Malan Syndrome Foundation Inc
The mission of the Malan Syndrome Foundation is to improve the lives of individuals and families affected by malan syndrome in the global community through support, outreach and research.
Malan Syndrome Foundation Inc at a glance
In short: Malan Syndrome Foundation Inc gave $65K across 2 grants in 2025 (avg $33K), mostly in Pennsylvania. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $65,000
- Grants made (2025)
- 2
- Average grant
- $32,500
- Median grant
- $32,500
- Total assets
- $211,099
- Primary geography
- Pennsylvania (77% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Malan Syndrome Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was Chop ($50K). Together the top 2 received $65K.
Grant Size Distribution
2 grants across all recorded years
The most common grant size was under $50K: 1 grant of 2 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2025 it made 2 grants totaling $65K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Chop Philadelphia, PA | Malan Initiative | $50,000 |
| The University of North Carolina Atlanta, GA | Research | $15,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $211,099 | $242,845 | $178,390 | $65,000 | 2 | $4,001 |
| 2024 | — | $146,594 | $164,864 | — | — | — |
| 2023 | — | $144,312 | $198,449 | — | — | — |
| 2022 | — | $124,861 | $75,059 | — | — | — |
| 2021 | — | $137,490 | $56,563 | — | — | — |
About Malan Syndrome Foundation Inc
Based on IRS filings
Malan Syndrome Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Old Bridge, NJ. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $211K in total assets. In 2025, it awarded 2 grants totaling $65K. Net investment income was $4K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Malan Syndrome Foundation Inc is led by Kimberly Ventarola, President on every filing since 2021; none of the 4 officers listed in 2025 report compensation.
Officers on the 2025 filing
Kimberly Ventarola
President
On filings since 2021
No compensation reported
Christal Delagrammatikas
Director of
Vice President → Director of, 2022
On filings since 2021
No compensation reported
Brandilyn Johnson
Vice President
Secretary → Vice President, 2022
On filings since 2021
No compensation reported
Susan Amass
Treasurer
On filings since 2021
No compensation reported
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Malan Syndrome Foundation Inc
How much does Malan Syndrome Foundation Inc give each year?
Malan Syndrome Foundation Inc gave $65K across 2 grants in 2025, according to its 2025 IRS Form 990.
How large is Malan Syndrome Foundation Inc?
Malan Syndrome Foundation Inc reported $211K in total assets on its 2025 IRS Form 990. Its revenue that year was $243K.
What is Malan Syndrome Foundation Inc?
Malan Syndrome Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Old Bridge, NJ. It holds $211K in total assets as of 2025.
Where does Malan Syndrome Foundation Inc operate?
Malan Syndrome Foundation Inc has awarded grants in Georgia, Pennsylvania.
What is Malan Syndrome Foundation Inc's EIN?
Malan Syndrome Foundation Inc's EIN (Employer Identification Number) is 83-3063901. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990-EZ for fiscal year 2021 (received by the IRS May 13, 2022)
- Updated Form 990-EZ for fiscal year 2022 (received by the IRS May 15, 2023)
- Updated Form 990-EZ for fiscal year 2023 (received by the IRS May 7, 2024)
- Updated Form 990-EZ for fiscal year 2024 (received by the IRS May 12, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS May 14, 2026)
Live grants for the work Malan Syndrome Foundation Inc funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
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Browse active grant opportunities in Malan Syndrome Foundation Inc's focus areas in our free grants database
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