Hereditary Neuropathy Foundation Inc
Hnf, inc., a non-profit dedicated to supporting projects through the therapeutic research in accelerated discovery (TRIAD)program, a collaborative effort with academia, government and industry, to develop treatments for cmt. Currently TRIAD involves many groups that span the drug discovery, drug development, and diagnostics continuum. Education and support of the cmt community to improve quality of life is also a key component of hnf's mission.
Hereditary Neuropathy Foundation Inc at a glance
In short: Hereditary Neuropathy Foundation Inc gave $175K across 3 grants in 2025 (avg $58K), mostly in New York. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $174,608
- +5.3% vs 2024
- Grants made (2025)
- 3
- -25.0% vs 2024
- Average grant
- $58,203
- +40.4% vs 2024
- Median grant
- $26,491
- Total assets
- $1,016,066
- -32.4% vs 2024
- Primary geography
- New York (73% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Hereditary Neuropathy Foundation Inc
Open Grants
1 open opportunity from Hereditary Neuropathy Foundation Inc
Who Hereditary Neuropathy Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2025
The largest 2025 recipient was Burke Neurological Institute ($128K). Together the top 3 received $175K.
Grant Size Distribution
23 grants across all recorded years
The most common grant size was under $50K: 17 grants of 23 (74%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 3 itemized grants.
Cities
How Hereditary Neuropathy Foundation Inc gives
- Giving fell 33% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $60K (2019) to $259K (2022). In 2025 it made 3 grants totaling $175K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Burke Neurological Institute White Plains, NY | Research | $128,117 |
| Inotiv Inc West Lafayette, IN | Research | $26,491 |
| Across Healthcare Carrollton, GA | Research | $20,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,016,066 | $545,418 | $894,903 | $174,608 | 3 | $5,908 |
| 2024 | $1,503,541 | $655,296 | $730,003 | $165,795 | 4 | $5,540 |
| 2023 | $1,515,448 | $543,625 | $671,491 | $110,110 | 4 | $4,783 |
| 2022 | $1,627,053 | $1,259,879 | $759,374 | $259,000 | 5 | $144,223 |
| 2021 | $1,295,654 | $637,088 | $679,388 | $250,214 | 7 | $539 |
| 2020 | $1,301,620 | $912,443 | $623,754 | $77,391 | 3 | $566 |
| 2019 | $969,441 | $753,319 | $665,477 | $60,412 | 3 | $257 |
About Hereditary Neuropathy Foundation Inc
Based on IRS filings
Hereditary Neuropathy Foundation Inc is a public charity focused on Medical Research, based in New York, NY. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $1.0M in total assets. In 2025, it awarded 3 grants totaling $175K. Net investment income was $6K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Hereditary Neuropathy Foundation Inc is led by Allison Moore, Founder & Chief Executive since 2020 (on filings since 2019); 1 of 13 officers listed in 2025 is compensated.
Officers on the 2025 filing
Allison Moore
Founder & Chief Executive
Founder & Chief Executive Officer → Founder & Chief Executive, 2020
On filings since 2019
50 hrs/week
No compensation reported
Courtney Hollett
Executive Director
On filings since 2019
40 hrs/week
$60K (2019) → $75K (2025)
Matthew Downing
Chairman
Secretary → Chairman, 2020
On filings since 2019
5 hrs/week
No compensation reported
Brooke Warren
Secretary
Board Member → Secretary, 2020
On filings since 2019
5 hrs/week
No compensation reported
Gretchen Cappiello
Board Member
On filings since 2019
5 hrs/week
No compensation reported
Kara Sprague
Treasurer
On filings since 2019
5 hrs/week
No compensation reported
Kerin Reilly
Board Member
On filings since 2019
5 hrs/week
No compensation reported
Robert Kauffman
Board Member
On filings since 2019
5 hrs/week
No compensation reported
Dominic Hadeed
Board Member
On filings since 2021
5 hrs/week
No compensation reported
Natalia Salejko
Board Member
On filings since 2021
5 hrs/week
No compensation reported
Poya Ghasri
Board Member
On filings since 2021
5 hrs/week
No compensation reported
Sital Bhavsar
Board Member
On filings since 2021
5 hrs/week
No compensation reported
Dennis Sullivan
Board Member
New on the 2025 filing
5 hrs/week
No compensation reported
Former officers (5)
- Former: Debi Houilares (2019–2024) — Board Member
- Former: Deborah Newcomb (2019–2024) — Board Member
- Former: Joy Andal Kaye (2019–2024) — Board Member
- Former: Lisa McCarthy (2020) — Board Member
- Former: Donna Cusimano (2019) — Board Member
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $75K, to Courtney Hollett (Executive Director).
Frequently asked questions about Hereditary Neuropathy Foundation Inc
How much does Hereditary Neuropathy Foundation Inc give each year?
Hereditary Neuropathy Foundation Inc gave $175K across 3 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $166K across 4 grants.
What is Hereditary Neuropathy Foundation Inc's typical grant size?
Hereditary Neuropathy Foundation Inc's median grant in 2025 was $26,491, and its average grant was $58,203, across 3 grants on its 2025 IRS Form 990.
Where does Hereditary Neuropathy Foundation Inc give grants?
Hereditary Neuropathy Foundation Inc gives mostly in New York: 73% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Indiana (15%) and Georgia (11%).
Does Hereditary Neuropathy Foundation Inc give general operating support?
Not in 2025: none of the 3 grants with a stated purpose on Hereditary Neuropathy Foundation Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (3 grants).
How large is Hereditary Neuropathy Foundation Inc?
Hereditary Neuropathy Foundation Inc reported $1.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $545K.
What is Hereditary Neuropathy Foundation Inc?
Hereditary Neuropathy Foundation Inc is a public charity focused on Medical Research, based in New York, NY. It holds $1.0M in total assets as of 2025.
What is Hereditary Neuropathy Foundation Inc's EIN?
Hereditary Neuropathy Foundation Inc's EIN (Employer Identification Number) is 13-4137654. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS July 13, 2020)
- Added Form 990 for fiscal year 2025 (received by the IRS May 14, 2026)
- IRS filings on file for fiscal years 2020–2024
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