Families and Friends Supporting Cystic Fibrosis Care
Families and Friends Supporting Cystic Fibrosis Care, inc. Is an organization committed to enhancing the quality of life of cystic fibrosis patients while they await a cure. The organization accomplishes this by supporting and endeavoring to improve the special programs available for patients.
Key facts about Families and Friends Supporting Cystic Fibrosis Care
In short: Families and Friends Supporting Cystic Fibrosis Care gave $250K across 1 grant in 2025 (avg $250K), mostly in New York. Source: 2025 IRS Form 990.
- EIN
- 13-4166186
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $250,000
- Grants made (2025)
- 1
- Average grant
- $250,000
- Median grant
- $250,000
- Total assets
- $1,947,402
- Primary geography
- New York (100% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$1.9M
-5.6% YoY
Annual Giving
$250K
+0.0% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$250K
+0.0% YoY
About Families and Friends Supporting Cystic Fibrosis Care
Based on IRS filings
Families and Friends Supporting Cystic Fibrosis Care is a public charity focused on Diseases, Disorders & Medical Disciplines, based in New York, NY. IRS filing data is available from 2022 through 2025. As of 2025, the organization holds $1.9M in total assets. In 2025, it awarded 1 grant totaling $250K. Net investment income was $64K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2025, annual grant giving ranged from $500 (2022) to $650K (2023). In 2025 it made 1 grant totaling $250K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grant Insights
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Northwell Health Foundation ($250K).
Grant Size Distribution
3 grants across all recorded years
The most common grant size was in the $250–500K range: 2 grants of 3 (67%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Northwell Health Foundation Westbury, NY | To assist with the operating costs of a cystic fibrosis center at lenox hill hospital in New York that endeavors to enhance the quality of life of cystic fibrosis patients. | $250,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,947,402 | $2,062,361 | $1,901,654 |
| Revenue | $194,150 | $497,707 | $817,705 |
| Expenses | $327,957 | $354,917 | $755,393 |
| Net Investment Income | $64,169 | $15,320 | $37,229 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS November 3, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS September 11, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 8, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS July 28, 2025)
- IRS filings on file for fiscal years 2022–2025
Leadership & Key People
Officers and directors from IRS filings
Families and Friends Supporting Cystic Fibrosis Care is led by Gwen M. Engelhard DDS, President on every filing since 2022; none of the 15 officers listed in 2025 report compensation.
Officers on the 2025 filing
Gwen M. Engelhard DDS
President
On filings since 2022
No compensation reported
David Shepherd
Director
On filings since 2022
No compensation reported
Judy Nance
Director
On filings since 2022
No compensation reported
Kaitlyn Cheney
Director
On filings since 2022
No compensation reported
Lisa Troyano-Ascolese
Director
On filings since 2022
No compensation reported
Lumi Castlen
Director
On filings since 2022
No compensation reported
Melissa Argenio
Director
On filings since 2022
No compensation reported
Melissa Smith
Director
On filings since 2022
No compensation reported
Robert M. Hutchinson
Director
On filings since 2022
No compensation reported
Rose Marie Manger
Director
On filings since 2022
No compensation reported
Sean McCooe
Director
On filings since 2022
No compensation reported
Jill Dalton
Chief Financial Officer
On filings since 2022
No compensation reported
John Z. Jacoby
President Emeritus & Secretary
On filings since 2022
No compensation reported
Marnee McCarthy
Assistant Secretary
On filings since 2022
No compensation reported
Thomas G. Leahy
Vice President
On filings since 2022
No compensation reported
Former officers (1)
- Former: Mary Jean Jacoby (2022–2023) — Director
Data from IRS Form 990 filings, 2022–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Families and Friends Supporting Cystic Fibrosis Care
How much does Families and Friends Supporting Cystic Fibrosis Care give each year?
Families and Friends Supporting Cystic Fibrosis Care gave $250K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $250K across 1 grant.
How large is Families and Friends Supporting Cystic Fibrosis Care?
Families and Friends Supporting Cystic Fibrosis Care reported $1.9M in total assets on its 2025 IRS Form 990. Its revenue that year was $194K.
What is Families and Friends Supporting Cystic Fibrosis Care?
Families and Friends Supporting Cystic Fibrosis Care is a public charity focused on Diseases, Disorders & Medical Disciplines, based in New York, NY. It holds $1.9M in total assets as of 2025.
Where does Families and Friends Supporting Cystic Fibrosis Care operate?
Families and Friends Supporting Cystic Fibrosis Care has awarded grants in New York.
What is Families and Friends Supporting Cystic Fibrosis Care's EIN?
Families and Friends Supporting Cystic Fibrosis Care's EIN (Employer Identification Number) is 13-4166186. IRS Form 990 filing data is available on this page for 2022–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Families and Friends Supporting Cystic Fibrosis Care by hand.
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