Follicular Lymphoma Foundation US Inc
Funding of research to find a cure for follicular lymphoma
Follicular Lymphoma Foundation US Inc at a glance
- Total assets
- $701,890
- +56.1% vs 2024
- Revenue (2025)
- $743,265
- +39.7% vs 2024
- Expenses (2025)
- $594,494
- +12.7% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Follicular Lymphoma Foundation US Inc funds
How this funder distributes its grants
Grant Size Distribution
8 grants across all recorded years
The most common grant size was in the $250–500K range: 4 grants of 8 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2023, annual grant giving ranged from $500K (2023) to $750K (2022). In 2023 it made 2 grants totaling $500K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Weill Medical Collge of Cornell New York, NY | — | $250,000 |
| Icahn School of Medicine New York, NY | — | $249,518 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2025 | $701,890 | $743,265 | $594,494 | — | — |
| 2024 | $449,607 | $532,035 | $527,694 | — | — |
| 2023 | $1,103,673 | $333,392 | $973,375 | $499,518 | 2 |
| 2022 | $1,069,715 | $1,117,500 | $1,391,955 | $749,518 | 3 |
| 2021 | $1,468,845 | $2,172,175 | $855,237 | $612,445 | 3 |
About Follicular Lymphoma Foundation US Inc
Based on IRS filings
Follicular Lymphoma Foundation US Inc is a public charity, based in Norwalk, CT. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $702K in total assets.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Follicular Lymphoma Foundation US Inc is led by Nicola Mendelsohn, President on every filing since 2021; none of the 8 officers listed in 2025 report compensation.
Officers on the 2025 filing
Nicola Mendelsohn
President
On filings since 2021
No compensation reported
Matt Smith
Medical Director
On filings since 2023
20 hrs/week
$255K (2023) → $0 (2025)
Carolyn Noel Everson
Board Member
On filings since 2021
No compensation reported
Franz Humer
Board Member
On filings since 2021
No compensation reported
Jonathan Cohen
Secretary & Treasurer
On filings since 2021
No compensation reported
Jonathan Simons
Board Member
On filings since 2021
No compensation reported
Louis Degennaro
Board Member
On filings since 2021
No compensation reported
Jonathan Neil Mendelsohn
Board Member
On filings since 2023
No compensation reported
Former officers (1)
- Former: Mitchell Smith (2021–2022) — Chief Medical Officer
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $255K, to Matt Smith (Medical Director).
Frequently asked questions about Follicular Lymphoma Foundation US Inc
How large is Follicular Lymphoma Foundation US Inc?
Follicular Lymphoma Foundation US Inc reported $702K in total assets on its 2025 IRS Form 990. Its revenue that year was $743K.
Where does Follicular Lymphoma Foundation US Inc operate?
Follicular Lymphoma Foundation US Inc has awarded grants in California, Connecticut, Massachusetts, New York.
What is Follicular Lymphoma Foundation US Inc's EIN?
Follicular Lymphoma Foundation US Inc's EIN (Employer Identification Number) is 84-2338899. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS November 16, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS August 10, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 11, 2024)
- Added Form 990 for fiscal year 2025 (received by the IRS June 15, 2026)
- IRS filings on file for fiscal years 2021–2024
Live grants for the work Follicular Lymphoma Foundation US Inc funds
Philanthropy, Voluntarism & Grantmaking Open opportunities, soonest deadline first.
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Follicular Lymphoma Foundation US Inc down — hundreds of funders to go?