ANGELMAN SYNDROME (AS) IS A NEURODEVELOPMENTAL DISORDER CHARACTERIZED BY GLOBAL DEVELOPMENT DELAYS AND SEVERE SPEECH IMPAIRMENT. A FEW INDIVIDUALS WITH AS DEVELOP FUNCTIONAL SPEECH, BUT MOST COMMUNICATE THROUGH A MIXTURE OF GESTURES, EYE GAZE, ADAPTED SIGN LANGUAGE AND AUGUMENTATIVE COMMUNICATION DEVICES. INDIVIDUALS WITH AS HAVE DEVELOPMENT DELAY AND INTELLECTUAL DISABILITIES. CURRENT RESEARCH SUGGESTS THAT NEURONAL DEVELOPMENT OCCURS CORRECTLY IN AS, BUT NEURONAL FUNCTIONING IS IMPAIRED. THIS NEURONAL IMPAIRMENT IMPACTS THE INDIVIDUAL'S ABILITY TO LEARN IN THAT SKILLS ARE ACQUIRED LESS RAPIDLY THAN IN AGE-MATCHED PEERS. THE FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS IS AN ORGANIZATION OF FAMILIES AND PROFESSIONALS DEDICATED TO FINDING A CURE FOR AS AND RELATED DISORDERS THROUGH THE FUNDING OF AN AGRESSIVE RESEARCH AGENDA, EDUCATION, ADVOCACY, AND COMMUNITY SUPPORT. FAST IS COMMITTED TO ASSISTING INDIVIDUALS LIVING WITH AS TO REALIZE THEIR FULL POTENTIAL AND QUALITY OF LIFE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$44.9M
-23.1% YoY
Annual Giving
$7.9M
+42.2% YoY
Grant Count
10
-41.2% YoY
Avg Grant Size
$792K
+141.7% YoY
About Foundation for Angelman Syndrome
Based on IRS filings
Foundation for Angelman Syndrome is a nonprofit organization focused on Medical Research, based in AUSTIN, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $44.9M in total assets. In 2024, it awarded 10 grants totaling $7.9M. Net investment income was $1.7M.
Focus Areas
Ready to take the next step with Foundation for Angelman Syndrome?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $44,915,881 | $58,430,242 | $63,075,354 |
| Revenue | $5,388,260 | $6,525,815 | $52,477,819 |
| Expenses | $10,391,969 | $23,229,158 | $8,933,021 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $1,677,094 | $2,734,710 | $47,780,150 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
43 grants across all recorded years
Open Grants
6 open opportunities from Foundation for Angelman Syndrome
FAST IMPACT Award (Innovative Methods to Advance Angelman Syndrome Treatments Towards Clinical Trials)
FOUNDATION FOR ANGELMAN SYNDROME
Amount
Up to $1,000,000 per year
Deadline
Rolling / Open
FAST Innovation Seed Grant
FOUNDATION FOR ANGELMAN SYNDROME
Amount
$10,000 - $50,000
Deadline
Rolling / Open
FAST Postdoctoral Fellowship
FOUNDATION FOR ANGELMAN SYNDROME
Amount
Up to $50,000 per year for up to two years
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| RYAN JACOB | CHAIRPERSON | 18 | — |
| MICHAEL HANRAHAN | VICE CHAIRPERSON AND TR | 10 | — |
| GUY SHAPIRAL | TRESURER | 15 | — |
| AMELIA BEATTY | SECRETARY | 15 | — |
| KARLY WARNER | DIRECTOR | 5 | — |
| JOHN SCHLUETER | DIRECTOR | 15 | — |
| KELLY DAVID | DIRECTOR | 10 | — |
| BEN O'CONNOR | DIRECTOR | 5 | — |
| ROY AZOUT | DIRECTOR | 5 | — |
| LAUREN HOFFER | DIRECTOR | 5 | — |
| NORA XU | DIRECTOR | 5 | — |
| ALLYSON BERENT | CHIEF SCIENCE OFFICER | 2 | — |
| RYAN K FISCHER | CHIEF OPERATING OFICER | 40 | $286,130 |
| ALANA NEWHOUSE | PRESIDENT/CEO | 40 | $245,000 |
| KENA PEARSON | CHIEF FINANCIAL OFFICER | 40 | $232,568 |
| MICHELE GOLOMBUSKI | CHIEF DEVELOPMENT OFFICER | 40 | $210,068 |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with Foundation for Angelman Syndrome on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities