Hereditary Neuropathy Foundation Inc logo

Hereditary Neuropathy Foundation Inc

NEW YORK, NY EIN: 13-4137654 Website

HNF, INC., A NON-PROFIT DEDICATED TO SUPPORTING PROJECTS THROUGH THE THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD)PROGRAM, A COLLABORATIVE EFFORT WITH ACADEMIA, GOVERNMENT AND INDUSTRY, TO DEVELOP TREATMENTS FOR CMT. CURRENTLY TRIAD INVOLVES MANY GROUPS THAT SPAN THE DRUG DISCOVERY, DRUG DEVELOPMENT, AND DIAGNOSTICS CONTINUUM. EDUCATION AND SUPPORT OF THE CMT COMMUNITY TO IMPROVE QUALITY OF LIFE IS ALSO A KEY COMPONENT OF HNF'S MISSION.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$1.5M

-0.8% YoY

Annual Giving

$166K

+50.6% YoY

Grant Count

4

+0.0% YoY

Avg Grant Size

$41K

+50.6% YoY

About Hereditary Neuropathy Foundation Inc

Based on IRS filings

Hereditary Neuropathy Foundation Inc is a nonprofit organization focused on Medical Research, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.5M in total assets. In 2024, it awarded 4 grants totaling $166K. Net investment income was $6K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

10states
+2 more states

Cities

CarrolltonChicagoColumbiaCoral GablesIndianapolisMiamiPalo AltoPhiladelphiaSaint LouisSan AntonioSan FranciscoWhite Plains

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$346K$693K$1M$1M20202021202220232024
Metric202420232022
Total Assets$1,503,541$1,515,448$1,627,053
Revenue$655,296$543,625$1,259,879
Expenses$730,003$671,491$759,374
Qualifying Distributions
Net Investment Income$5,540$4,783$144,223
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$65K$130K$194K$259K3 grants20207 grants20215 grants20224 grants20234 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 4 recipients in 2024

RAREBASE PBC$125KACROSS HEALTHCARE$20KENVIGO RMS LLC$11KANN & ROBERT H LURIE CHI…$10K

Grant Size Distribution

23 grants across all recorded years

18<$50K3$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Open Grants

1 open opportunity from Hereditary Neuropathy Foundation Inc

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

COURTNEY HOLLETTEXECUTIVE DIRECTOR$74K

From 2024 filing

NameTitleHoursCompensation
ALLISON MOOREFOUNDER AND CHIEF EXECUTIV50
KARA SPRAGUETREASURER5
MATTHEW DOWNINGCHAIRMAN5
KERIN REILLYBOARD MEMBER5
GRETCHEN CAPPIELLOBOARD MEMBER5
DEBORAH NEWCOMBBOARD MEMBER5
BROOKE WARRENSECRETARY5
ROBERT KAUFFMANBOARD MEMBER5
DOMINIC HADEEDBOARD MEMBER5
SITAL BHAVSARBOARD MEMBER5
NATALIA SALEJKOBOARD MEMBER5
JOY ANDAL KAYEBOARD MEMBER5
DEBI HOUILARESBOARD MEMBER5
POYA GHASRIBOARD MEMBER5
COURTNEY HOLLETTEXECUTIVE DIRECTOR40$73,846

Subject Areas

Focus areas based on grantmaking activity

Related Funders

Similar funders by location and focus area

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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