Childrens Fund for Glycogen Storage Disease Research Inc

Public charity · Grantmaker Cheshire, CT EIN: 04-3638491

The exempt purpose of the organization is to raise and disburse funds to support individuals and laboratories and or corporate entities who are involved in activities that will aid in the diagnosis, treatment and eventual cure of glycogen storage disease type 1a. One hundred percent of the organizations time, monetary and human resources are utilized toward this activity.

Key facts about Childrens Fund for Glycogen Storage Disease Research Inc

In short: Childrens Fund for Glycogen Storage Disease Research Inc gave $28K across 1 grant in 2024 (avg $28K), mostly in Connecticut. Source: 2024 IRS Form 990.

EIN
04-3638491
Latest 990 filing
Form 990, 2024
Annual giving (2024)
$28,184
Grants made (2024)
1
Average grant
$28,184
Median grant
$28,184
Total assets
$1,592,478
Primary geography
Connecticut (100% of itemized 2024 grant dollars)

Data from IRS Form 990, 2024; updated September 2026.

Financial Overview

From 2024 IRS Form 990 · View filing

Total Assets

$1.6M

+17.6% YoY

Annual Giving

$28K

-42.5% YoY

Grant Count

1

+0.0% YoY

Avg Grant Size

$28K

-42.5% YoY

How Childrens Fund for Glycogen Storage Disease Research Inc gives

  • Giving fell 90% from 2021 to 2024. Method

From the foundation's IRS Form 990 filings. Methodology.

About Childrens Fund for Glycogen Storage Disease Research Inc

Based on IRS filings

Childrens Fund for Glycogen Storage Disease Research Inc is a public charity, based in Cheshire, CT. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.6M in total assets. In 2024, it awarded 1 grant totaling $28K. Net investment income was $26K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

2states

Share of the 2024 grant dollars on its one itemized grant.

Cities

FarmingtonBethesdaHartford

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K1 grant2020 2 grants2021 1 grant2022 1 grant2023 1 grant2024

From 2020 to 2024, annual grant giving ranged from $25K (2020) to $285K (2021). In 2024 it made 1 grant totaling $28K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top recipient in 2024

Uconn Health: $28KUconn Health$28K

The largest 2024 recipient was Uconn Health ($28K).

Grant Size Distribution

6 grants across all recorded years

3<$50K1$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 3 grants of 6 (50%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Uconn Health Farmington, CT—$28,184

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$200K$400K$600K$800K2020 2021 2022 2023 2024
Metric202420232022
Total Assets$1,592,478$1,354,107$1,108,745
Revenue$231,044$292,913$552,956
Expenses$44,219$84,668$214,144
Net Investment Income$26,110$174$106

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS August 31, 2021)
  2. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Officers and directors from IRS filings

Childrens Fund for Glycogen Storage Disease Research Inc is led by Wendy-Becker Feldman, President on every filing since 2020; none of the 10 officers listed in 2024 report compensation.

Officers on the 2024 filing

  • Wendy-Becker Feldman

    President

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Fran Reed

    Director

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Harriet Bonelli

    Director

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Meri Gussin

    Director

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Michael Julius

    Director

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Sanford Hodes

    Director

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Teri Reed

    Director

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Valarie Rosen

    Director

    On filings since 2020

    2 hrs/week

    No compensation reported

  • David Feldman

    Sectry & Treasurer

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Lisa Hodes

    Vice President

    On filings since 2020

    2 hrs/week

    No compensation reported

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about Childrens Fund for Glycogen Storage Disease Research Inc

How much does Childrens Fund for Glycogen Storage Disease Research Inc give each year?

Childrens Fund for Glycogen Storage Disease Research Inc gave $28K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $49K across 1 grant.

How large is Childrens Fund for Glycogen Storage Disease Research Inc?

Childrens Fund for Glycogen Storage Disease Research Inc reported $1.6M in total assets on its 2024 IRS Form 990. Its revenue that year was $231K.

Where does Childrens Fund for Glycogen Storage Disease Research Inc operate?

Childrens Fund for Glycogen Storage Disease Research Inc has awarded grants in Connecticut, Maryland.

What is Childrens Fund for Glycogen Storage Disease Research Inc's EIN?

Childrens Fund for Glycogen Storage Disease Research Inc's EIN (Employer Identification Number) is 04-3638491. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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