TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.1M
-34.4% YoY
Revenue
$538K
-47.7% YoY
Net Investment Income
$71K
-80.2% YoY
Expenses
$1.1M
+7.8% YoY
About Beyond Batten Disease Foundation
Based on IRS filings
Beyond Batten Disease Foundation is a nonprofit organization focused on Education, based in AUSTIN, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.1M in total assets. Net investment income was $71K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,121,193 | $3,231,365 | $3,581,583 |
| Revenue | $538,315 | $1,028,636 | $1,219,815 |
| Expenses | $1,116,750 | $1,036,148 | $1,220,690 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $71,386 | $361,397 | $5 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| T CRAIG BENSON | BOARD CHAIR | 20 | — |
| MARY BETH KISER | PRESIDENT/CEO AND SECRETARY | 40 | — |
| JEFF HUNT | DIRECTOR | 4 | — |
| SABRINA BROWN | DIRECTOR | 4 | — |
| WAYNE HERNDON | DIRECTOR | 4 | — |
| WILL MURPHY | DIRECTOR | 4 | — |
| CAROLINE GOODNER | DIRECTOR | 4 | — |
| STEVEN SILBER MD | DIRECTOR | 4 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Beyond Batten Disease Foundation?
Beyond Batten Disease Foundation is a nonprofit organization focused on Education, based in AUSTIN, TX. It holds $2.1M in total assets as of 2024.
How large is Beyond Batten Disease Foundation?
As of 2024, Beyond Batten Disease Foundation holds $2.1M in total assets with $538K in annual revenue.
Where does Beyond Batten Disease Foundation operate?
Beyond Batten Disease Foundation has awarded grants in North Carolina, Texas.
What is Beyond Batten Disease Foundation's EIN?
Beyond Batten Disease Foundation's EIN (Employer Identification Number) is 26-3223661. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Beyond Batten Disease Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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