National Headache Foundation
The National Headache Foundation (NHF) aims to create a future where everyone in the world with headache can thrive in optimal, functional and connected lives. Support is aligned to three pillars: (1) resilient and functional living, (2) medical understanding and advancements, (3) community-centered insights and empowered engagement. NHF's nationwide programs promote greater public awareness, education, and advocacy of headache medicine throughout the continuum of experiences from diagnosis, care, prevention, and treatment. These programs support patients, care partners, healthcare practitioners, payers, and policymakers by integrating various channels like websites, mobile app, social media, email, and in person to create a unified and personalized journey for all they serve.
National Headache Foundation at a glance
In short: National Headache Foundation gave $95K across 2 grants in 2024 (avg $48K), mostly in Illinois. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $95,000
- +83.4% vs 2023
- Grants made (2024)
- 2
- +0.0% vs 2023
- Average grant
- $47,500
- +83.4% vs 2023
- Median grant
- $47,500
- Total assets
- $5,672,133
- -7.9% vs 2023
- Primary geography
- Illinois (87% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who National Headache Foundation funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
The largest 2024 recipient was Miles for Migraine Fellowship - Rush University ($83K). Together the top 2 received $95K.
Grant Size Distribution
10 grants across all recorded years
The most common grant size was under $50K: 7 grants of 10 (70%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 2 itemized grants.
Cities
How National Headache Foundation gives
- Giving fell 41% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $12K (2020) to $160K (2021). In 2024 it made 2 grants totaling $95K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Miles for Migraine Fellowship - Rush University Chicago, IL | Seymour diamond md headache medicine fellowship - a grant for graduate medical education trainees (fellows) | $82,500 |
| Arizona State University Tempe, AZ | Funding for study titled: towards an optimized white light spectrum and intensity for migraines | $12,500 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $5,672,133 | $1,406,193 | $1,661,730 | $95,000 | 2 | $604,904 |
| 2023 | $6,161,538 | $1,221,979 | $1,598,304 | $51,790 | 2 | $285,892 |
| 2022 | $6,410,857 | $4,373,471 | $1,750,324 | $83,333 | 2 | $73,526 |
| 2021 | $3,776,379 | $2,360,785 | $1,446,928 | $160,242 | 1 | $151,678 |
| 2020 | $2,418,040 | $1,328,229 | $1,333,527 | $12,473 | 3 | $307,749 |
About National Headache Foundation
Based on IRS filings
National Headache Foundation is a public charity, based in Chicago, IL. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $5.7M in total assets. In 2024, it awarded 2 grants totaling $95K. Net investment income was $605K.
Leadership & Key People
Officers and directors from IRS filings
National Headache Foundation is led by Susan Stone, CEO & Executive Director since 2023 (on filings since 2020); 2 of 19 officers listed in 2024 are compensated.
Officers on the 2024 filing
Susan Stone
CEO & Executive Director
Director → CEO & Executive Director, 2023
On filings since 2020
40 hrs/week
$64K (2023) → $195K (2024)
Vincent Martin MD
President
On filings since 2020
1 hr/week
No compensation reported
Jill Dehlin RN
Director
Secretary → Director, 2024
On filings since 2020
1 hr/week
No compensation reported
John Richards
Director
On filings since 2020
1 hr/week
No compensation reported
Katherine Kessler Esq.
Director
On filings since 2020
1 hr/week
No compensation reported
Timothy R. Smith MD
Director
First Vice President → Director, 2021
On filings since 2020
1 hr/week
No compensation reported
Michael P. Pollack
Director
On filings since 2021
1 hr/week
No compensation reported
Paul D. Mathew MD
Director
On filings since 2021
1 hr/week
No compensation reported
Jackie Duvall MD
Director
On filings since 2022
1 hr/week
No compensation reported
Jason Sico MD
Director
On filings since 2022
1 hr/week
No compensation reported
Hope O'Brien MD
Director
On filings since 2023
1 hr/week
No compensation reported
Mark Green MD
Director
On filings since 2023
1 hr/week
No compensation reported
Fred Cohen
Director
New on the 2024 filing
1 hr/week
No compensation reported
Nelson Costa
Director
New on the 2024 filing
1 hr/week
No compensation reported
Maureen Ballay
Assistant Vice President - Finance & Operations
Assistant Vice President - Finance, Operations & Administration → Assistant Vice President - Finance & Operations, 2024
On filings since 2023
40 hrs/week
$103K (2023) → $114K (2024)
Emily Kandel
Vice President
Second Vice President → Vice President, 2021
On filings since 2020
1 hr/week
No compensation reported
Konrad Kothmann
Treasurer
Director → Treasurer, 2021
On filings since 2020
1 hr/week
No compensation reported
Margot Andersen
Secretary
Director → Secretary, 2024
On filings since 2020
1 hr/week
No compensation reported
Merle Diamond MD
Vice President
Director → Vice President, 2024
On filings since 2020
1 hr/week
No compensation reported
Former officers (7)
- Former: Jan Lewis Brandes MD (2020–2023) — Vice President
- Former: Roger K. Cady MD (2020–2023) — Vice President
- Former: Thomas Dabertin (2021–2023) — Former Executive Director
- Former: Tad D. Seifert MD (2020–2021) — Director
- Former: Chad J. Beste (2020) — Treasurer
- Former: James Beasley (2020) — Director
- Former: Marc D. Lefkowitz (2020) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $195K, to Susan Stone (CEO & Executive Director). 2 officers or directors reported compensation on that filing.
Frequently asked questions about National Headache Foundation
How much does National Headache Foundation give each year?
National Headache Foundation gave $95K across 2 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $52K across 2 grants.
How large is National Headache Foundation?
National Headache Foundation reported $5.7M in total assets on its 2024 IRS Form 990. Its revenue that year was $1.4M.
Where does National Headache Foundation operate?
National Headache Foundation has awarded grants in Arizona, Connecticut, Illinois, Michigan, Missouri, North Carolina, Vermont.
What is National Headache Foundation's EIN?
National Headache Foundation's EIN (Employer Identification Number) is 23-7073022. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
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