TO ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS FOR RESEARCH TO FIND A TREATMENT OR CURE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.1M
-34.4% YoY
Revenue
$538K
-47.7% YoY
Net Investment Income
$71K
-80.2% YoY
Expenses
$1.1M
+7.8% YoY
About Beyond Batten Disease Foundation
Based on IRS filings
Beyond Batten Disease Foundation is a nonprofit organization focused on Education, based in AUSTIN, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.1M in total assets. Net investment income was $71K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,121,193 | $3,231,365 | $3,581,583 |
| Revenue | $538,315 | $1,028,636 | $1,219,815 |
| Expenses | $1,116,750 | $1,036,148 | $1,220,690 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $71,386 | $361,397 | $5 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| T CRAIG BENSON | BOARD CHAIR | 20 | — |
| MARY BETH KISER | PRESIDENT/CEO AND SECRETARY | 40 | — |
| JEFF HUNT | DIRECTOR | 4 | — |
| SABRINA BROWN | DIRECTOR | 4 | — |
| WAYNE HERNDON | DIRECTOR | 4 | — |
| WILL MURPHY | DIRECTOR | 4 | — |
| CAROLINE GOODNER | DIRECTOR | 4 | — |
| STEVEN SILBER MD | DIRECTOR | 4 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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