Foundation for Angelman Syndrome logo

Foundation for Angelman Syndrome

AUSTIN, TX EIN: 26-3160079 Website

ANGELMAN SYNDROME (AS) IS A NEURODEVELOPMENTAL DISORDER CHARACTERIZED BY GLOBAL DEVELOPMENT DELAYS AND SEVERE SPEECH IMPAIRMENT. A FEW INDIVIDUALS WITH AS DEVELOP FUNCTIONAL SPEECH, BUT MOST COMMUNICATE THROUGH A MIXTURE OF GESTURES, EYE GAZE, ADAPTED SIGN LANGUAGE AND AUGUMENTATIVE COMMUNICATION DEVICES. INDIVIDUALS WITH AS HAVE DEVELOPMENT DELAY AND INTELLECTUAL DISABILITIES. CURRENT RESEARCH SUGGESTS THAT NEURONAL DEVELOPMENT OCCURS CORRECTLY IN AS, BUT NEURONAL FUNCTIONING IS IMPAIRED. THIS NEURONAL IMPAIRMENT IMPACTS THE INDIVIDUAL'S ABILITY TO LEARN IN THAT SKILLS ARE ACQUIRED LESS RAPIDLY THAN IN AGE-MATCHED PEERS. THE FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS IS AN ORGANIZATION OF FAMILIES AND PROFESSIONALS DEDICATED TO FINDING A CURE FOR AS AND RELATED DISORDERS THROUGH THE FUNDING OF AN AGRESSIVE RESEARCH AGENDA, EDUCATION, ADVOCACY, AND COMMUNITY SUPPORT. FAST IS COMMITTED TO ASSISTING INDIVIDUALS LIVING WITH AS TO REALIZE THEIR FULL POTENTIAL AND QUALITY OF LIFE.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$44.9M

-23.1% YoY

Annual Giving

$7.9M

+42.2% YoY

Grant Count

10

-41.2% YoY

Avg Grant Size

$792K

+141.7% YoY

About Foundation for Angelman Syndrome

Based on IRS filings

Foundation for Angelman Syndrome is a nonprofit organization focused on Medical Research, based in AUSTIN, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $44.9M in total assets. In 2024, it awarded 10 grants totaling $7.9M. Net investment income was $1.7M.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

10states
+2 more states

Cities

AuroraBostonCharlotteChicagoClaremontCollege StationDavisDurhamNew HavenPhiladelphiaProvidenceRaleighSan FranciscoWashingtonWinston Salem

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$14M$29M$43M$58M20202021202220232024
Metric202420232022
Total Assets$44,915,881$58,430,242$63,075,354
Revenue$5,388,260$6,525,815$52,477,819
Expenses$10,391,969$23,229,158$8,933,021
Qualifying Distributions
Net Investment Income$1,677,094$2,734,710$47,780,150
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$2M$4M$6M$8M5 grants20207 grants20214 grants202217 grants202310 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

UNIVERSITY OF PENNSYLVANIA$5.9MBOSTON CHILDREN'S HOSPITAL$471KRUSH UNIVERSITY MEDICAL …$321KDUKE UNIVERSITY$318KREGENTS OF THE UNIVERSIT…$274KTHE REGENTS OF THE UNIVE…$211KBROWN UNIVERSITY$150KCHILDREN'S RESEARCH INST…$141KKECK GRADUATE INSTITUTE …$125KBROWN UNIVERSITY$51K

Grant Size Distribution

43 grants across all recorded years

4<$50K7$50–100K13$100–250K13$250–500K1$500K–1M4$1–5M1$5M+

Open Grants

5 open opportunities from Foundation for Angelman Syndrome

Show all 5 →

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest include University of Pennsylvania ($5,860,869), Boston Children's Hospital ($470,957), Rush University Medical Center ($320,500).

