for fiscal year 2025 (received by the IRS April 30, 2026)
- Added Form 990 for fiscal year 2019 (received by the IRS May 22, 2020)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 12, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 8, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS April 23, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS April 30, 2025)
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Cite this profile
Grantable. (2026). Neuroendocrine Tumor Research Foundation funder profile. GrantGraph. Retrieved October 10, 2026, from https://grantable.co/funders/neuroendocrine-tumor-research-foundation-morg_5185c0ad502941dba5db457aac96cf56
BibTeX
@misc{grantable_201945347_2026,
author = {{Grantable}},
title = {{Neuroendocrine Tumor Research Foundation funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/neuroendocrine-tumor-research-foundation-morg_5185c0ad502941dba5db457aac96cf56},
note = {Accessed 2026-10-10. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Neuroendocrine Tumor Research Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Neuroendocrine Tumor Research Foundation down — hundreds of funders to go?