FRAXA Research Foundation Inc logo

FRAXA Research Foundation Inc

NEWBURYPORT, MA EIN: 04-3222167 Website

FRAXAs mission is to find effective treatments and ultimately a cure for Fragile X syndrome.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$5.0M

+25.3% YoY

Annual Giving

$748K

-6.5% YoY

Grant Count

13

+0.0% YoY

Avg Grant Size

$58K

-6.5% YoY

About FRAXA Research Foundation Inc

Based on IRS filings

FRAXA Research Foundation Inc is a nonprofit organization focused on Medical Research, based in NEWBURYPORT, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $5.0M in total assets. In 2024, it awarded 13 grants totaling $748K. Net investment income was $123K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

14states
+6 more states

Cities

AtlantaBethesdaBostonCambridgeChicagoCincinnatiCold Spring HarborDallasIrvineLa JollaLos AngelesMaconMilwaukeeNew HavenNew YorkOmahaPhiladelphiaPittsburghRedwood CityRiverside

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$631K$1M$2M$3M20202021202220232024
Metric202420232022
Total Assets$4,964,245$3,961,307$3,531,781
Revenue$2,293,199$2,044,969$2,018,041
Expenses$1,433,380$1,804,308$1,898,116
Qualifying Distributions
Net Investment Income$122,583$94,754$271,800
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$229K$457K$686K$915K7 grants20200 grants202116 grants202213 grants202313 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

Umass medical$100KYale School of Medicine$100KChildren's Hospital of P…$50KCincinnati Children's Ho…$50KUniversity of Illinois a…$50KSeattle Children's Resea…$50KCold Spring Harbor Labor…$50KMassachusetts General Ho…$50KMassachusetts Institute …$50KUniversity of Rochester$50K

Grant Size Distribution

49 grants across all recorded years

11<$50K33$50–100K5$100–250K$250–500K$500K–1M$1–5M$5M+

Open Grants

2 open opportunities from FRAXA Research Foundation Inc

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include Umass medical ($100,000), Yale School of Medicine ($100,000), Children's Hospital of Philadelphia ($50,000).

RecipientPurposeAmount
Children's Hospital of Philadelphia Philadelphia, PAResearch$50,000
Umass medical Worcester, MAResearch$100,000
Yale School of Medicine New Haven, CTResearch$100,000
Cincinnati Children's Hospital Cincinnati, OHResearch$50,000
University of Illinois at Urbana-Champaign Chicago, ILResearch$50,000
Seattle Children's Research Institute Seattle, WAResearch$50,000
Cold Spring Harbor Laboratory Cold Spring Harbor, NYResearch$50,000
Massachusetts General Hospital Boston, MAResearch$50,000
Massachusetts Institute of Technology Cambridge, MAResearch$50,000
National Institutes of health Bethesda, MDResearch$48,200

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

Katherine ClappPresident$150KMichael TranfagliaMedical Director/Treasurer/S…$139K

From 2024 filing

NameTitleHoursCompensation
Katherine ClappPresident40$150,381
Deborah StevensonBoard Chair10
Michael TranfagliaMedical Director/Treasurer/Secretary40$139,245
Dean ClarkDirector10
Theodore CoutilishDirector10
Leslie EddyDirector10
Andres CentellasDirector10
Jessica HaugenDirector10
James VershbowDirector10
Ronald M Watkins JrDirector10
Sasa ZorovicDirector10

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is FRAXA Research Foundation Inc?

FRAXA Research Foundation Inc is a nonprofit organization focused on Medical Research, based in NEWBURYPORT, MA. It holds $5.0M in total assets as of 2024.

How large is FRAXA Research Foundation Inc?

As of 2024, FRAXA Research Foundation Inc holds $5.0M in total assets with $2.3M in annual revenue. It awarded 13 grants totaling $748K in 2024.

Where does FRAXA Research Foundation Inc operate?

FRAXA Research Foundation Inc has awarded grants in California, Connecticut, Georgia, Illinois, Massachusetts, Maryland, North Carolina, Nebraska, New York, Ohio, Pennsylvania, Texas, Washington, Wisconsin.

What size grants does FRAXA Research Foundation Inc award?

In 2024, FRAXA Research Foundation Inc awarded 13 grants totaling $748K — an average of about $58K per grant, based on its IRS Form 990 filings.

What is FRAXA Research Foundation Inc's EIN?

FRAXA Research Foundation Inc's EIN (Employer Identification Number) is 04-3222167. IRS Form 990 filing data is available on this page for 2020–2024.

Explore Open Grants

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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