National Headache Foundation
THE NATIONAL HEADACHE FOUNDATION (NHF) AIMS TO CREATE A FUTURE WHERE EVERYONE IN THE WORLD WITH HEADACHE CAN THRIVE IN OPTIMAL, FUNCTIONAL AND CONNECTED LIVES. SUPPORT IS ALIGNED TO THREE PILLARS: (1) RESILIENT AND FUNCTIONAL LIVING, (2) MEDICAL UNDERSTANDING AND ADVANCEMENTS, (3) COMMUNITY-CENTERED INSIGHTS AND EMPOWERED ENGAGEMENT. NHF'S NATIONWIDE PROGRAMS PROMOTE GREATER PUBLIC AWARENESS, EDUCATION, AND ADVOCACY OF HEADACHE MEDICINE THROUGHOUT THE CONTINUUM OF EXPERIENCES FROM DIAGNOSIS, CARE, PREVENTION, AND TREATMENT. THESE PROGRAMS SUPPORT PATIENTS, CARE PARTNERS, HEALTHCARE PRACTITIONERS, PAYERS, AND POLICYMAKERS BY INTEGRATING VARIOUS CHANNELS LIKE WEBSITES, MOBILE APP, SOCIAL MEDIA, EMAIL, AND IN PERSON TO CREATE A UNIFIED AND PERSONALIZED JOURNEY FOR ALL THEY SERVE.
Key facts about National Headache Foundation
In short: National Headache Foundation gave $95K across 2 grants in 2024 (avg $48K), mostly in Illinois. Source: 2024 IRS Form 990 filing.
- EIN
- 23-7073022
- Latest 990 filing
- Form 990 filing, 2024
- Annual giving (2024)
- $95,000
- Grants made (2024)
- 2
- Average grant
- $47,500
- Median grant
- $47,500
- Total assets
- $5,672,133
- Primary geography
- Illinois (87% of itemized 2024 grant dollars)
Data from IRS Form 990 filing, 2024; updated September 2026.
Quick answers about National Headache Foundation
How much does National Headache Foundation give each year?
National Headache Foundation gave $95K across 2 grants in 2024, according to its 2024 IRS Form 990 filing. In 2023 it gave $52K across 2 grants.
How National Headache Foundation gives
- Giving fell 41% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Next steps with National Headache Foundation
- How to evaluate National Headache Foundation as a funder
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Financial Overview
From 2024 IRS Form 990 filing · View filing
Total Assets
$5.7M
-7.9% YoY
Annual Giving
$95K
+83.4% YoY
Grant Count
2
+0.0% YoY
Avg Grant Size
$48K
+83.4% YoY
About National Headache Foundation
Based on IRS filings
National Headache Foundation is a nonprofit organization, based in Chicago, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $5.7M in total assets. In 2024, it awarded 2 grants totaling $95K. Net investment income was $605K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 2 itemized 2024 grant dollars.
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $5,672,133 | $6,161,538 | $6,410,857 |
| Revenue | $1,406,193 | $1,221,979 | $4,373,471 |
| Expenses | $1,661,730 | $1,598,304 | $1,750,324 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $604,904 | $285,892 | $73,526 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
10 grants across all recorded years
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| MILES FOR MIGRAINE FELLOWSHIP - RUSH UNIVERSITY Chicago, IL | SEYMOUR DIAMOND MD HEADACHE MEDICINE FELLOWSHIP - A GRANT FOR GRADUATE MEDICAL EDUCATION TRAINEES (FELLOWS) | $82,500 |
| ARIZONA STATE UNIVERSITY Tempe, AZ | FUNDING FOR STUDY TITLED: TOWARDS AN OPTIMIZED WHITE LIGHT SPECTRUM AND INTENSITY FOR MIGRAINES | $12,500 |
Leadership & Key People
Officers and directors from IRS filings
National Headache Foundation is led by Susan Stone, CEO & Executive Director since 2023 (on filings since 2020); 2 of 19 officers listed in 2024 are compensated.
Officers on the 2024 filing
Susan Stone
CEO & Executive Director
Director → CEO & Executive Director, 2023
On filings since 2020
40 hrs/week
$64K (2023) → $195K (2024)
Vincent Martin MD
President
On filings since 2020
1 hr/week
No compensation reported
Jill Dehlin RN
Director
Secretary → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
John Richards
Director
On filings since 2020
1 hr/week
No compensation reported
Katherine Kessler Esq.
Director
On filings since 2020
1 hr/week
No compensation reported
Timothy R. Smith MD
Director
First Vice President → Director, 2021
On filings since 2020
1 hr/week
No compensation reported
Michael P. Pollack
Director
On filings since 2021
1 hr/week
No compensation reported
Paul D. Mathew MD
Director
On filings since 2021
1 hr/week
No compensation reported
Jackie Duvall MD
Director
On filings since 2022
1 hr/week
No compensation reported
Jason Sico MD
Director
On filings since 2022
1 hr/week
No compensation reported
Hope O'Brien MD
Director
On filings since 2023
1 hr/week
No compensation reported
Mark Green MD
Director
On filings since 2023
1 hr/week
No compensation reported
Fred Cohen
Director
New on the 2024 filing
1 hr/week
No compensation reported
Nelson Costa
Director
New on the 2024 filing
1 hr/week
No compensation reported
Maureen Ballay
Assistant Vice President - Finance & Operations
Assistant Vice President - Finance, Operations & Administration → Assistant Vice President - Finance & Operations, 2024
On filings since 2023
40 hrs/week
$103K (2023) → $114K (2024)
Emily Kandel
Vice President
Second Vice President → Vice President, 2021
On filings since 2020
1 hr/week
No compensation reported
Konrad Kothmann
Treasurer
Director → Treasurer, 2021
On filings since 2020
1 hr/week
No compensation reported
Margot Andersen
Secretary
Director → Secretary, 2024
On filings since 2020
1 hr/week
No compensation reported
Merle Diamond MD
Vice President
Director → Vice President, 2024
On filings since 2020
1 hr/week
No compensation reported
Former officers (7)
- Former: Jan Lewis Brandes MD (2020–2023) — Vice President
- Former: Roger K. Cady MD (2020–2023) — Vice President
- Former: Thomas Dabertin (2021–2023) — Former Executive Director
- Former: Tad D. Seifert MD (2020–2021) — Director
- Former: Chad J. Beste (2020) — Treasurer
- Former: James Beasley (2020) — Director
- Former: Marc D. Lefkowitz (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
Frequently Asked Questions
How large is National Headache Foundation?
As of 2024, National Headache Foundation holds $5.7M in total assets with $1.4M in annual revenue. It awarded 2 grants totaling $95K in 2024.
Where does National Headache Foundation operate?
National Headache Foundation has awarded grants in Arizona, Connecticut, Illinois, Michigan, Missouri, North Carolina, Vermont.
What is National Headache Foundation's EIN?
National Headache Foundation's EIN (Employer Identification Number) is 23-7073022. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated September 2026. Sourced from IRS Form 990 filings.