Familial Dysautonomia Now Foundation FD Now
To discover new treatments and cures for patients with familial dysautonomia, a rare, fatal, genetic neurological disease present at birth
Familial Dysautonomia Now Foundation FD Now at a glance
In short: Familial Dysautonomia Now Foundation FD Now gave $176K across 1 grant in 2025 (avg $176K), mostly in New York. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $176,400
- -1.6% vs 2024
- Grants made (2025)
- 1
- +0.0% vs 2024
- Average grant
- $176,400
- -1.6% vs 2024
- Median grant
- $176,400
- Total assets
- $1,146,133
- +5.7% vs 2024
- Primary geography
- New York (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Familial Dysautonomia Now Foundation FD Now funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Fordham University ($176K).
Grant Size Distribution
5 grants across all recorded years
The most common grant size was in the $100–250K range: 5 grants of 5 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
How Familial Dysautonomia Now Foundation FD Now gives
- Giving held roughly steady from 2022 to 2025 (+0%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $162K (2020) to $179K (2024). In 2025 it made 1 grant totaling $176K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Fordham University Bronx, NY | lab for fd research | $176,400 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,146,133 | $289,025 | $233,939 | $176,400 | 1 | $44,207 |
| 2024 | $1,084,316 | $298,955 | $235,102 | $179,280 | 1 | $54,373 |
| 2023 | $1,031,053 | $363,863 | $226,852 | $177,720 | 1 | $8,242 |
| 2022 | $882,138 | $293,462 | $226,342 | $177,012 | 1 | $1,633 |
| 2021 | $811,730 | $230,833 | $203,083 | $164,339 | 1 | $1,870 |
| 2020 | $783,451 | $198,758 | $206,405 | $162,206 | 1 | $11,173 |
About Familial Dysautonomia Now Foundation FD Now
Based on IRS filings
Familial Dysautonomia Now Foundation FD Now is a public charity focused on Medical Research, based in Buffalo Grove, IL. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $1.1M in total assets. In 2025, it awarded 1 grant totaling $176K. Net investment income was $44K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Familial Dysautonomia Now Foundation FD Now is led by Ann Slaw JD, President on every filing since 2020; none of the 8 officers listed in 2025 report compensation.
Officers on the 2025 filing
Ann Slaw JD
President
On filings since 2020
40 hrs/week
No compensation reported
Andrea Greenfield
Treasurer
Advisory Board → Treasurer, 2021
On filings since 2020
4 hrs/week
No compensation reported
Carol Alterman RN
Fl Regional Representative
On filings since 2020
1 hr/week
No compensation reported
Ken Slaw PhD
Vice President
On filings since 2020
4 hrs/week
No compensation reported
pat white
Advisory Board
On filings since 2020
1 hr/week
No compensation reported
Ruth Woodruff JD
Advisory Board
On filings since 2020
1 hr/week
No compensation reported
Tara D. Schimmel Ms Ed
Ny Regional Representative
On filings since 2020
1 hr/week
No compensation reported
Terry finesmith horwich JD
Advisory Board
On filings since 2020
1 hr/week
No compensation reported
Former officers (1)
- Former: Lynn Cabin Mst (2020) — Treasurer
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Familial Dysautonomia Now Foundation FD Now
How much does Familial Dysautonomia Now Foundation FD Now give each year?
Familial Dysautonomia Now Foundation FD Now gave $176K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $179K across 1 grant.
How large is Familial Dysautonomia Now Foundation FD Now?
Familial Dysautonomia Now Foundation FD Now reported $1.1M in total assets on its 2025 IRS Form 990. Its revenue that year was $289K.
What is Familial Dysautonomia Now Foundation FD Now?
Familial Dysautonomia Now Foundation FD Now is a public charity focused on Medical Research, based in Buffalo Grove, IL. It holds $1.1M in total assets as of 2025.
Where does Familial Dysautonomia Now Foundation FD Now operate?
Familial Dysautonomia Now Foundation FD Now has awarded grants in New York.
What is Familial Dysautonomia Now Foundation FD Now's EIN?
Familial Dysautonomia Now Foundation FD Now's EIN (Employer Identification Number) is 26-3531031. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS April 13, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS December 13, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS January 30, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS January 15, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS December 9, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS December 11, 2025)
- IRS filings on file for fiscal years 2020–2025
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