Epilepsy Coalition of New York State Inc
Epilepsy coalition of nys, inc. Has been organized for the purposes of promoting awareness of epilepsy and its consequences to public and private sectors in nys; and improving the epilepsy service system throughout the state.
Epilepsy Coalition of New York State Inc at a glance
In short: Epilepsy Coalition of New York State Inc gave $424K across 6 grants in 2025 (avg $71K), mostly in New York. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $423,778
- -0.1% vs 2024
- Grants made (2025)
- 6
- +0.0% vs 2024
- Average grant
- $70,630
- -0.1% vs 2024
- Median grant
- $70,630
- Total assets
- $118,214
- +4.9% vs 2024
- Primary geography
- New York (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Epilepsy Coalition of New York State Inc funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was Epilepsy Association of Western New York ($71K). Together the top 6 received $424K.
Grant Size Distribution
30 grants across all recorded years
The most common grant size was in the $50–100K range: 30 grants of 30 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
States
Cities
How Epilepsy Coalition of New York State Inc gives
- Giving held roughly steady from 2022 to 2025 (+7%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $367K (2020) to $424K (2024). In 2025 it made 6 grants totaling $424K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Epilepsy Association of Western New York Buffalo, NY | See Supplemental Info | $70,630 |
| Epilepsy Foundation of Long Island East Meadow, NY | See Supplemental Info | $70,630 |
| Epilepsy Foundation of Metropolitan New York New York, NY | See Supplemental Info | $70,630 |
| Capabilities Partnership Inc West Nyack, NY | See Supplemental Info | $70,630 |
| Epilepsy - Pralid Inc Rochester, NY | See Supplemental Info | $70,629 |
| Epilepsy Foundation of Northeastern New York Inc Albany, NY | See Supplemental Info | $70,629 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $118,214 | $467,272 | $467,272 | $423,778 | 6 | $2 |
| 2024 | $112,701 | $458,031 | $458,635 | $424,377 | 6 | $2 |
| 2023 | $115,774 | $446,822 | $446,237 | $412,368 | 6 | $5 |
| 2022 | $218,292 | $427,736 | $427,740 | $394,600 | 6 | $17 |
| 2021 | $204,439 | $403,975 | $404,790 | $370,200 | 6 | $20 |
| 2020 | $222,150 | $401,101 | $401,021 | $367,200 | 6 | $40 |
About Epilepsy Coalition of New York State Inc
Based on IRS filings
Epilepsy Coalition of New York State Inc is a public charity focused on Human Services, based in Pearl River, NY. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $118K in total assets. In 2025, it awarded 6 grants totaling $424K. Net investment income was $2.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Epilepsy Coalition of New York State Inc is led by Jeannine Garab, Chairperson on every filing since 2020; none of the 6 officers listed in 2025 report compensation.
Officers on the 2025 filing
Jeannine Garab
Chairperson
On filings since 2020
3 hrs/week
No compensation reported
Bessida Ouedraogo
Director
New on the 2025 filing
3 hrs/week
No compensation reported
Michelle Quinn
Director
New on the 2025 filing
3 hrs/week
No compensation reported
Jeffrey Irwin
Treasurer
Director → Treasurer, 2021
On filings since 2020
3 hrs/week
No compensation reported
Michael Radell
Vice Chairperson
Director → Secretary, 2021
Secretary → Vice Chairperson, 2025
On filings since 2020
3 hrs/week
No compensation reported
Irene Rodgers
Secretary
New on the 2025 filing
3 hrs/week
No compensation reported
Former officers (3)
- Former: Anna Vero (2020–2024) — Director
- Former: Elinor Latouche (2020–2024) — Director
- Former: Tom Hopkins (2020–2024) — Vice Chair
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Epilepsy Coalition of New York State Inc
How much does Epilepsy Coalition of New York State Inc give each year?
Epilepsy Coalition of New York State Inc gave $424K across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $424K across 6 grants.
What is Epilepsy Coalition of New York State Inc's typical grant size?
Epilepsy Coalition of New York State Inc's median grant in 2025 was $70,630, and its average grant was $70,630, across 6 grants on its 2025 IRS Form 990.
Where does Epilepsy Coalition of New York State Inc give grants?
Epilepsy Coalition of New York State Inc gives mostly in New York: 100% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there.
Does Epilepsy Coalition of New York State Inc give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on Epilepsy Coalition of New York State Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "See Supplemental Info" (6 grants).
Who are Epilepsy Coalition of New York State Inc's largest grantees?
Epilepsy Coalition of New York State Inc's largest 2025 grantees include Epilepsy Association of Western New York ($70,630), Epilepsy Foundation of Long Island ($70,630) and Epilepsy Foundation of Metropolitan New York ($70,630), according to its 2025 IRS Form 990. Together they received 50% of its itemized 2025 grant dollars.
How large is Epilepsy Coalition of New York State Inc?
Epilepsy Coalition of New York State Inc reported $118K in total assets on its 2025 IRS Form 990. Its revenue that year was $467K.
What is Epilepsy Coalition of New York State Inc?
Epilepsy Coalition of New York State Inc is a public charity focused on Human Services, based in Pearl River, NY. It holds $118K in total assets as of 2025.
What is Epilepsy Coalition of New York State Inc's EIN?
Epilepsy Coalition of New York State Inc's EIN (Employer Identification Number) is 13-4053389. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS June 4, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 23, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS June 28, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS May 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS June 26, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS June 25, 2026)
- IRS filings on file for fiscal years 2020–2024
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