Down Syndrome Association of West Michigan Foundation
The foundation is organized to provide permanent support through fundraising activities and investment earnings to the down syndrome association of West Michigan.
Down Syndrome Association of West Michigan Foundation at a glance
In short: Down Syndrome Association of West Michigan Foundation gave $161K across 1 grant in 2024 (avg $161K), mostly in Michigan. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $160,686
- -17.7% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $160,686
- -17.7% vs 2023
- Median grant
- $160,686
- Total assets
- $2,028,382
- +7.3% vs 2023
- Primary geography
- Michigan (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Down Syndrome Association of West Michigan Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Down Syndrome Association of West Michigan ($161K).
Grant Size Distribution
5 grants across all recorded years
The most common grant size was in the $100–250K range: 4 grants of 5 (80%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
How Down Syndrome Association of West Michigan Foundation gives
- Giving held roughly steady from 2021 to 2024 (+11%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $45K (2020) to $195K (2023). In 2024 it made 1 grant totaling $161K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Down Syndrome Association of West Michigan Grand Rapids, MI | To provide support for programs and operations of the down syndrome association of West Michigan | $160,686 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,028,382 | $291,116 | $218,246 | $160,686 | 1 | $119,669 |
| 2023 | $1,889,967 | $292,043 | $216,223 | $195,355 | 1 | $73,657 |
| 2022 | $1,689,132 | $317,128 | $160,932 | $140,930 | 1 | $-61,481 |
| 2021 | $1,736,219 | $354,494 | $197,395 | $145,000 | 1 | $67,294 |
| 2020 | $1,512,077 | $88,295 | $102,417 | $44,671 | 1 | $56,278 |
| 2019 | $1,376,911 | $131,662 | $102,403 | $82,750 | 1 | $46,047 |
About Down Syndrome Association of West Michigan Foundation
Based on IRS filings
Down Syndrome Association of West Michigan Foundation is a public charity, based in Grand Rapids, MI. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 1 grant totaling $161K. Net investment income was $120K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Down Syndrome Association of West Michigan Foundation is led by Robert Boylen, President since 2024 (on filings since 2023); none of the 6 officers listed in 2024 report compensation.
Officers on the 2024 filing
Robert Boylen
President
Board President → President, 2024
On filings since 2023
1 hr/week
No compensation reported
Jim Scarlett
Board Member
Member- At- Large → Member-At-Large, 2022
Member-At-Large → Board Member, 2023
On filings since 2019
1 hr/week
No compensation reported
Robin Zondervan
Treasurer
On filings since 2019
1 hr/week
No compensation reported
Cameron Rios
Board Member
On filings since 2023
1 hr/week
No compensation reported
William Blanton
Board Member
On filings since 2023
1 hr/week
No compensation reported
Adam Burzynski
Dsawm Representative
New on the 2024 filing
1 hr/week
No compensation reported
Former officers (10)
- Former: Katherine Hollis (2022–2023) — Executive Director
- Former: Roshelle Seals (2023) — Dsawm Representative
- Former: Thomas Hackett (2023) — Board Member
- Former: Bob Boylen (2019–2022) — Board President
- Former: Cameron Dolbow (2019–2022) — Member-At-Large
- Former: Tom Hackett (2019–2022) — Member-At-Large
- Former: Maria Nykerk (2021–2022) — Dsawm Representative
- Former: Tom Devault (2021–2022) — Interim Executive Director
- Former: Jennifer Devault (2020–2021) — Executive Director
- Former: Brad Rivard (2020) — Dsawm President
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Down Syndrome Association of West Michigan Foundation
How much does Down Syndrome Association of West Michigan Foundation give each year?
Down Syndrome Association of West Michigan Foundation gave $161K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $195K across 1 grant.
How large is Down Syndrome Association of West Michigan Foundation?
Down Syndrome Association of West Michigan Foundation reported $2.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $291K.
Where does Down Syndrome Association of West Michigan Foundation operate?
Down Syndrome Association of West Michigan Foundation has awarded grants in Michigan.
What is Down Syndrome Association of West Michigan Foundation's EIN?
Down Syndrome Association of West Michigan Foundation's EIN (Employer Identification Number) is 46-0635003. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS June 1, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS June 22, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS October 31, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 1, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 13, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 30, 2025)
- IRS filings on file for fiscal years 2019–2024
Live grants for the work Down Syndrome Association of West Michigan Foundation funds
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Down Syndrome Association of West Michigan Foundation down — hundreds of funders to go?