RecipientPurposeAmount
DUKE UNIVERSITY CHARLOTTE, NCFT2018-005 AMENDED: GPIC-COMM$317,848
UNIVERSITY OF PENNSYLVANIA PHILADELPHIA, PAUPENN 2023: RESEARCH, COLLABORATION & LICENSE AGREEMENT$5,860,869
KECK GRADUATE INSTITUTE OF APPLIED LIFE SCIENCES CLAREMONT, CAFT2022-002: TARGETING ANGELMAN SYNDROME THERAPEUTICS TO THE BRAIN UTILIZING NOVEL CELL PENETRATING PEPTIDES$125,000
CHILDREN'S RESEARCH INSTITUTE WASHINGTON, DCFT2022-003: PEAK ALPHA FREQUENCY AS AN EEG BIOMARKER FOR ANGELMAN SYNDROME$140,846
BROWN UNIVERSITY PROVIDENCE, RIFT2022-005: DEVELOPMENT OF BDNF POTENTIATING THERAPEUTICS FOR MOTOR AND COGNITIVE DYSFUNCTION IN AS$150,000
BROWN UNIVERSITY PROVIDENCE, RIPD2023-001: POSTDOCTORAL FELLOWSHIP PROGRAM$50,500
BOSTON CHILDREN'S HOSPITAL BOSTON, MAFT2022-006: ABOM - NATURAL HISTORY STUDY$470,957
REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS DAVIS, CAFT2022-007: GASTROINTESTINAL BIOMARKERS IN PRECLINICAL MODELS OF ANGELMAN SYNDROME$274,044
RUSH UNIVERSITY MEDICAL CENTER CHICAGO, ILRUSH COE$320,500
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO SAN FRANCISCO, CAFT2023-002: DEVELOPING A CRISPRA THERAPY FOR THE CLASSI/II DELETION GENOTYPE OF ANGELMAN SYNDROME$210,711

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

RYAN K FISCHERCHIEF OPERATING OFICER$286KALANA NEWHOUSEPRESIDENT/CEO$245KKENA PEARSONCHIEF FINANCIAL OFFICER$233KMICHELE GOLOMBUSKICHIEF DEVELOPMENT OFFICER$210K

From 2024 filing

NameTitleHoursCompensation
RYAN JACOBCHAIRPERSON18
MICHAEL HANRAHANVICE CHAIRPERSON AND TR10
GUY SHAPIRALTRESURER15
AMELIA BEATTYSECRETARY15
KARLY WARNERDIRECTOR5
JOHN SCHLUETERDIRECTOR15
KELLY DAVIDDIRECTOR10
BEN O'CONNORDIRECTOR5
ROY AZOUTDIRECTOR5
LAUREN HOFFERDIRECTOR5
NORA XUDIRECTOR5
ALLYSON BERENTCHIEF SCIENCE OFFICER2
RYAN K FISCHERCHIEF OPERATING OFICER40$286,130
ALANA NEWHOUSEPRESIDENT/CEO40$245,000
KENA PEARSONCHIEF FINANCIAL OFFICER40$232,568
MICHELE GOLOMBUSKICHIEF DEVELOPMENT OFFICER40$210,068

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Foundation for Angelman Syndrome?

Foundation for Angelman Syndrome is a nonprofit organization focused on Medical Research, based in AUSTIN, TX. It holds $44.9M in total assets as of 2024.

How large is Foundation for Angelman Syndrome?

As of 2024, Foundation for Angelman Syndrome holds $44.9M in total assets with $5.4M in annual revenue. It awarded 10 grants totaling $7.9M in 2024.

Where does Foundation for Angelman Syndrome operate?

Foundation for Angelman Syndrome has awarded grants in California, Colorado, Connecticut, District of Columbia, Illinois, Massachusetts, North Carolina, Pennsylvania, Rhode Island, Texas.

What size grants does Foundation for Angelman Syndrome award?

In 2024, Foundation for Angelman Syndrome awarded 10 grants totaling $7.9M — an average of about $792K per grant, based on its IRS Form 990 filings.

What is Foundation for Angelman Syndrome's EIN?

Foundation for Angelman Syndrome's EIN (Employer Identification Number) is 26-3160079. IRS Form 990 filing data is available on this page for 2020–2024.

Explore Open Grants

Browse active grant opportunities in Foundation for Angelman Syndrome's focus areas in our free grants database

Similar Funders

Funders that support many of the same organizations

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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