Amyloidosis Research Consortium Inc logo

Amyloidosis Research Consortium Inc

Public charity · Grantmaker Newton, MA EIN: 47-2589708 Website

Accelerating the development of advanced diagnostic tools and effective treatments for systemic amyloidosis through collaboration and innovation.

Amyloidosis Research Consortium Inc at a glance

Total assets
$4,674,963
+57.1% vs 2023
Revenue (2024)
$3,366,811
+16.6% vs 2023
Net investment income (2024)
$119,107
+117.5% vs 2023
Expenses (2024)
$3,016,006
+24.9% vs 2023
Latest 990 filing
Form 990, 2024 View filing

Data from IRS Form 990, 2024; updated September 2026.

How to apply to Amyloidosis Research Consortium Inc

Who Amyloidosis Research Consortium Inc funds

How this funder distributes its grants

Grant Size Distribution

1 grant across all recorded years

<$50K1$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $50–100K range: 1 grant of 1 (100%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

1state

States

Cities

Rockville

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$20K$40K$60K$80K0 grants2020 1 grant2021 0 grants2022 0 grants2023 0 grants2024

In 2021 it made 1 grant totaling $76K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
Heart Failure Society of America Inc Rockville, MDTo Support a Satellite Symposium on Cardiac Amyloidosis$75,640
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2024$4,674,963$3,366,811$3,016,006——$119,107
2023$2,975,266$2,888,025$2,415,059——$54,751
2022$2,516,230$2,260,256$2,129,932——$38,694
2021$2,350,923$1,647,972$1,682,131$75,6401$724
2020$2,277,557$2,125,459$1,233,948——$827

About Amyloidosis Research Consortium Inc

Based on IRS filings

Amyloidosis Research Consortium Inc is a public charity focused on Medical Research, based in Newton, MA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $4.7M in total assets. Net investment income was $119K.

Focus Areas

Leadership & Key People

Officers and directors from IRS filings

Amyloidosis Research Consortium Inc is led by Isabelle Lousada, President, CEO & Clerk since 2024 (on filings since 2020); 1 of 8 officers listed in 2024 is compensated.

Officers on the 2024 filing

  • Isabelle Lousada

    President, CEO & Clerk

    President, CEO & Clerk → President, CEO & Secretary, 2023

    President, CEO & Secretary → President, CEO & Clerk, 2024

    On filings since 2020

    40 hrs/week

    $138K (2020) → $175K (2024)

  • Sarah Cairns-Smith

    Chair

    Board Chair → President & Board Chair, 2021

    President & Board Chair → Chair, 2022

    On filings since 2020

    0.3 hrs/week

    No compensation reported

  • Jason Shore

    Treasurer

    On filings since 2020

    0.3 hrs/week

    No compensation reported

  • Raymond Comenzo

    Board Member

    On filings since 2020

    0.3 hrs/week

    No compensation reported

  • Ashutosh Wechalekar

    Board Member

    On filings since 2022

    0.3 hrs/week

    No compensation reported

  • Rick Nathanson

    Board Member

    On filings since 2023

    0.3 hrs/week

    No compensation reported

  • Laura Strickland

    Board Member

    New on the 2024 filing

    0.3 hrs/week

    No compensation reported

  • Mark Guidinger

    Board Member

    New on the 2024 filing

    0.3 hrs/week

    No compensation reported

Former officers (5)
  • Former: Dena Heath (2020–2023) — Board Member
  • Former: Giampaolo Merlini (2020–2022) — Board Member
  • Former: Kristen Hsu (2021–2022) — Executive Director of Clinical Research
  • Former: Vanessa Boulanger (2022) — Director of Patient Engagement
  • Former: Robyn Himick (2020–2021) — Associate Director of Clinical Research

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2024 IRS filing

Isabelle Lousada — President/CEO & Clerk: $175KIsabelle LousadaPresident/CEO & Clerk$175K

The highest reported compensation on the 2024 filing was $175K, to Isabelle Lousada (President/CEO & Clerk).

Frequently asked questions about Amyloidosis Research Consortium Inc

How large is Amyloidosis Research Consortium Inc?

Amyloidosis Research Consortium Inc reported $4.7M in total assets on its 2024 IRS Form 990. Its revenue that year was $3.4M.

What is Amyloidosis Research Consortium Inc?

Amyloidosis Research Consortium Inc is a public charity focused on Medical Research, based in Newton, MA. It holds $4.7M in total assets as of 2024.

Where does Amyloidosis Research Consortium Inc operate?

Amyloidosis Research Consortium Inc has awarded grants in Maryland.

What is Amyloidosis Research Consortium Inc's EIN?

Amyloidosis Research Consortium Inc's EIN (Employer Identification Number) is 47-2589708. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings.

Data update history

(2)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
  2. IRS filings on file for fiscal years 2020–2024

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from Amyloidosis Research Consortium Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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