Lowe Syndrome Association
Improve the lives of persons with Lowe Syndrome and their families through community, education, and supporting research
Lowe Syndrome Association at a glance
In short: Lowe Syndrome Association gave $15K across 1 grant in 2024 (avg $15K), mostly in Indiana. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $14,879
- Grants made (2024)
- 1
- Average grant
- $14,879
- Median grant
- $14,879
- Total assets
- $1,152,142
- -2.1% vs 2023
- Primary geography
- Indiana (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Lowe Syndrome Association funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Aguilar (Purdue) ($15K).
Grant Size Distribution
3 grants across all recorded years
The most common grant size was under $50K: 2 grants of 3 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
How Lowe Syndrome Association gives
- Giving held roughly steady from 2021 to 2024 (−1%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $15K (2024) to $94K (2020). In 2024 it made 1 grant totaling $15K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Aguilar (Purdue) West Lafayette, IN | Medical advanement | $14,879 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $1,152,142 | $124,908 | $67,337 | $14,879 | 1 | $26,114 |
| 2023 | $1,177,257 | $141,550 | $69,906 | — | — | $1,503 |
| 2022 | $1,102,649 | $207,028 | $114,413 | — | — | $1,052 |
| 2021 | $1,010,256 | $381,285 | $54,454 | $15,000 | 1 | — |
| 2020 | $683,327 | $158,665 | $125,489 | $94,304 | 1 | — |
About Lowe Syndrome Association
Based on IRS filings
Lowe Syndrome Association is a public charity, based in Cincinnati, OH. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.2M in total assets. In 2024, it awarded 1 grant totaling $15K. Net investment income was $26K.
Leadership & Key People
Officers and directors from IRS filings
Lowe Syndrome Association is led by Jeri Kubicki, President since 2023 (on filings since 2020); none of the 10 officers listed in 2024 report compensation.
Officers on the 2024 filing
Jeri Kubicki
President
Vice President → President, 2023
On filings since 2020
1 hr/week
$18K (2023) → $0 (2024)
Cori Degori
Director
On filings since 2020
1 hr/week
No compensation reported
John MacDonald
Director
On filings since 2020
1 hr/week
No compensation reported
Lisa Waldbaum
Director
President → Director, 2023
On filings since 2020
1 hr/week
No compensation reported
Theresa Haugen
Director
On filings since 2020
1 hr/week
No compensation reported
Laura Kim
Director
On filings since 2022
1 hr/week
No compensation reported
Barry Reinhart
Director
On filings since 2023
1 hr/week
No compensation reported
Clare Gromoll
Director
On filings since 2023
1 hr/week
No compensation reported
Amy Richards
Director
New on the 2024 filing
1 hr/week
No compensation reported
Cristen Alberts
Treasurer
On filings since 2020
1 hr/week
$5K (2023) → $0 (2024)
Former officers (2)
- Former: Barry Rinehart (2020–2022) — Director
- Former: Jenna Maddox (2020–2021) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2023 IRS filing
The highest reported compensation on the 2023 filing was $18K, to Jeri Kubicki (President). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Lowe Syndrome Association
How much does Lowe Syndrome Association give each year?
Lowe Syndrome Association gave $15K across 1 grant in 2024, according to its 2024 IRS Form 990.
How large is Lowe Syndrome Association?
Lowe Syndrome Association reported $1.2M in total assets on its 2024 IRS Form 990. Its revenue that year was $125K.
Where does Lowe Syndrome Association operate?
Lowe Syndrome Association has awarded grants in Indiana.
What is Lowe Syndrome Association's EIN?
Lowe Syndrome Association's EIN (Employer Identification Number) is 31-1160328. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 14, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 17, 2025)
- IRS filings on file for fiscal years 2020–2024
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Figures come from Lowe Syndrome Association's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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