FRAXA Research Foundation Inc logo

FRAXA Research Foundation Inc

NEWBURYPORT, MA EIN: 04-3222167 Website

FRAXAs mission is to find effective treatments and ultimately a cure for Fragile X syndrome.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$5.0M

+25.3% YoY

Annual Giving

$748K

-6.5% YoY

Grant Count

13

+0.0% YoY

Avg Grant Size

$58K

-6.5% YoY

About FRAXA Research Foundation Inc

Based on IRS filings

FRAXA Research Foundation Inc is a nonprofit organization focused on Medical Research, based in NEWBURYPORT, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $5.0M in total assets. In 2024, it awarded 13 grants totaling $748K. Net investment income was $123K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

14states
+6 more states

Cities

AtlantaBethesdaBostonCambridgeChicagoCincinnatiCold Spring HarborDallasIrvineLa JollaLos AngelesMaconMilwaukeeNew HavenNew YorkOmahaPhiladelphiaPittsburghRedwood CityRiverside

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$631K$1M$2M$3M20202021202220232024
Metric202420232022
Total Assets$4,964,245$3,961,307$3,531,781
Revenue$2,293,199$2,044,969$2,018,041
Expenses$1,433,380$1,804,308$1,898,116
Qualifying Distributions
Net Investment Income$122,583$94,754$271,800
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$229K$457K$686K$915K7 grants20200 grants202116 grants202213 grants202313 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

Umass medical$100KYale School of Medicine$100KChildren's Hospital of P…$50KCincinnati Children's Ho…$50KUniversity of Illinois a…$50KSeattle Children's Resea…$50KCold Spring Harbor Labor…$50KMassachusetts General Ho…$50KMassachusetts Institute …$50KUniversity of Rochester$50K

Grant Size Distribution

49 grants across all recorded years

11<$50K33$50–100K5$100–250K$250–500K$500K–1M$1–5M$5M+

Open Grants

2 open opportunities from FRAXA Research Foundation Inc

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

Katherine ClappPresident$150KMichael TranfagliaMedical Director/Treasurer/S…$139K

From 2024 filing

NameTitleHoursCompensation
Katherine ClappPresident40$150,381
Deborah StevensonBoard Chair10
Michael TranfagliaMedical Director/Treasurer/Secretary40$139,245
Dean ClarkDirector10
Theodore CoutilishDirector10
Leslie EddyDirector10
Andres CentellasDirector10
Jessica HaugenDirector10
James VershbowDirector10
Ronald M Watkins JrDirector10
Sasa ZorovicDirector10

Subject Areas

Focus areas based on grantmaking activity

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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