Hereditary Neuropathy Foundation Inc
HNF, INC., A NON-PROFIT DEDICATED TO SUPPORTING PROJECTS THROUGH THE THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD)PROGRAM, A COLLABORATIVE EFFORT WITH ACADEMIA, GOVERNMENT AND INDUSTRY, TO DEVELOP TREATMENTS FOR CMT. CURRENTLY TRIAD INVOLVES MANY GROUPS THAT SPAN THE DRUG DISCOVERY, DRUG DEVELOPMENT, AND DIAGNOSTICS CONTINUUM. EDUCATION AND SUPPORT OF THE CMT COMMUNITY TO IMPROVE QUALITY OF LIFE IS ALSO A KEY COMPONENT OF HNF'S MISSION.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.5M
-0.8% YoY
Annual Giving
$166K
+50.6% YoY
Grant Count
4
+0.0% YoY
Avg Grant Size
$41K
+50.6% YoY
About Hereditary Neuropathy Foundation Inc
Based on IRS filings
Hereditary Neuropathy Foundation Inc is a nonprofit organization focused on Medical Research, based in NEW YORK, NY. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.5M in total assets. In 2024, it awarded 4 grants totaling $166K. Net investment income was $6K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,503,541 | $1,515,448 | $1,627,053 |
| Revenue | $655,296 | $543,625 | $1,259,879 |
| Expenses | $730,003 | $671,491 | $759,374 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $5,540 | $4,783 | $144,223 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
23 grants across all recorded years
Open Grants
1 open opportunity from Hereditary Neuropathy Foundation Inc
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Rarebase Pbc ($125,000), Across Healthcare ($20,000), Envigo Rms Llc ($10,795).
| Recipient | Purpose | Amount |
|---|---|---|
| RAREBASE PBC PALO ALTO, CA | RESEARCH | $125,000 |
| ACROSS HEALTHCARE CARROLLTON, GA | RESEARCH | $20,000 |
| ENVIGO RMS LLC INDIANAPOLIS, IN | RESEARCH | $10,795 |
| ANN & ROBERT H LURIE CHILDREN'S HOSPITAL CHICAGO, IL | RESEARCH | $10,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| ALLISON MOORE | FOUNDER AND CHIEF EXECUTIV | 50 | — |
| KARA SPRAGUE | TREASURER | 5 | — |
| MATTHEW DOWNING | CHAIRMAN | 5 | — |
| KERIN REILLY | BOARD MEMBER | 5 | — |
| GRETCHEN CAPPIELLO | BOARD MEMBER | 5 | — |
| DEBORAH NEWCOMB | BOARD MEMBER | 5 | — |
| BROOKE WARREN | SECRETARY | 5 | — |
| ROBERT KAUFFMAN | BOARD MEMBER | 5 | — |
| DOMINIC HADEED | BOARD MEMBER | 5 | — |
| SITAL BHAVSAR | BOARD MEMBER | 5 | — |
| NATALIA SALEJKO | BOARD MEMBER | 5 | — |
| JOY ANDAL KAYE | BOARD MEMBER | 5 | — |
| DEBI HOUILARES | BOARD MEMBER | 5 | — |
| POYA GHASRI | BOARD MEMBER | 5 | — |
| COURTNEY HOLLETT | EXECUTIVE DIRECTOR | 40 | $73,846 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Hereditary Neuropathy Foundation Inc?
Hereditary Neuropathy Foundation Inc is a nonprofit organization focused on Medical Research, based in NEW YORK, NY. It holds $1.5M in total assets as of 2024.
How large is Hereditary Neuropathy Foundation Inc?
As of 2024, Hereditary Neuropathy Foundation Inc holds $1.5M in total assets with $655K in annual revenue. It awarded 4 grants totaling $166K in 2024.
Where does Hereditary Neuropathy Foundation Inc operate?
Hereditary Neuropathy Foundation Inc has awarded grants in California, Florida, Georgia, Illinois, Indiana, Maryland, Missouri, New York, Pennsylvania, Texas.
What size grants does Hereditary Neuropathy Foundation Inc award?
In 2024, Hereditary Neuropathy Foundation Inc awarded 4 grants totaling $166K — an average of about $41K per grant, based on its IRS Form 990 filings.
What is Hereditary Neuropathy Foundation Inc's EIN?
Hereditary Neuropathy Foundation Inc's EIN (Employer Identification Number) is 13-4137654. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Hereditary Neuropathy Foundation Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.