Amyloidosis Research Consortium Inc
Accelerating the development of advanced diagnostic tools and effective treatments for systemic amyloidosis through collaboration and innovation.
Amyloidosis Research Consortium Inc at a glance
- Total assets
- $4,674,963
- +57.1% vs 2023
- Revenue (2024)
- $3,366,811
- +16.6% vs 2023
- Net investment income (2024)
- $119,107
- +117.5% vs 2023
- Expenses (2024)
- $3,016,006
- +24.9% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Amyloidosis Research Consortium Inc
Open Grants
1 open opportunity from Amyloidosis Research Consortium Inc
Who Amyloidosis Research Consortium Inc funds
How this funder distributes its grants
Grant Size Distribution
1 grant across all recorded years
The most common grant size was in the $50–100K range: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2021 it made 1 grant totaling $76K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Heart Failure Society of America Inc Rockville, MD | To Support a Satellite Symposium on Cardiac Amyloidosis | $75,640 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $4,674,963 | $3,366,811 | $3,016,006 | — | — | $119,107 |
| 2023 | $2,975,266 | $2,888,025 | $2,415,059 | — | — | $54,751 |
| 2022 | $2,516,230 | $2,260,256 | $2,129,932 | — | — | $38,694 |
| 2021 | $2,350,923 | $1,647,972 | $1,682,131 | $75,640 | 1 | $724 |
| 2020 | $2,277,557 | $2,125,459 | $1,233,948 | — | — | $827 |
About Amyloidosis Research Consortium Inc
Based on IRS filings
Amyloidosis Research Consortium Inc is a public charity focused on Medical Research, based in Newton, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $4.7M in total assets. Net investment income was $119K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Amyloidosis Research Consortium Inc is led by Isabelle Lousada, President, CEO & Clerk since 2024 (on filings since 2020); 1 of 8 officers listed in 2024 is compensated.
Officers on the 2024 filing
Isabelle Lousada
President, CEO & Clerk
President, CEO & Clerk → President, CEO & Secretary, 2023
President, CEO & Secretary → President, CEO & Clerk, 2024
On filings since 2020
40 hrs/week
$138K (2020) → $175K (2024)
Sarah Cairns-Smith
Chair
Board Chair → President & Board Chair, 2021
President & Board Chair → Chair, 2022
On filings since 2020
0.3 hrs/week
No compensation reported
Jason Shore
Treasurer
On filings since 2020
0.3 hrs/week
No compensation reported
Raymond Comenzo
Board Member
On filings since 2020
0.3 hrs/week
No compensation reported
Ashutosh Wechalekar
Board Member
On filings since 2022
0.3 hrs/week
No compensation reported
Rick Nathanson
Board Member
On filings since 2023
0.3 hrs/week
No compensation reported
Laura Strickland
Board Member
New on the 2024 filing
0.3 hrs/week
No compensation reported
Mark Guidinger
Board Member
New on the 2024 filing
0.3 hrs/week
No compensation reported
Former officers (5)
- Former: Dena Heath (2020–2023) — Board Member
- Former: Giampaolo Merlini (2020–2022) — Board Member
- Former: Kristen Hsu (2021–2022) — Executive Director of Clinical Research
- Former: Vanessa Boulanger (2022) — Director of Patient Engagement
- Former: Robyn Himick (2020–2021) — Associate Director of Clinical Research
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $175K, to Isabelle Lousada (President/CEO & Clerk).
Frequently asked questions about Amyloidosis Research Consortium Inc
How large is Amyloidosis Research Consortium Inc?
Amyloidosis Research Consortium Inc reported $4.7M in total assets on its 2024 IRS Form 990. Its revenue that year was $3.4M.
What is Amyloidosis Research Consortium Inc?
Amyloidosis Research Consortium Inc is a public charity focused on Medical Research, based in Newton, MA. It holds $4.7M in total assets as of 2024.
Where does Amyloidosis Research Consortium Inc operate?
Amyloidosis Research Consortium Inc has awarded grants in Maryland.
What is Amyloidosis Research Consortium Inc's EIN?
Amyloidosis Research Consortium Inc's EIN (Employer Identification Number) is 47-2589708. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Amyloidosis Research Consortium Inc's focus areas in our free grants database
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Amyloidosis Research Consortium Inc down — hundreds of funders to go?