Bardet Biedl Syndrome Foundation
The organization's mission is to build a community of support for individuals and families, provide information about bardet biedl syndrome, and promote science and research to improve the lives of individuals with bardet biedl syndrome.
Bardet Biedl Syndrome Foundation at a glance
In short: Bardet Biedl Syndrome Foundation gave $77K across 1 grant in 2025 (avg $77K), mostly in Wisconsin. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $77,375
- Grants made (2025)
- 1
- Average grant
- $77,375
- Median grant
- $77,375
- Total assets
- $609,072
- +60.9% vs 2024
- Primary geography
- Wisconsin (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Bardet Biedl Syndrome Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Marshfield Clinic Health System Foundation ($77K).
Grant Size Distribution
2 grants across all recorded years
The most common grant size was in the $50–100K range: 1 grant of 2 (50%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2025, annual grant giving ranged from $77K (2025) to $100K (2023). In 2025 it made 1 grant totaling $77K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Marshfield Clinic Health System Foundation Marshfield, WI | Medical Research | $77,375 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $609,072 | $396,830 | $167,052 | $77,375 | 1 | $2 |
| 2024 | $378,621 | $129,672 | $166,916 | — | — | — |
| 2023 | $415,865 | $372,565 | $172,225 | $100,000 | 1 | $16 |
| 2022 | $215,525 | $156,492 | $167,405 | — | — | — |
| 2021 | $226,438 | $74,680 | $46,462 | — | — | — |
About Bardet Biedl Syndrome Foundation
Based on IRS filings
Bardet Biedl Syndrome Foundation is a public charity focused on Health, based in West Chester, PA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $609K in total assets. In 2025, it awarded 1 grant totaling $77K. Net investment income was $2.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Bardet Biedl Syndrome Foundation is led by Timothy Ogden, President on every filing since 2021; none of the 5 officers listed in 2025 report compensation.
Officers on the 2025 filing
Timothy Ogden
President
On filings since 2021
5 hrs/week
No compensation reported
Alex Ogeka
Vice President
On filings since 2021
1 hr/week
No compensation reported
Nathan Arnesen
Treasurer
On filings since 2021
1 hr/week
No compensation reported
Dave Pothier
Board Member
On filings since 2024
1 hr/week
No compensation reported
Tara Klassen
Board Member
On filings since 2024
1 hr/week
No compensation reported
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Bardet Biedl Syndrome Foundation
How much does Bardet Biedl Syndrome Foundation give each year?
Bardet Biedl Syndrome Foundation gave $77K across 1 grant in 2025, according to its 2025 IRS Form 990.
How large is Bardet Biedl Syndrome Foundation?
Bardet Biedl Syndrome Foundation reported $609K in total assets on its 2025 IRS Form 990. Its revenue that year was $397K.
What is Bardet Biedl Syndrome Foundation?
Bardet Biedl Syndrome Foundation is a public charity focused on Health, based in West Chester, PA. It holds $609K in total assets as of 2025.
Where does Bardet Biedl Syndrome Foundation operate?
Bardet Biedl Syndrome Foundation has awarded grants in Wisconsin.
What is Bardet Biedl Syndrome Foundation's EIN?
Bardet Biedl Syndrome Foundation's EIN (Employer Identification Number) is 46-3343666. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2023 (received by the IRS December 4, 2023)
- Added Form 990 for fiscal year 2025 (received by the IRS June 15, 2026)
- Updated Form 990-EZ for fiscal year 2021 (received by the IRS December 12, 2021)
- Updated Form 990-EZ for fiscal year 2022 (received by the IRS December 13, 2022)
- Added Form 990-EZ for fiscal year 2024 (received by the IRS June 19, 2026)
Live grants for the work Bardet Biedl Syndrome Foundation funds
Health Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Bardet Biedl Syndrome Foundation's focus areas in our free grants database
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Figures come from Bardet Biedl Syndrome Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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